Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie.


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Old 10-20-2011, 10:43 AM #1
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Shocked Terrified. Please help.

I believe that I may have TOS.

My hands have been like numb ice for months (no color changes), I've had muscle spasms, stiffness and tremors in them, and lately I've been experiencing a heavy, weak feeling in my arms, especially when blow-drying my hair. No pain to speak of, but stiff muscles. I have loose joints to begin with, and my shoulders "pop" a great deal, especially after computer use.

A recent EMG came back clean, but I ran my TOS fears by the neuro anyway, and he said he didn't think so. I also had a vascular test where they put "cuffs" on my arms to measure bloodflow, but I don't have the results yet.

Still... What sort of doctor should I be going to? Will I lose the use of my arms/hands? Please...I would appreciate advice from anyone.
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Old 10-20-2011, 10:56 AM #2
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Have you had any MRI or xrays of the c spine to rule out any causes from those areas?
Our sticky threads are full of info to help with a crash course of knowledge.
http://neurotalk.psychcentral.com/thread84.html

Do do do repetitive work, or any previous whiplash type of injury?
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Old 10-20-2011, 11:11 AM #3
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I know you are scared. I have never had the popping shoulder. But everything else. My guess is you have a weak tricep and serratus anterior on that side. But I recently went to a physical therapy class that address that issue and many more. Are you in the States? If so, please look into Postural Restoration Physical Therapy. They really do have a thumb-hold on all these problems.
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Old 10-20-2011, 11:51 AM #4
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Thanks for the replies, guys. I really appreciate it.

No, I haven't had an MRI of those areas. I have had an X-ray of the ribcage area, which was normal with some arthritis. I've had mild whiplash, and I'm on the computer for hours at time with work...the problem started with my hands, and it just seems to be getting worse. I'm baffled.
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Old 10-20-2011, 11:55 AM #5
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concolour took the words out of my mouth

you really need to pay attn to this, dont make it worse!
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Old 10-20-2011, 11:56 AM #6
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are you hypermobile? like ehlers danlos syndrome?

i gave myself whiplash too! it sucks. it's even worse tho if you have shoulder issues. you need to find a good pt. dont do resistance band exercises
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Old 10-20-2011, 12:22 PM #7
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Also check your posture in a mirror, head forward/shoulders rolled or hunched forward?
some pics & simple things to try on my album page -
http://neurotalk.psychcentral.com/album.php?albumid=422
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Old 10-20-2011, 01:01 PM #8
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I also concur with the others. I had an MRI (arms down) and it didn't show anything. However, I had an MRA soon thereafter where they had me in an arms up position and injected me with a dye. They were able to see the blockage in my subclavian artery. Please get an MRI/MRA and tell them what arm positions you have symptoms. This will not go away by itself.
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Old 10-20-2011, 02:49 PM #9
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Quote:
Originally Posted by Shadow1 View Post
I also concur with the others. I had an MRI (arms down) and it didn't show anything. However, I had an MRA soon thereafter where they had me in an arms up position and injected me with a dye. They were able to see the blockage in my subclavian artery. Please get an MRI/MRA and tell them what arm positions you have symptoms. This will not go away by itself.
Hi Vivi fruit,
Dobbler testing and angiogram picked up on my arterial/venous occlusions when arms raised and back or out to the side.
Vascular doc for these issues.
Best wishes and try as much as possible to relax your muscles with gentle stretching and meditation maybe?
Symptoms can very easily get the better of you and make you depressed so try and take back some control. EXAMPLE: tonight my ears ( pulsatile tinnitus) are driving me absolutely crazy!!!!!!! Such a loud pulsing sound.
So I'm gonna try to imagine that I can hear rhythmic waves crashing against the sands of a Maldivian island instead..... what else can you do????
KEEP STRONG! xxxxx
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Old 10-20-2011, 04:22 PM #10
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Feel for you. Been where you're at and fear the loss of use of my arms too. Best to find stretches and things which keep your symptoms in check. Best of luck.
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