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Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie. |
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02-18-2013, 03:12 PM | #21 | |||
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watch this!!!
im posting it all over the internet at the tail end a guy comments about how his clients neck pain was actually referred from the shoulders and dr dommerholt agrees http://www.bethesdaphysiocare.com/index.html is his clinic, i wish i could go i am definitely getting dry needled now
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last felt my fingertips august 2010 . Last edited by mspennyloafer; 02-18-2013 at 03:49 PM. |
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04-02-2014, 10:31 AM | #22 | ||
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hi all ,
looking for advice, i have been back and forth to the drs over the years with various symptoms which up until recently i would never have put together. Im not sure as to which type of dysautonomia i think i have but I'm under a cardiologist at the moment for tachycardia and hypertension. I'm 19 btw , he's unsure of what it is and is reluctant to treat it. I was diagnosed with IBS about a year ago to. aside from this my other symptoms are dizzy spells with my hr and bp shooting up, i struggle to sleep, i seem to have trouble controlling my temperature and have had purple hands and feet at times yet been sweating, i also suffer abdominal migraines and have started to have black out, I'm always thirsty and up and down to the toilet in the night but have had diabetes ruled out. i can no longer tolerate exercise very well. any advice welcome , not sure whether to mention the other symptoms to my cardiologist as he only knows about the high bp and tach. |
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04-02-2014, 12:31 PM | #23 | |||
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Magnate
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Hi there Im 19 and everything you describe is the same with me - my heart rate runs high all the time and my BP yo-yos from danerously high to dangerously high in minutes. My cardiologist is at a loss as he can't prescribe something to bring down the highs because I have the lows too so it would cause problems
Even before he suggested it I looked for someone who could link together the Ehlers Danlos, Postural Tachycardia and autonomic problems - that lead me to Professor Mathias in NHNN in London who specialises in the diagnosis and management of dysautonomia I am going for three days of extensive testing later this month - my cardiologists were sympathetic of the other problems but realised that it needed someone to look at the bigger picture too then look at an overall strategy to manage it I would start by mentioning it to the Cardio but do some research on consultants locally and regionally who have a special interest in dysautonomia. I found the understanding and support i got from the initial consultation to be invaluable Its really hard to cope with everything life throws at you illness wise and try balancing it with living life as a normal teenager but Im hoping once I know what is affected and what I can do to manage things better I can manage and limit the bad days Good Luck and don't ever be scared to mention something at your appointments however trivial you think it may sound Alison xx
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