Just wondering how common it is for folks w/ tos to get one of those. i have a stimulator, it was implanted way before the tos diagnosis. I was just about to get a pain pump when they diagnosed me w/ tos. Anyone out there? Curious how well the pain pump works. I don't suppose there's anyone w/ both???

just curious...

Just curious do you just have tos, or rsd as well? How well does the neuro stimulator work for your pain, and do you still require pain medication as well?
Sorry, im answering your question with another question...
Cheers,
Jay

DDayMBB- if I got his name right.. has TOS /RSD and has a pain pump I think.

member with name of beth has a SCS - has TOS/RSD also

If you search the TOS forum for SCS or Pain pump the info should come up

Just TOS, no rsd. the stimulator works but i wouldn't say it's a dramatic improvement. i still have too much pain. first thing i do every morning is reach for the remote to turn it on. i'm always in a lot of pain in the morning. and the last thing i do before i fall asleep is turn it off (hard to fall asleep when you're constantly getting shocked ). I do take ultram and ibuprofen and still i'm in too much pain. i have problems w/ other pain meds. my liver doesn't seem to agree w/ them (i got drug induced hepatitis in 2001). so, that's what kind of lead my pain doc down the stimulator path.

my primary doc also says i have fibro, although i don't really agree since it's just my upper body that is affected. the stimulator strangely enough helps w/ that. i think i just shrug my shoulders less because i'm in less pain so my muscles don't go as haywire as they used to. i didn't expect improvement in the muscle pain but it definitely helps.

i would recommend one. they are pretty amazing. some people get a lot better results than i did though. if it's suggested to you, i would totally at least try the trial. that sealed the deal for me.

Thanks for your response vodka knockers. I appriciate it, as you specified it was just for the tos. It may be an option I consider in the future, as I do not want the tos surgery. I would agree with you...in your self diagnosis of no fibro...since the symptoms are upper body. Its just the tos crap that moves around everywhere. I like the idea of turning it on in the morning before getting out of bed, your right, after lying in one place for the night, the mornings are difficult.
Thanks again,
Cheers,
Jay