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Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie. |
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07-28-2011, 12:49 AM | #1 | ||
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Can anyone recommend a doctor in the Connecticut-New York, or surrounding states area? I have arterial & venous blockage, and an increasing number of other problems resulting from this, after a motor vehicle accident (broken clavicle & sternum, among other things).
Local yokels have no idea what to do with me. I have been shuffled around and passed off more times than I can count. Ready to just give up, and let whatever happens happen, oh well, been nice knowin' ya, say a prayer for my kids. But since I have the kids, I guess I have to keep trying. So can anyone recommend a really good doctor in the northeast? (aside from Donahue at Mass G.) |
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07-28-2011, 07:06 AM | #2 | ||
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Dr Donahue Mass General.
KY |
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07-28-2011, 09:21 AM | #3 | ||
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I had surgery with Dr. Mark Adelman up at NYU Meducal Center... he is chief of vascular
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07-28-2011, 10:39 AM | #4 | ||
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What is he like? A human being, or a superior being? How did the whole thing go--were you happy with the way you were treated, did things go well medically, what about the staff?
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07-28-2011, 02:04 PM | #5 | ||
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To be honest...at first more like a "superior being", but after I spoke with him a few times and saw him the day of surgery he seemed to change into a "human being". I felt like considering his credentials I should put aside my need for the best bedside manor and focus on the best Dr. for the surgery. Everything went well although I did have a partially collapsed lung (one of the risks), I was home within a few days.Very little pain after surgery, more uncomfortable than anything. I was feeling better once I was home and even was up and about by the end of the week doing little things. The staff in the hospital were very good, there was always someone around to help/care for me. Surgery was a over a month ago and my scar looks great (under the armpit) it is really healing well, its hardly noticeable.
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07-28-2011, 06:53 PM | #6 | ||
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07-30-2011, 10:41 PM | #7 | ||
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Anyone else? Or anyone you would NOT recommend?
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07-30-2011, 10:49 PM | #8 | |||
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Not sure if you looked thru the Drs & PTs sticky thread - has some listings by state, unless your only looking for personal recommendations.
http://neurotalk.psychcentral.com/thread135.html
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Search NT - . |
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08-26-2011, 03:48 PM | #9 | ||
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Quote:
So....my tos, which is vascular indeed, involving both artery and vein, is caused by scar tissue wrapped around artery, vein, and probably nerves, from the underside of my collarbone where it was broken and took so long (and surgery) to heal. It is NOT because my rib and collarbone are too close together, or because the muscles are wrong/too tight/whatever. This agrees with the CT results from Boston (but Dr. D's mixing someone else's MRI in with mine had skewed his take....). This agrees with what I feel and what seems to affect things and trigger things. Dr. Adelman says the riskiest thing would be to do surgery, scar tissue is tougher than arteries and veins and such, so if you start messing with it, guess what gives way first....and he said there was a very very real chance I could completely lose use of my arm if surgery was done. Plus, I don't need more room made by removing bone and muscle, that is not the problem. He says PT by a knowledgeable person to get the scarring to loosen up. Something NO ONE in the past 16 months ever listened to me about, no matter how many times I told them I could feel I was stuck and restricted and couldn't move right. I am happy I don't seem to need the surgery (unless blood clots or something develop, which have to be taken care of quickly), but I am also so mad that so many doctors and physical therapists missed the boat, didn't take time to look properly, didn't listen to me or give anything I said any value. I count at least 10 doctors and 8 PT's who treated or evaluated me in all that time. They wasted well over a year of my life and my children's life, and halted recovery of my other injuries by keeping my activity so restricted that I able to work on my back or my knees or anything else. And a few of them would have unnecessarily removed healthy parts of my body, possibly with serious damage done. So now I have to wait and see if this PT person really knows what they are doing. After all, the name is coming from a chief of vascular surgery who said I did not have a vascular problem and that he didn't believe the MRA that so clearly showed a blocked area. Wish me luck. |
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"Thanks for this!" says: | Jomar (08-26-2011) |
08-26-2011, 08:48 PM | #10 | ||
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