Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie.


advertisement
Reply
 
Thread Tools Display Modes
Old 08-26-2011, 02:51 PM #1
chroma chroma is offline
Member
 
Join Date: Aug 2011
Location: Los Angeles, CA
Posts: 972
10 yr Member
chroma chroma is offline
Member
 
Join Date: Aug 2011
Location: Los Angeles, CA
Posts: 972
10 yr Member
Default TOS video by Freischlag at Johns Hopkins

Julie Freischlag, Surgeon-in-Chief at Johns Hopkins with a specialty in TOS, posted a video on TOS at:

http://www.youtube.com/watch?v=Farrl80U0WI

She pointed out that many neurological tests show up negative because the nerve is compressed, not damaged. She then pointed out various other tests that are useful for diagnosing TOS.

She mentioned that botox injections could only be done once or twice because then the muscle doesn't relax any more. I hadn't heard that before.

If you're new to TOS, this may be informative. Otherwise, you already know the drill.
chroma is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
(Broken Wings) (08-28-2011), MarcS (08-27-2011)

advertisement
Old 08-26-2011, 03:46 PM #2
Coop42's Avatar
Coop42 Coop42 is offline
Member
 
Join Date: Feb 2007
Location: Petaluma Ca
Posts: 571
15 yr Member
Coop42 Coop42 is offline
Member
Coop42's Avatar
 
Join Date: Feb 2007
Location: Petaluma Ca
Posts: 571
15 yr Member
Default

That all sounds pretty positive. Did she say a 90% success rate? I know it used to be a lot lower than that. Maybe people are getting diagnosed sooner now and the surgeons are getting more experienced.
Coop42 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
(Broken Wings) (08-28-2011)
Old 08-26-2011, 06:15 PM #3
Anne4tos Anne4tos is offline
Member
 
Join Date: Aug 2010
Posts: 228
10 yr Member
Anne4tos Anne4tos is offline
Member
 
Join Date: Aug 2010
Posts: 228
10 yr Member
Default

90%? She must not have counted the people I know or have forgotten about them.
Anne4tos is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
(Broken Wings) (08-28-2011)
Old 08-26-2011, 07:23 PM #4
Jomar's Avatar
Jomar Jomar is offline
Co-Administrator
Community Support Team
 
Join Date: Aug 2006
Posts: 27,678
15 yr Member
Jomar Jomar is offline
Co-Administrator
Community Support Team
Jomar's Avatar
 
Join Date: Aug 2006
Posts: 27,678
15 yr Member
Default

Maybe she means newly dx'd patients.

I haven't had time to watch it yet...

I would hope "they " are finally getting more informed about TOS and other chronic RSI's - just because there isn't a clear cut test that shows it - doesn't mean it isn't the problem.
__________________
Search NT -
.
Jomar is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
(Broken Wings) (08-28-2011)
Old 08-28-2011, 11:35 AM #5
chroma chroma is offline
Member
 
Join Date: Aug 2011
Location: Los Angeles, CA
Posts: 972
10 yr Member
chroma chroma is offline
Member
 
Join Date: Aug 2011
Location: Los Angeles, CA
Posts: 972
10 yr Member
Default

I don't have the post handy, but I thought someone here wrote that UCLA gave 90% success rate for the first year, but dropping down to 70% in subsequent years as some people had their symptoms come back.
chroma is offline   Reply With QuoteReply With Quote
Old 08-29-2011, 07:59 AM #6
hellothere hellothere is offline
Member
 
Join Date: Jun 2011
Posts: 157
10 yr Member
hellothere hellothere is offline
Member
 
Join Date: Jun 2011
Posts: 157
10 yr Member
Default

That all did sound very posotive, maybe i gotta fly on down to america and get some proper help. hmmm
hellothere is offline   Reply With QuoteReply With Quote
Reply

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Back from Johns Hopkins tysondouglass Myasthenia Gravis 7 05-17-2011 06:44 AM
Back home from Johns Hopkins antonina Peripheral Neuropathy 26 04-11-2011 09:24 AM
Johns Hopkins Patients~ I have a question! legzzalot Multiple Sclerosis 6 02-21-2009 05:20 PM
my follow-up at Johns Hopkins RedPenguins Multiple Sclerosis 5 02-15-2009 02:26 AM
HiCy/Revimmune at Johns Hopkins RedPenguins Multiple Sclerosis 30 06-28-2008 11:03 AM


All times are GMT -5. The time now is 08:16 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.