watch this!!!



im posting it all over the internet

at the tail end a guy comments about how his clients neck pain was actually referred from the shoulders and dr dommerholt agrees

http://www.bethesdaphysiocare.com/index.html
is his clinic, i wish i could go

i am definitely getting dry needled now

hi all ,

looking for advice, i have been back and forth to the drs over the years with various symptoms which up until recently i would never have put together. Im not sure as to which type of dysautonomia i think i have but I'm under a cardiologist at the moment for tachycardia and hypertension. I'm 19 btw , he's unsure of what it is and is reluctant to treat it. I was diagnosed with IBS about a year ago to. aside from this my other symptoms are dizzy spells with my hr and bp shooting up, i struggle to sleep, i seem to have trouble controlling my temperature and have had purple hands and feet at times yet been sweating, i also suffer abdominal migraines and have started to have black out, I'm always thirsty and up and down to the toilet in the night but have had diabetes ruled out. i can no longer tolerate exercise very well.

any advice welcome , not sure whether to mention the other symptoms to my cardiologist as he only knows about the high bp and tach.

Hi there Im 19 and everything you describe is the same with me - my heart rate runs high all the time and my BP yo-yos from danerously high to dangerously high in minutes. My cardiologist is at a loss as he can't prescribe something to bring down the highs because I have the lows too so it would cause problems
Even before he suggested it I looked for someone who could link together the Ehlers Danlos, Postural Tachycardia and autonomic problems - that lead me to Professor Mathias in NHNN in London who specialises in the diagnosis and management of dysautonomia
I am going for three days of extensive testing later this month - my cardiologists were sympathetic of the other problems but realised that it needed someone to look at the bigger picture too then look at an overall strategy to manage it
I would start by mentioning it to the Cardio but do some research on consultants locally and regionally who have a special interest in dysautonomia. I found the understanding and support i got from the initial consultation to be invaluable
Its really hard to cope with everything life throws at you illness wise and try balancing it with living life as a normal teenager but Im hoping once I know what is affected and what I can do to manage things better I can manage and limit the bad days
Good Luck and don't ever be scared to mention something at your appointments however trivial you think it may sound
Alison xx