that sounds like you have had quite a rough time of it....I started having problems 9 months ago, only now realising its not going to be something that is dx quickly, i had been holding off taking the tablets the doc prescribed for the nerve pain i am getting down my arm ,hoping that i would have some answers but it seems that could be some time off yet.(foolishly thought that i would see doc at hospital and he would tell me what was wrong with me)but i have not even had the results of blood tests that were done 7 weeks ago yet looks like i might have to take the pills after all if only to get some sleep...still gots lots of questions !