Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie.


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Old 12-14-2011, 01:31 PM #1
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Default Post op update!!!!!

Well I'm 3 1/2 months post first rib excision........ make a long story short ( necessity due to newly increased pain.)
I've had a terrible relapse!!!!!!!
My shoulder/neck/arm feels alien to me, it has its own agenda.... to bring me pain.
I did a clean around the house at the weekend and I'm paying for it.
It feels like my muscles have ripped, I'm having sweats from the discomfort and back on meds. DAMN IT!!!
I actually feel worse than pre op and I'm kind of at the pain level of about 2 weeks post op.... VERY TENDER>>>>>>OUCH.
I've posponed my scheduled next op for the other side and seriously considering cancelling it altogether, that is if my vein is not too compressed. I'm due to see the surgeon again after the New Year for another consultation ( watch this space).
Has anyone else relapsed around this stage of post op??????
PLEASE BE WARNED...... Take extra care post op! Recovery for me anyway is ALOT longer than what was stated.
Best wishes to all
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Old 12-14-2011, 04:08 PM #2
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Yes, I started getting worse at nearly the same time. I had a very difficult 2 months following surgery. Then I had about 3 weeks where I was using less pain medication and feeling better. Then the window just seemed to close.

That was almost seven years ago. Since then I've gotten progressively worse. My life is infinitely smaller than it was pre-surgery. Knowing what I know now, I would never have decided to have surgery in the first place. I thought I was bad pre-surgery, but I really had no idea of what bad really meant.

I hope your set-back is just temporary. Pay attention to your body if it's telling you that house cleaning is too much.

Good luck,
Kelly
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Old 12-14-2011, 07:19 PM #3
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While this is annoying because I can't get much done, I do not house clean for more than 15 mins at one time. It's a rule. I use a timer and when the timer beeps, what's done is done and the rest will wait. I haven't even tried 2 X a day yet, although I think I'm ready for it (one morning session, one evening, 10-12 hours apart).

TOS is so weird. If I baby it, I can start to feel better, but a little overdoing and I get reminded that all is not right.

Interestingly, I can do therapeutic exercises from PT books or from my PT for an entire hour and be fine. It's the chaotic movements of housecleaning that exacerbate my symptoms.

Figure out what your limit is and respect it at all times. Increment it only when you have an explicit reason why you think you might be able to, like a lasting reduction in symptoms. Make the increments small.

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Old 12-15-2011, 09:23 AM #4
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Quote:
Originally Posted by kellysf View Post
Yes, I started getting worse at nearly the same time. I had a very difficult 2 months following surgery. Then I had about 3 weeks where I was using less pain medication and feeling better. Then the window just seemed to close.

That was almost seven years ago. Since then I've gotten progressively worse. My life is infinitely smaller than it was pre-surgery. Knowing what I know now, I would never have decided to have surgery in the first place. I thought I was bad pre-surgery, but I really had no idea of what bad really meant.

I hope your set-back is just temporary. Pay attention to your body if it's telling you that house cleaning is too much.

Good luck,
Kelly
Many thanks for your input....... It's not fun, is it!!!!!! Best wishes to you also. xxxx
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Old 12-15-2011, 09:28 AM #5
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Originally Posted by chroma View Post
While this is annoying because I can't get much done, I do not house clean for more than 15 mins at one time. It's a rule. I use a timer and when the timer beeps, what's done is done and the rest will wait. I haven't even tried 2 X a day yet, although I think I'm ready for it (one morning session, one evening, 10-12 hours apart).

TOS is so weird. If I baby it, I can start to feel better, but a little overdoing and I get reminded that all is not right.

Interestingly, I can do therapeutic exercises from PT books or from my PT for an entire hour and be fine. It's the chaotic movements of housecleaning that exacerbate my symptoms.

Figure out what your limit is and respect it at all times. Increment it only when you have an explicit reason why you think you might be able to, like a lasting reduction in symptoms. Make the increments small.

Thank you so much for your input and great tips....... timer, here I come!!!!
I must promise to myself to not do too much and limit my time on chores, no matter what.
It's a reminder that TOS is here to stay, op or no op!
Take care xxxx
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Old 12-15-2011, 12:45 PM #6
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Thank you so much for your input and great tips....... timer, here I come!!!!
I must promise to myself to not do too much and limit my time on chores, no matter what.
It's a reminder that TOS is here to stay, op or no op!
Take care xxxx
You're welcome.

My PT said that the way she looks at the surgery is that it helps patients manage their TOS better (increased blood flow, less crowding, etc.). They still have to take care of it and manage it.
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Old 12-15-2011, 02:41 PM #7
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My comment was directed as much to me as it was to you. I forget my limits, too, or just get mad that I have them. Sometimes when I feel the worst I am more inclined to power through the pain. I figure I feel awful anyway so I might as well get something accomplished.

Take care.
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Old 12-17-2011, 08:42 PM #8
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Originally Posted by kellysf View Post
My comment was directed as much to me as it was to you. I forget my limits, too, or just get mad that I have them. Sometimes when I feel the worst I am more inclined to power through the pain. I figure I feel awful anyway so I might as well get something accomplished.

Take care.
Well, my day of cleaning catch up took a WHOLE week to recovery or should I say improve from............. BLOODY TOS!!!!!! Baby steps I think next time.
BEST WISHES xx
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Old 12-17-2011, 09:10 PM #9
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Glad to hear you're feeling better!
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Old 12-19-2011, 03:17 AM #10
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Glad to hear you're feeling better!
BEST WISHES TO ALL OVER THE CHRISTMAS PERIOD........ TAKE IT EASY GUYS!!!!!!!!
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