Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie.


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Old 12-21-2011, 02:27 AM #1
ecstyle483 ecstyle483 is offline
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Default The UCSD Center for Thoracic Outlet Syndrome

Has anyone visited this clinic in San Diego?

I currently live in Los Angeles and have been seeing various doctors at UCLA.
My TOS is getting worse and really need to get relief. I have tried physical therapy and all types of conservative treatment. MRI of the cervical spine is normal and there were no abnormalities with my chest Xray. I will be getting a scalene block soon to confirm TOS.

I am to the point where I want surgery. I am 28 years old but I have been suffering from this since I was 26, most likely due to weight lifting.

I know that there are injections and botox treatments but I am afraid as I have read stories of serious injuries.

*edit*

Back to my original question, has anyone tried attending "The UCSD Center for Thoracic Outlet Syndrome" or have heard any thing from this group?

Last edited by Koala77; 12-21-2011 at 04:11 AM. Reason: Link removed as per guidelines for new members.
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Old 12-21-2011, 05:52 PM #2
chroma chroma is offline
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I have not, but I'm curious if you have tried PT with Joyce Wilkinson in Santa Monica? Perhaps you have as it was a vascular MD at UCLA who recommended her.

Hopefully someone has experience with the UCSD group and will write back.
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Old 12-22-2011, 12:38 AM #3
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Have you backed off of, or stopped the weightlifting?
I don't know if you were lifting for bulking up or just as an overall fitness thing.

Hypertrophy of the muscles can crowd the spaces needed in the areas.
Imbalances with any muscle size increase can cause all sorts of problems too.
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Old 12-22-2011, 12:40 AM #4
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What type of exercices give you tos please ?
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Old 12-22-2011, 01:40 PM #5
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Quote:
Originally Posted by boytos View Post
What type of exercices give you tos please ?
Check out the pic of the football player from the back:
http://posturalrestoration.com/media...all_Player.pdf

Hypertrophied everything, especially traps, with rounded shoulders.
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Old 12-25-2011, 08:36 PM #6
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That's exactly what I have also and I am afraid of surgery but I do not know what other options I have. I used to bench press and it has caused a lot of damage to my body. I am worried, depressed, and currently seeking the best qualified surgeon...
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Old 12-25-2011, 10:01 PM #7
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I used to benchpress along with other strenous excercises and I am very sure that it has caused my TOS. I regret everything now and can only pray that I my symptoms will improve.
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Old 03-03-2012, 03:52 AM #8
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Quote:
Originally Posted by ecstyle483 View Post
Has anyone visited this clinic in San Diego?

I currently live in Los Angeles and have been seeing various doctors at UCLA.
My TOS is getting worse and really need to get relief. I have tried physical therapy and all types of conservative treatment. MRI of the cervical spine is normal and there were no abnormalities with my chest Xray. I will be getting a scalene block soon to confirm TOS.

I am to the point where I want surgery. I am 28 years old but I have been suffering from this since I was 26, most likely due to weight lifting.

I know that there are injections and botox treatments but I am afraid as I have read stories of serious injuries.

*edit*

Back to my original question, has anyone tried attending "The UCSD Center for Thoracic Outlet Syndrome" or have heard any thing from this group?
I just read your post. I too have TOS and live in the L.A. area. Your story is just like mine. I did weight lifting, the repetitive movements did it for sure, thenI had a car accident, from that it's been downhill ever since. What did you end up doing? What DR.'s did you see here in L.A.? What horror stories did you hear about injections? They want to do more on me & I think I too need surgery. Please share with me! I hope you are better.
Thank you, Mitsy
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Old 03-03-2012, 03:53 AM #9
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Default hi

Quote:
Originally Posted by ecstyle483 View Post
Has anyone visited this clinic in San Diego?

I currently live in Los Angeles and have been seeing various doctors at UCLA.
My TOS is getting worse and really need to get relief. I have tried physical therapy and all types of conservative treatment. MRI of the cervical spine is normal and there were no abnormalities with my chest Xray. I will be getting a scalene block soon to confirm TOS.

I am to the point where I want surgery. I am 28 years old but I have been suffering from this since I was 26, most likely due to weight lifting.

I know that there are injections and botox treatments but I am afraid as I have read stories of serious injuries.

*edit*

Back to my original question, has anyone tried attending "The UCSD Center for Thoracic Outlet Syndrome" or have heard any thing from this group?
I just read your post. I too have TOS and live in the L.A. area. Your story is just like mine. I did weight lifting, the repetitive movements did it for sure, then I had a car accident, from that it's been downhill ever since. What did you end up doing? What DR.'s did you see here in L.A.? What horror stories did you hear about injections? They want to do more on me & I think I too need surgery. Please share with me! I hope you are better.
Thank you, Mitsy
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Old 04-06-2012, 11:28 PM #10
Laur3d Laur3d is offline
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Default Ucsd

Hello, I am just now 4 weeks post op. I have venous TOS, and unfortunately was unaware until I had a blood clot and swollen, blue left arm. I live in San Diego, though and was rushed to UCSD Hillcrest hospital. They first went in with catheter, and then did perform first rib resection. I would highly recommend them.
Dr. Bandyk (vascular surgeon and professor of surgery) performed my surgery and I was very impressed with him as well. I would recommend setting up a consultation if you are able. I was in the hospital for a total of 7 days, including both procedures and surgery though. I ranked the ER, hospital, and staff (nurses and doctors alike) very high. Hope this helps.




Quote:
Originally Posted by ecstyle483 View Post
Has anyone visited this clinic in San Diego?

I currently live in Los Angeles and have been seeing various doctors at UCLA.
My TOS is getting worse and really need to get relief. I have tried physical therapy and all types of conservative treatment. MRI of the cervical spine is normal and there were no abnormalities with my chest Xray. I will be getting a scalene block soon to confirm TOS.

I am to the point where I want surgery. I am 28 years old but I have been suffering from this since I was 26, most likely due to weight lifting.

I know that there are injections and botox treatments but I am afraid as I have read stories of serious injuries.

*edit*

Back to my original question, has anyone tried attending "The UCSD Center for Thoracic Outlet Syndrome" or have heard any thing from this group?
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