Thks for reply , So Lyrica dosage can go up more i presume.
Any guys out there for the viagra question? Might be a coincidence that things started acting up again?
So lyrica is working for some people?
Thks

I was prescribed 500mg of Lyrica at one time. The neurologist who prescribed it claimed to have TOS patients on 900mg. I ended up only needing 300mg with the addition of Diazepam. I have extra Lyrica to put flares in remission, but for me, an additional 50mg or 75mg does nothing for a flare. A small dose of additional Diazepam works wonders instead.

What works better than any drug so far has been Manual Therapy. It's been a long road and more to come, but I have not needed extra meds for a flare in about 1 year. YEAH! Considering taking a small dose decrease in Lyrica to see if I can remain stable. Magnesium has also been helping immensely.

Manual Therapy has been my key. It's been a heck of a ride finding the right therapist, but I have and my boat is no longer sinking.

First of all, more power to you for taking viagara for your woman, some men would be too proud or shy!

Second, I had a cervical rib removal surgery for TOS 6 months ago on right side, complained of pain, swelling, numbness for 6 months following surgery with no one listening to me and then finally was diagnosed with CRPS/RSDS. I think you need to be evaluated for this condition although its hard to diagnose since its a syndrome. They can run bogus tests on you for this and can misdiagnose this syndrome as something else. So its tricky. Find a good physiatrist.

My RSDS started immediately after surgery and continued to get worse and now affects my entire right arm, and down my backside. Terribly painful.

Hope this helps.

@Anne4tos, can you share which forms of manual therapy you receive? (such as chiro, or omt, etc.). Also how often do you go and how long do the sessions last?

I ask because I also find that manual therapy is a requirement for me to keep symptoms at bay. I'm trying to figure out what my regular schedule will be. Of course, that will vary per person, but I'm still curious to hear about others' experiences. Any info is appreciated. Thanks.

THks for replies, Anne4tos i agree about the physical therapy which I am still doing ,it just gets expensive after awhile. So that is why I like the Lyrica,much cheaper but I still need a higher dosage. I hope the surgeon will put the dosage up nest week. I didn't understand the diazepam ,how does it help the nerve damage in my case anyway?
Thks ginger for the viagra comment, I still think the viagra irritated my nerves which refueled the numbness again, I just don't know how it had an effect.

It is true that these doctors do not listen,I almost have to repeat myself and get very serious with him to listen.They think it is alll in our heads or we are faking .
I'll look into that CRPS/RSDS ,but presently in Canada there are no tests being done unless that has changed.
Right now my side of neck is swollen and I have some finger numbness, I wish that neck thing would go away and never come back.

the "neck thing" sounds like the scalenes spasming out of control
I hear your frustration and need of letting go of the numbness and pain. Canada (is that where you are?) docs do use botox. Should be used with steroids and lidocaine to calm them down. As for the numbness, the CRPS is unrelenting, unforgiving. 12 years and Im still looking for answers.


Keep strong

Thks for the reply
I am in Canada, what would botox do for me plus the steroids and lidocaine ?
So they are called scalenes ,and they are a pain in the but a royal pain.
CRPS, you think that is what I got also?

Sorry to hear your still your still numb for 12 years I still cannot believe it.
Does anyone think that the viagra aggravated something?
Should my friggin doctor put up my dosage of Lyrica to max and or give me something to go with the Lyrica? Thks

Anyone just want a little feedback pls

HI I'll be doing emg tests soon, as per my family doctor, my surgeon has stopped all appointments for now.

I really suggest you read thru our useful sticky threads - it is pretty much a crash course for TOS and therapies too. Lots of links to follow also.

It will help you so much to learn the muscles involved, Trigger point & posture info, many other therapies, self help ideas (really helps to cut down on long term PT costs.)

http://neurotalk.psychcentral.com/thread84.html

docs & PTs lists -
http://neurotalk.psychcentral.com/thread135.html

At some point the surgeon will suggest a pain management dr as surgeons don't do long term pain control if that's what you will need.

But meds usually only cover up the pain & symptoms - they don't really heal anything.

If there is something that can be changed or healed - proper therapy, posture, trigger point or body work is usually the key.
Much of that can be self care if a expert PT, chiro or body worker gets you started on the right track for you.

slow easy baby steps!!! - nothing gung ho or crazy - it will set you back and discourage you.