I believe that I may have TOS.

My hands have been like numb ice for months (no color changes), I've had muscle spasms, stiffness and tremors in them, and lately I've been experiencing a heavy, weak feeling in my arms, especially when blow-drying my hair. No pain to speak of, but stiff muscles. I have loose joints to begin with, and my shoulders "pop" a great deal, especially after computer use.

A recent EMG came back clean, but I ran my TOS fears by the neuro anyway, and he said he didn't think so. I also had a vascular test where they put "cuffs" on my arms to measure bloodflow, but I don't have the results yet.

Still... What sort of doctor should I be going to? Will I lose the use of my arms/hands? Please...I would appreciate advice from anyone.

Have you had any MRI or xrays of the c spine to rule out any causes from those areas?
Our sticky threads are full of info to help with a crash course of knowledge.
http://neurotalk.psychcentral.com/thread84.html

Do do do repetitive work, or any previous whiplash type of injury?

I know you are scared. I have never had the popping shoulder. But everything else. My guess is you have a weak tricep and serratus anterior on that side. But I recently went to a physical therapy class that address that issue and many more. Are you in the States? If so, please look into Postural Restoration Physical Therapy. They really do have a thumb-hold on all these problems.

concolour took the words out of my mouth

you really need to pay attn to this, dont make it worse!

are you hypermobile? like ehlers danlos syndrome?

i gave myself whiplash too! it sucks. it's even worse tho if you have shoulder issues. you need to find a good pt. dont do resistance band exercises

Also check your posture in a mirror, head forward/shoulders rolled or hunched forward?
some pics & simple things to try on my album page -
http://neurotalk.psychcentral.com/album.php?albumid=422

Thanks for the replies, guys. I really appreciate it.

No, I haven't had an MRI of those areas. I have had an X-ray of the ribcage area, which was normal with some arthritis. I've had mild whiplash, and I'm on the computer for hours at time with work...the problem started with my hands, and it just seems to be getting worse. I'm baffled.

I feel so much less alone now.

My posture is your standard hunched-over-the-computer-in-my-cave, which I suspect doesn't help. No idea about Ehlers-Danlos syndrome, but I do have hyper-lax joints...always something cracking or popping. I feel like my arm kind of goes out of its socket at times.

I've got appointments with both the vascular and ortho docs coming up in the next few weeks. How do I go about getting properly dxed, or at least have my concerns taken seriously?

My GP originally suggested that my cold hands were just "nerves"--something I was more than happy to believe until the other symptoms started. I feel stupid for doubting myself. Hoping it's not too late to somehow get this resolved...

Just curious. Do you have Raynauds Syndrome?
That was one of my first symptoms. Years of cold hands and extremities. Developed white fingers in the cold winter months etc.Which escalated to probs with hand pain, wrist pain ( carpal tunnel), elbows, shoulders and so.
Doctors made no connections and a TOS dx took 6 yrs.
You know your symptoms and how they make you feel. Don't let doctors intimidate you.
I WISH I LISTENED TO MY OWN ADVICE!
Best wishes SD38

YES. This whole thing started with cold hands and a dx of Reynaud's. I don't know what to do, I feel like the arm weakness is slowly, inexorably getting worse...ugh. Will update as I see more doctors.