Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie.


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Old 03-17-2007, 07:10 PM #1
momzpeachy momzpeachy is offline
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Join Date: Feb 2007
Location: NE PA
Posts: 150
15 yr Member
momzpeachy momzpeachy is offline
Member
 
Join Date: Feb 2007
Location: NE PA
Posts: 150
15 yr Member
Default I'm really struggling

Hi everyone

Just thought I'd post a quick note. I haven't been on in a few days because I've been in so much pain and just not handling things very well. I saew the neurologist on Thursday and he also agreed that I'm not making much progress. It's been 3 weeks and really no improvement. I've had more severe arm pain recently and trouble doing just about anything. My elbow is just ...well..I'm lost for words on that one. I have trouble sprinkling salt on food and even brushing teeth. So, anyways, the Dr came in and grabbed me under the arm around the arm pit. I YELLED OUCH! He said uh huh..yep, ok. Then he had assistant prep me for injections..once again. But this time...not in the neck. He said from holding my arm out at work all day and because my neck is so bad ...it is putting strain on the other muscles that are in the arm pit which control a lot of your arm function. So, he decided to do some trigger point injection in my ARMPIT! OH MY GOSH! Ok, I have to say...I have yet to experience anything that painful. That was downright AWFUL. I tried so hard to be strong and not cry and look like a whimp...couldn't do it. Even though the Dr and assistant said I did GREAT! They both thought I was really tough and can take pain rather well...(if they only knew). Well, it took me til the next day to get normal again. I was throwing up, crying, was in shock..couldn't even speak the entire night. I lost it! Then Friday I had to take my daughter for some testing (She has cerebral palsy)...this was an entire day of neurological testing which required me to SIT all day in a chair. Oh that was fun. Then to top it off...we got hit with snow and sleet. I had to drive home in an ice storm (3 inches fell already and it was coming down hard). I normally can't drive with both arms on the wheel...I had no choice this time. I couldn't drive over 30 mph the entire way...then missed my exit and had to go way out of my way to get home. It took 2 hours! Normally takes 30 minutes. I got home and cried and cried and then cried some more. This morning I was back to throwing up again and cryng in pain. I just can't take any more of this. I tried advil, heat, ice..you name it..nothing works. I feel like I'm going through all this and getting no where. I honestly don't know how much more I can take. My neck flared up so bad from the drive yesterday that I can't swallow...constantly coughing ..it's just bad. I don't want my kids seeing me like this. I"M SO DARN MAD! I can't stop crying and I hate crying in front of them so I have to go to me room to hide. They all know that mom is a mess. THey are trying to help. My husband is even seeing it now. I think they were all in shock over the armpit injections. Think they felt my pain. My husband cooked dinner and did my laundry. The kids shoveled the driveway. It's been amazing. They have been great. I just can't stand feeling this way. It hurts in every way shape and form. I asked the Dr how long it's gonna take to get better....he said "no telling". he said i'm a real mess, totally abnormal and everything is out of control. He has no clue as to when I can even start therapy and when I can return to work (if at all). Then to top it all off..the insurance adjuster for wc called and said my claim was denied. "They don't have enough information and they are working on time" . THey have 21 days but already denied it and have absolutely no records yet. He said they have nothing to back up my claim. "they haven't received any medical records yet but they have to look at the time frame and just deny the claim" They just received my release for records Monday. THe claim was denied Wed. How pathetic. Then the next day, I got a letter from my company saying I have 12 weeks of unpaid medical leave and they have placed me on it. After that, they will not hold my job any longer. Anyways, I have a meeting with my lawyer on Monday. I called him immediately. I am such a mess...a new house, no income, 4 kids, a house that needs work no less, and I feel like crap every day. When does it get better?

Well I'm heading back to the couch...can't sit here anymore tonight. Take care all and will be back on tomorrow.

Good night
__________________
momz of NE PA:
Right side TOS (Scalenectomy 1-14-08). Spinal problems. Thoracic Spine hernaited discs pressing on spinal cord and small tumor - still being investigated. A very tired mom who feels like giving up!

Wishing I could think more positive and be well again!
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