NeuroTalk Support Groups

NeuroTalk Support Groups (https://www.neurotalk.org/)

- Thoracic Outlet Syndrome (https://www.neurotalk.org/thoracic-outlet-syndrome/)

- - The TOS Smile (https://www.neurotalk.org/thoracic-outlet-syndrome/159318-tos-smile.html)

I'm sorry SD, seems like many surgeons are like that....

Did I mention the word bruit to you?
That's what my chiro called the sound when I described it to him, none of my other docs or PTs would put name to i when I asked about that sound...:(

I just posted a link to a page that has recordings of bruits..
http://neurotalk.psychcentral.com/post817020-5.html

Quote:

Originally Posted by Anne4tos (Post 816626)

Jay: Cheers up! :)

I think it has a lot to do with C1, but the problem I experience is that any adjustment made does not last long. The tight muscles pull it right back out and I'm back to square one. When C1 is in place, I feel relief to the sides of my neck and face immediately. Too much touching of the area will make me feel nauseas, disoriented, neuro and the sides of my neck will be extremely TENDER.

I guess my confusion in making a decision about continuing with a Chiro is - Do you keep putting C1 in, even if it keeps popping out and the symptoms I get with someone touching my C-spine seem to exacerbate everything else?

Does your chiro treat the tight or spasmed muscles too? It was so nice that mine did the other modalities a long with adjusting..
Otherwise you have to go to chiro & some sort of PT place for ultrasound, and any other massage or TrP tx.
It is an endless circle if both are not treated - the muscles pull the c1/c2 out & it can be put back , but if the muscles are still tight out it goes again...
Not sure if you tried any trigger point tx also- TrPs have to be resolved first before a muscle will fully release. Another circle...

Quote:

Originally Posted by Jo*mar (Post 817020)

possibly a bruit?

I had it when my neck muscles were in spasms.
The muscles placed pressure on the arteries and made the whooshing sound in my head.

they have some sounds of bruit online - at the bottom of this linked page-
http://www.fistulafirst.org/Healthca...eConcept9.aspx
[Listen for the Bruit

From: Tushar Vachharajani, MD, FACP, FASN, Associate Professor Internal Medicine/Nephrology, Director, Dialysis Access Group of WFU, Wake Forest University School of Medicine, Winston-Salem, North Carolina, USA]

Hi Jo*mar
thanks for the link.
When I mentioned the Pulsing to my surgeon and asked if the surgery could have triggered it he said, its possible....... and that was it! AAAAAHHHHHHH
FRUSTRATION is a word that comes to mind.
I'm now thinking, lets just get this 2nd op out the way quick to see if it also helps with the pulsatile tinnitus. Damn, now I'm grabbing at straws to try and get some improvements.
Deep down I'm telling myself - Don't panic, you're just aware of the pulsing because of the change in blood flow due to the op on the other side BUT then another part of me thinks..... Is this something serious, why can I hear it this loud???? I used to like peace and quiet to relax with, now all I can hear is this constant pulsing hum:eek:. Quietness is NOT so peaceful!!!!!!
I've mentioned this prob with both the vascular surgeon and my GP and both are blaise about it:mad:.
I hope all is well, to me ( in my head) its sounds regular, no whistling just a constant low pulsing humming. Is this normal because of the new stronger bloodflow????? I guess I'll never know as my healthcare providers......I use that term loosely, are not bothering to consider it.
Hey, its just my sanity they are dealing with....right?
Anyway back to another session of self mental strengthening, as I think to myself that the sounds in my ears are just waves crashing against golden sands.
WHATEVER HELPS I GUESS.:rolleyes:
Many thanks for your input as always Jo*mar, bless you:winky:
Best wishes to all:grouphug:
SD38

Quote:

Originally Posted by Jo*mar (Post 817023)

Thanks for the info.
I've sent a reply post but for some reason I think that it has accidently gone through to the other forum ( head trauma/post concussion )?
:Oops:

I brought it back to this thread for you.

Pretty new here but this thread stuck out at me - I have TOS and I definitely have a crooked smile. I started noticing it in pictures a few years ago, and was diagnosed with TOS early this year (in 2011).

Also, when I smile one eye is more open than the other. And when standing, my right shoulder is about two inches lower than my left (TOS is on right side). I also have trouble with my right knee, of all things. I am decidedly crooked.

Pretty interesting (in a frustrating sort of way).

Quote:

Originally Posted by nicinboston (Post 817800)

Interesting..... I also notice a difference in my eyes too. Sometimes I look at the imbalance and think have I experienced a minor stroke and not been aware it happened???
One side looks definately more relaxed than the other.

Quote:

Originally Posted by nicinboston (Post 817800)

Yeah my TOS side is the side with the depressed shoulder. My ear on that side also sits lower than the other side. When I put sunglasses on, they are crooked. :(

Quote:

Originally Posted by chroma (Post 817902)

Yeah my TOS side is the side with the depressed shoulder. My ear on that side also sits lower than the other side. When I put sunglasses on, they are crooked. :(

Yeah me too.
I make sure that I get ones with arms that can be flexed. If I bend one side up slightly on the glasses it gives the illusion that they are on straight and counteracts the unbalanced look.:o