Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie.


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Old 09-28-2011, 06:08 AM #1
SD38 SD38 is offline
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Help Lymphadema and post TOS surgery????

Hi everyone, I have a question.......AGAIN!!!!!!

Do you suffer from lymphadema ( SORRY!!!!! I should have typed: swollen lymph nodes instead), aswell as TOS?
I have a history of my lymph nodes coming and going, particularly around my neck and armpits.
I'm currently 28 days post first rib excision surgery (VTOS) and a few days ago started to feel a slight lump just above one of my scars ( just above the collarbone in the deep hollow part- supraclavicular node.... I think?). I initally thought it to still be post surgery inflammation or scar tissue but now it feels like the shape of a lymph node. Anyway this morning its BIGGER so i've hit the fruit juices and multivits to give my immune system a boost. I've also got a absolutely rotten sore/dry throat and headaches--- I had this since the surgery BUT it's much worse today!
I already made a visit yesterday to see my doctor and he didn't seem bothered about it as he said the scars themselves looked well and I shouldn't worry.... well it's not his bloody body, is it!
If it doesn't go down by the end of the week I think that I may contact my surgeon's office for advice as I'm quite concerned.
It seems that I'm never on top of TOS/health issues/headaches.
When one thing improves so another starts to rear its ugly head!!!!!!
From a disheartened SD38

Last edited by SD38; 09-28-2011 at 08:35 AM. Reason: change title of thread to: swollen Lymph nodes and post TOS surgery????
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Old 09-28-2011, 12:51 PM #2
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There are lymph drainage massage techniques on online videos, maybe something there will be of help???
http://www.google.com/search?q=lymph...ient=firefox-a

seems many surgeons are concerned only w/ scarring & the post op recovery and don't actually pay attention when we ask about other issues...

Often we do get swollen lymph nodes even with no surgery - part of the clogged up system we tend to have...
less movement = clogged up lymph (my opinion anyway)
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SD38 (09-28-2011)
Old 09-28-2011, 01:00 PM #3
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Quote:
Originally Posted by Jo*mar View Post
There are lymph drainage massage techniques on online videos, maybe something there will be of help???
http://www.google.com/search?q=lymph...ient=firefox-a

seems many surgeons are concerned only w/ scarring & the post op recovery and don't actually pay attention when we ask about other issues...

Often we do get swollen lymph nodes even with no surgery - part of the clogged up system we tend to have...
less movement = clogged up lymph (my opinion anyway)
Thanks Jo*mar.
Unfortunately thats so true about the aftercare!
I'm not quite sure what to do about my doctor as he was the one who was blaise when I tried to let him know of my symptoms involved with TOS. I'm having a follow up with my surgeon on the 20th Oct.... hopefully I will get better treatment there???
Many thanks for the lymph links. SD38
--------------------------------------------------------------------------------------------------------
I've edited this post to add a youtube video which may help others having problems with their lymph nodes ( supraclavicular region) post surgery.
It's very gentle so you should be able to manage quite soon after if you have an op.

http://www.youtube.com/watch?v=GY6SDKZG18g

Hope it helps others. Best wishes. SD38

Last edited by SD38; 09-29-2011 at 09:12 AM. Reason: added a youtube video
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