NeuroTalk Support Groups

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NeuroTalk Support Groups (https://www.neurotalk.org/)

- Thoracic Outlet Syndrome (https://www.neurotalk.org/thoracic-outlet-syndrome/)

- - Arterial TOS? (https://www.neurotalk.org/thoracic-outlet-syndrome/158808-arterial-tos.html)

343v343

10-12-2011 12:54 PM

Quote:

Originally Posted by FazDiggity (Post 813517)

I'm a 22 YO male from Sydney and I have been suffering from TOS symptoms for over 3 years now.

What were your symptoms, just curious? How did they differentiate the pain between Neuro and Aterial. Was it just the color changes?

Quote:

I was just seeing if anyone knew what sort of success rate There is with surgery of arterial tos and if there was advice I should know?

Supposedly vascular issues fare pretty well with surgical intervention. Neurological, not so much. Haven't seen anyone on here anyway who has had NTOS relieved long term from decompression. Sending you good wishes / luck. Cheers.

SD38	10-13-2011 02:33 AM

Quote:

Originally Posted by chroma (Post 814221)

Did you say unnerving? Was that a pun? :winky: :D

Yes well you know what they say Chroma....... If you don't laugh you cry.:D
Well done for picking up on it. LOL:winky:

FazDiggity

10-27-2011 02:58 AM

Another update. I have just had a ultrasound on the subclavian Vein and it appears that it is getting compressed also. The vascular guy has ordered an EMG and then we will book a date for surgery. I think this is only step forward now. Does anyone know if there's a better outcome from the surgery if it's mainly vascular compression?

FazDiggity

10-27-2011 03:20 AM

Quote:

Originally Posted by 343v343 (Post 814230)

What were your symptoms, just curious? How did they differentiate the pain between Neuro and Aterial. Was it just the color changes?

Supposedly vascular issues fare pretty well with surgical intervention. Neurological, not so much. Haven't seen anyone on here anyway who has had NTOS relieved long term from decompression. Sending you good wishes / luck. Cheers.

Yeh sorry. They think there is nerve involvement. I have alot of symptoms but the main ones are : constant dull pain around the scalene collarbone area, coldish/warmish arm and hand, pinky purply arm hand, headches. I have no strength loss or pins and needles so that makes me think less nerve??

343v343

10-27-2011 05:12 PM

Quote:

Originally Posted by FazDiggity (Post 818972)

Does anyone know if there's a better outcome from the surgery if it's mainly vascular compression?

http://www.surgery.ucla.edu/vascular...Syndrome.shtml

Quote:

Eighty per cent of patients will have significant improvement of their symptoms following surgery. Ten per cent will have some improvement, and 10% may not improve. Some patients may also experience a recurrence of the symptoms months to years following surgery. This is usually treated by physical therapy or scalenectomy.

FazDiggity

10-31-2011 05:59 AM

I have had the EMG which has come back normal. Can I ask anyone with neurogenic TOS about their experience with nerve conduction study/EMG? Like whether you had a positive result?

SD38	10-31-2011 06:44 AM

Quote:

Originally Posted by FazDiggity (Post 820261)

I have had the EMG which has come back normal. Can I ask anyone with neurogenic TOS about their experience with nerve conduction study/EMG? Like whether you had a positive result?

Mine came back showing only a positive result for mild carpal tunnel??????
So no answers for me or explaination for symptoms.

Jomar

10-31-2011 11:49 AM

Usually EMG is normal for many w/TOS.
It is a good test to get done to rule out any specific nerve problems(carpal/ulnar).

Often TOS is dx'd by the ruling out of other possibles.
c spine, carpal /cubital tunnel, shoulder /ortho issues, etc.

FazDiggity

11-10-2011 02:20 AM

Surgery

Ok. They have set a date for my surgery on the first of dec.
They're doing a transaxillary first rib resection. The surgeon says there's no guarantees but here's hoping. I will let yous know how it goes.

chroma

11-10-2011 04:00 AM

Quote:

Originally Posted by FazDiggity (Post 823451)

Do they let you keep the rib? :D

If I get mine removed, I want to put that troublemaker on display for guests.

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