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| Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie. |
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11-13-2011, 09:59 AM
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I'm not talking about people you've talked to, or met, through the Internet, just in everyday life.
I've had TOS for more than 30 years now and I haven't met anyone. Not one single person. No one I know has heard of anyone either. Except, my wife had a coworker whose mother has it, but I've never met her. That's it. That's the only person I've ever heard of. I guess I'm just wondering how common TOS is? |
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11-13-2011, 10:30 AM
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i feel it is very rare too.
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11-13-2011, 11:07 AM
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6 - two I met as I knew they had TOS. The other 4 were random.
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11-13-2011, 11:58 AM
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I have never met anyone with TOS before. Never heard of it until I was diagnosed.
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11-13-2011, 01:11 PM
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I have a business partner who is remote from me. We work from our respective homes. I was describing TOS to her which resulted in the discovery that she has TOS.
But I agree that it is fairly rare. Ancestors with a predisposition for compressed neuro-vascular structures probably did not fare well. Although I agree with Stoxen that it is also underdiagnosed in modern society. For example, my biz partner didn't even know she had it. When I went to the ER they didn't suggest or mention it. |
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11-13-2011, 01:45 PM
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Junior Member
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Never met anyone with TOS, and i had never heard of it until i stumbled upon it online.
__________________
"I can't tell you how it really is, i can only tell you how it feels like" |
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How many people have you met with TOS?
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