[midgie]

Hi, has anyone here ever suffered from a sudden but brief episode of double vision(a couple of minutes long) i say double vision but it was like seeing things on a split screen. is this something that goes with TOS.

[Jomar]

I would get blurriness and hard to stay focused (mentally & visually), but that doesn't sound exactly like what you describe.


have you seen this chart?
http://tos-syndrome.com/newpage12.htm

Diplopia - [Diplopia, commonly known as double vision, is the simultaneous perception of two images of a single object that may be displaced horizontally, vertically, or diagonally (i.e. both vertically and horizontally) in relation to each other]
http://en.wikipedia.org/wiki/Diplopi...te-osullivan-0

[midgie]

thanks for the reply, i also get the blurriness and cant focus on things too close to my eyes but the double vision was sudden, without warning and shortlasting.i am not sure its connected to TOS or not.I looked at the chart you linked and have almost all the symptoms but had not heard of TOS until a couple of days ago. up to now i have been seen by a neurologist? and have had an MRI (still waiting for results)but i think they have been looking at the possibility of MS. now that i have read up om TOS i am convinced that is what is wrong, its only the double vision episode that i cant seem to put down to TOS. is it also normal to get a feeling of sunburn/itchyness/pain/redness of the skin on what i think is my clavicle?

[CindyCB]

That's a really informative piece - shame they have created it on such a headache-inducing backgorund though

Can't look at it for more than a couple of seconds!

[res5562965]

Originally Posted by midgie

Hi, has anyone here ever suffered from a sudden but brief episode of double vision(a couple of minutes long) i say double vision but it was like seeing things on a split screen. is this something that goes with TOS.

I have chiari I malformation and had to have a VP shunt to allow my spinal fluid to leave my head. I've had a total of 8 shunt surgeries and the pressure in my head before the last surgery caused me to have double vision. It was diagnosed as 6th nerve palsy and I had to wear a patch over one eye a couple of days and for the most part that corrected it. It does come back if I try to read or focus on anyone thing for a period of time. However, it goes away quickly after I look away for a while.

[midgie]

i had not heard of that condition before , have just looked it up, there seems to be a lot of cross over symptoms with all these conditions, its all very confusing one thing did stand out though ,along with the double vision episode i had a wierd buzz/fluttering in my head. i just cant find any one condition that matches all my symptoms.i seem to have a little bit of everything

[res5562965]

Originally Posted by midgie

i had not heard of that condition before , have just looked it up, there seems to be a lot of cross over symptoms with all these conditions, its all very confusing one thing did stand out though ,along with the double vision episode i had a wierd buzz/fluttering in my head. i just cant find any one condition that matches all my symptoms.i seem to have a little bit of everything

My symptons of Chiari started with buzzing/fluttering in my head. Especially if I put my head/ears under water or used earplugs I could really hear it. It was several months before my head started having horrible pressure pain. I think the buzzing/fluttering sound was the spinal fluid beginning to build up in my head. Hope you find a diagnosis soon.

[midgie]

Originally Posted by res5562965

My symptons of Chiari started with buzzing/fluttering in my head. Especially if I put my head/ears under water or used earplugs I could really hear it. It was several months before my head started having horrible pressure pain. I think the buzzing/fluttering sound was the spinal fluid beginning to build up in my head. Hope you find a diagnosis soon.

when i first went to my gp with those symptoms he tried to say it was it migraine. i have never been able to describe the buzzing in my head without being looked at like i was mad.if i had to draw it ,it would be like an electrical zap, like it was connecting my eye and ear? but i heard it very loudly like a bbbrrrrrr. does that sound familiar or am i just describing it very badly. that seemed to be a one off but i do often get a rushing sound deep behind my ear and a fluttery/brrr . can i ask if you ever suffered from migraines ? i have had migraine aura for 5 years (no headache) and am now wondering if thats connected too.

[midgie]

Originally Posted by midgie

when i first went to my gp with those symptoms he tried to say it was it migraine. i have never been able to describe the buzzing in my head without being looked at like i was mad.if i had to draw it ,it would be like an electrical zap, like it was connecting my eye and ear? but i heard it very loudly like a bbbrrrrrr. does that sound familiar or am i just describing it very badly. that seemed to be a one off but i do often get a rushing sound deep behind my ear and a fluttery/brrr . can i ask if you ever suffered from migraines ? i have had migraine aura for 5 years (no headache) and am now wondering if thats connected too.

just been googling again,seems like chiari is picked up by MRI, which i had a couple of weeks ago,so at least it will be something to either rule out,or dx. i am just not very good at waiting

[res5562965]

Originally Posted by midgie

when i first went to my gp with those symptoms he tried to say it was it migraine. i have never been able to describe the buzzing in my head without being looked at like i was mad.if i had to draw it ,it would be like an electrical zap, like it was connecting my eye and ear? but i heard it very loudly like a bbbrrrrrr. does that sound familiar or am i just describing it very badly. that seemed to be a one off but i do often get a rushing sound deep behind my ear and a fluttery/brrr . can i ask if you ever suffered from migraines ? i have had migraine aura for 5 years (no headache) and am now wondering if thats connected too.

I have never had headaches until Jan 2010 and it started with the noise in my ears like you described. I was first diagnosed with occipital neuralgia(pinched nerve) because the person that read my first MRI did not pick up on the Chiari. It is hard to diagnose the Chiari even with a MRI. It takes the right radiologist to see it. After the Chiari diagnosis 11/2010 I then had a MRI with a study of the flow of Spinal Fluid and that is when I was diagnosed with Chiari I malformation and Arnold's Chiari 11/2010. Immediately 11/2010 they put a shunt in my head to let the fluid flow instead of being trapped in my head (immediate relief). The pain was very different from a "migraine headache". It was a continuous pain in a specific place in my head, a pressure pain like someone had their fist inside my head pushing to the top of my head, mine on the left top. That's the only way I know to describe it. It took almost a year to get the correct diagnosis and a different doctor to diagnosis it correctly. The shunt relieved the pressure pain but did not relieve all my symptons. Pain when I sneezed, coughed, or gagged. That was from the Chiari where my "brain tonsils" were pushed through the opening in the base of my skull due to my skull being too small for my brain. I then had Chiari decompression surgery 2/2011 where they make the opening @ base of skull larger and removed a part of my vertebrae to give my brain more room. This surgery helped with the remaining pain I was experiencing. I still have to have the shunt because the aquaducts that allow flow are small and have evidently gotten smaller with age. I was 48 when all this began. It usually effects people earlier since it's a congenital condition (born with it). No idea why it affected me at such late age.