Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie.


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Old 01-22-2012, 04:06 PM #11
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That's exactly what I have also and I am afraid of surgery but I do not know what other options I have. I used to bench press and it has caused a lot of damage to my body. I am worried, depressed, and currently seeking the best qualified surgeon...
@ecstyle483, How are things going for you?
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Old 02-07-2012, 02:27 AM #12
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I am brand new to this forum. I just saw Dr Justin Brown at UCSD. He is a neurosurgeon on the TOS team. He is very likable and knowledgeable. He has recommended surgery for me unfortunately, as I failed PT. I have both neuro and vascular symptoms bilaterally. He is going to do a scalenectomy which does not involve any rib removal. Hopefully my recovery and complication rate will be lower than what I have been reading about in these threads.
When do you expect surgery? please let us how you're doing.
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Old 02-09-2012, 08:41 PM #13
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Also, interested in your recovery and adventure with Dr. Brown and UCSD's care


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When do you expect surgery? please let us how you're doing.
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Old 02-29-2012, 06:50 PM #14
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Any update? I'm very curious regarding scalenectomy only vs 1st rib resection. Dr. Gelabert @ UCLA is the only surgeon I've consulted so far.
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Old 03-01-2012, 01:14 AM #15
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Any update? I'm very curious regarding scalenectomy only vs 1st rib resection. Dr. Gelabert @ UCLA is the only surgeon I've consulted so far.
What are your symptoms and what did Dr. G recommend so far?
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Old 03-03-2012, 03:52 AM #16
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Has anyone visited this clinic in San Diego?

I currently live in Los Angeles and have been seeing various doctors at UCLA.
My TOS is getting worse and really need to get relief. I have tried physical therapy and all types of conservative treatment. MRI of the cervical spine is normal and there were no abnormalities with my chest Xray. I will be getting a scalene block soon to confirm TOS.

I am to the point where I want surgery. I am 28 years old but I have been suffering from this since I was 26, most likely due to weight lifting.

I know that there are injections and botox treatments but I am afraid as I have read stories of serious injuries.

*edit*

Back to my original question, has anyone tried attending "The UCSD Center for Thoracic Outlet Syndrome" or have heard any thing from this group?
I just read your post. I too have TOS and live in the L.A. area. Your story is just like mine. I did weight lifting, the repetitive movements did it for sure, thenI had a car accident, from that it's been downhill ever since. What did you end up doing? What DR.'s did you see here in L.A.? What horror stories did you hear about injections? They want to do more on me & I think I too need surgery. Please share with me! I hope you are better.
Thank you, Mitsy
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Old 03-03-2012, 03:53 AM #17
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Originally Posted by ecstyle483 View Post
Has anyone visited this clinic in San Diego?

I currently live in Los Angeles and have been seeing various doctors at UCLA.
My TOS is getting worse and really need to get relief. I have tried physical therapy and all types of conservative treatment. MRI of the cervical spine is normal and there were no abnormalities with my chest Xray. I will be getting a scalene block soon to confirm TOS.

I am to the point where I want surgery. I am 28 years old but I have been suffering from this since I was 26, most likely due to weight lifting.

I know that there are injections and botox treatments but I am afraid as I have read stories of serious injuries.

*edit*

Back to my original question, has anyone tried attending "The UCSD Center for Thoracic Outlet Syndrome" or have heard any thing from this group?
I just read your post. I too have TOS and live in the L.A. area. Your story is just like mine. I did weight lifting, the repetitive movements did it for sure, then I had a car accident, from that it's been downhill ever since. What did you end up doing? What DR.'s did you see here in L.A.? What horror stories did you hear about injections? They want to do more on me & I think I too need surgery. Please share with me! I hope you are better.
Thank you, Mitsy
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Old 03-03-2012, 03:56 AM #18
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What are your symptoms and what did Dr. G recommend so far?
I too have TOS and am trying so hard to find relief. Did you like DR. G? How did it work out for you? I am supposed to see him this next week. Any advice? I hope you are doing better!
Thank you, Mitsy
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Old 03-05-2012, 12:26 AM #19
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Overall he was good, although I've heard about people getting detailed TOS-specific ultrasounds (I think at John Hopkins) whereas he thinks the u/s is not so useful. I would have liked one.

He recommended me for PT and to also see a neurologist since I had some other symptoms, which turned out to be TMJD. Interestingly, my TMJD seems to be caused by chronic muscle tension which also seems to be the major contributor to my TOS. He didn't really catch onto that, but then most MD's don't really look at the whole body. We have to take some responsibility to gather this info from various specialists and piece it together into a coherent picture.

I only saw him the one time. I'm managing with PT, chiro and self care.

Do not underestimate Los Angeles traffic or the fact that you might get turned around, enter the wrong building, etc. I was way late for the appointment. He was nice about it, but I wish I had gotten there earlier.
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Old 03-05-2012, 01:43 AM #20
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What are your symptoms and what did Dr. G recommend so far?
Dr. G says physical examination and brachial MRI show evidence of vascular TOS while my symptoms could be neurogenic TOS but he wants to see the results of SSEP and scalene block before making a surgical recommendation. He referred me to a Dr. Fish at UCLA but I think I am going try and see Dr. Sheldon Jordan instead or in addition. I initially didn't want to pay Dr. Jordan out of pocket since he doesn't accept my insurance.
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