What "set back" are you referring to regarding the botox injections? Simply that the symptoms return, or some additional problem that the botox creates?

Feldenkrais has been played a major role in my therapy. I don't think it will cure me, but it has given me much more function without flaring me. Feldenkrais Resources has excellent audios you can buy. They are expensive, but you can also share them through Dropbox with fellow sufferers. Before doing audios on your own, it helps to go to a few classes or receive some private lessons first so you have a better understanding of the Feldenkrais method.

If I feel I'm approaching a 7 or so in pain, I lie down and do an audio and I can bring the pain level down to a 3 or 4. Excellent therapy for mind, body and spirit.

has anyone else had their bp go up bc of the pain?

I've read that on some of the other forums .... blood pressure can increase due to pain levels.

Do you still work? And use that when flared at work or?

343: No, I can't work. I wasn't working when the injury happened either. It's not a RSI or trauma case. No one knows why I got TOS.

I do Feldenkrais every day and I do a lot of other audios as well. If I start to feel I'm seizing up and on the verge of a flare, I'll stop and take 30 min-1hr to run through an audio and/or do some light PT. I also do Mindful Based Stress Reduction, meditation and other modalities. These would be nice things for you to do at work during break, in the morning and evening.

Honestly, I don't think I'll ever be able to return to work in any capacity. I can no longer do most, if not all, of my hobbies. I've seen a few surgeons, one of which was Kelly's, and I have no intention of having surgery. My gut and statistics tell me I would fall in the loser group, and my problems now may look like no big deal.