yes I have had that too a few times during sleep. Must all be related. Am still waiting for app for specialist.....wish it would hurry up as I need to take the results to my London doc.

How many of us have it ?

have what boytos?

Ehlers-Danlos-Syndrome

it could have been aimed at choking, gasping in sleep etc.

boytos

http://www.google.com/search?tbm=isc...l587l3.1.1l5l0

if you can bend your thumb foreward and touch your wrist you have severe joint laxity aka some kind of connective tissue disorder. i have this. none of my joints are stable

theres a strong connection to joint laxity and hormones, ive heard

loulou and i do

most people dont

Misspenny do you have marfan body too or any scoliosis?What did you score on the Beighton - I got 8/9 but then I am 42! They say that only people with EDS can stand up but lift both big toes off the floor - whether this is true or not I do not know. I also have see through skin which is very velvety, soft and stretchy, nodules in my shins....ooh am I painting a pretty picture lol

my skin is freakishly smooth too. people like to pet me, since puberty

most physicians say i do not have scoliosis however i had one pt said i did have mild scoliosis. as for marfans, my chest does concave in at all.. my ribs are just really twisted because my right shoulder is really weak. i am 5'8 114 lbs with some pretty narrow features (not my hips or shoulders but my hands and feet, narrow face, dental crowding etc). im not sure what my score is on the beighton scale.... i can do everything except put my hands flat on the floor when i bend over. i need to look up the geneticists notes. pretty sure they ruled out marfans. i am hypermobile but i have never dislocated anything but i also avoid moving around a lot bc i know ill hurt myself!!


my biggest biggest problem is lack of muscle. i have ZERO MUSCLE except for in my neck and upper traps. that's why im getting my dhea/testosterone checked.

another eds thing i have is chronic dry eye

drives me nuts

another trick


oh and my hips are hypermobile, knock kneed, flat footed yadda yadda