Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie.


advertisement
Reply
 
Thread Tools Display Modes
Old 01-09-2012, 01:09 AM #1
revcowgirl revcowgirl is offline
Junior Member
 
Join Date: Jan 2012
Location: British Columbia, Canada
Posts: 6
10 yr Member
revcowgirl revcowgirl is offline
Junior Member
 
Join Date: Jan 2012
Location: British Columbia, Canada
Posts: 6
10 yr Member
Default Advise needed

Hello From Canada

I have TOS and will be getting my 1st rib resection done on friday. I am very nervous and don't really know what to expect. I live about 3 hrs away from the Hospital. If there is any information that anyone can give me that would be great. I do have a couple of questions.
1) How soon will I be up to go to the bathroom after surgery?
2) How long has most people been in the hospital after surgery?
revcowgirl is offline   Reply With QuoteReply With Quote

advertisement
Old 01-09-2012, 12:57 PM #2
brmr19 brmr19 is offline
Member
 
Join Date: Dec 2011
Location: cleveland ohio
Posts: 322
10 yr Member
brmr19 brmr19 is offline
Member
 
Join Date: Dec 2011
Location: cleveland ohio
Posts: 322
10 yr Member
Default

I had the surgery in Sept. 2011. I was up as soon as the meds wore off. I was in the hospital for 2 days because my doc said mine was a little more involved than he first anticipated. Take the pain meds. I hate taking meds but needed them for two weeks. I took prescribed amount for first week and then cut back. Good Luck, it is a slow recovery
brmr19 is offline   Reply With QuoteReply With Quote
Old 01-09-2012, 01:06 PM #3
Jomar's Avatar
Jomar Jomar is offline
Co-Administrator
Community Support Team
 
Join Date: Aug 2006
Posts: 27,687
15 yr Member
Jomar Jomar is offline
Co-Administrator
Community Support Team
Jomar's Avatar
 
Join Date: Aug 2006
Posts: 27,687
15 yr Member
Default

Here's a recent thread for another member that joined right before having surgery, the posts there should be helpful.
http://neurotalk.psychcentral.com/thread162291.html

What are your symptoms & avg pain levels?
How long have you had symptoms?

Hope we can be of help.

If you put surgery or surgery tips into the search tool - you'll get plenty of results -just search the TOS forum only & choose threads or posts for results -
http://neurotalk.psychcentral.com/search.php

Here's the main TOS page for all recent threads-
http://neurotalk.psychcentral.com/forum24.html
__________________
Search NT -
.
Jomar is offline   Reply With QuoteReply With Quote
Old 01-09-2012, 03:22 PM #4
tossucks tossucks is offline
Member
 
Join Date: Sep 2010
Posts: 129
10 yr Member
tossucks tossucks is offline
Member
 
Join Date: Sep 2010
Posts: 129
10 yr Member
Default

Quote:
Originally Posted by revcowgirl View Post
Hello From Canada

I have TOS and will be getting my 1st rib resection done on friday. I am very nervous and don't really know what to expect. I live about 3 hrs away from the Hospital. If there is any information that anyone can give me that would be great. I do have a couple of questions.
1) How soon will I be up to go to the bathroom after surgery?
2) How long has most people been in the hospital after surgery?
I tried to send you a message but am not able to with your settings.
tossucks is offline   Reply With QuoteReply With Quote
Old 01-09-2012, 09:21 PM #5
revcowgirl revcowgirl is offline
Junior Member
 
Join Date: Jan 2012
Location: British Columbia, Canada
Posts: 6
10 yr Member
revcowgirl revcowgirl is offline
Junior Member
 
Join Date: Jan 2012
Location: British Columbia, Canada
Posts: 6
10 yr Member
Default

I have pain in my neck, shoulder and down my arm. My hand swells and gets cold and burns. I have had these symptoms for a couple of years.
My pain levels is between 7-9 most days, They have put me on Morphine to give me some relief as we have tried different meds to no avail.

The doctor called me today and told me to come down on thursday as he wants to give me a stallate ganglion block and see if that will help, then depending on the result he may cut the nerve on Friday, when he is doing the rib resection.

If he ends up cutting the nerve will my recovery be even long?
What is your appetite like after the operation?
revcowgirl is offline   Reply With QuoteReply With Quote
Old 01-10-2012, 01:29 AM #6
Jomar's Avatar
Jomar Jomar is offline
Co-Administrator
Community Support Team
 
Join Date: Aug 2006
Posts: 27,687
15 yr Member
Jomar Jomar is offline
Co-Administrator
Community Support Team
Jomar's Avatar
 
Join Date: Aug 2006
Posts: 27,687
15 yr Member
Default

Is dr thinking you have RSD/CRPS also?
Has dr mentioned that at all?
Which type of TOS do you have? The Dr should have mentioned it ,esp. if blood flow is affected -
Vascular (arterial, venous), nerve , both

Have you had time to check out /verify the Dr/surgeon for skills & experience? Up to date on the newest techniques?
How many of these has been done by this surgeon? per year or ?

I wouldn't really want to have multiple things done during the surgery unless there is a very clear reason going in.
Just because he is in there
Once some things are cut ..no going back

I've read more about those stellate ganglion blocks on our CRPS/RSD forum -
http://neurotalk.psychcentral.com/forum21.html

Having a surgery with rsd already can cause it to spread, and special precautions need to be taken.
Info can be found on our rsd forum.

I really suggest a lot of reading on this forum and the rsd forum.
__________________
Search NT -
.
Jomar is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
olecyn (01-10-2012)
Old 01-10-2012, 09:46 AM #7
Anne4tos Anne4tos is offline
Member
 
Join Date: Aug 2010
Posts: 228
10 yr Member
Anne4tos Anne4tos is offline
Member
 
Join Date: Aug 2010
Posts: 228
10 yr Member
Default

Make VERY sure he/she is not suggesting a sympathectomy by "cutting the nerve."
Anne4tos is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Jomar (01-11-2012), MarcS (01-11-2012)
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Need Advise, please! poochie Multiple Sclerosis 9 06-16-2011 03:38 PM
Advise anyone .... I'm OVER IT!! Toni S Traumatic Brain Injury and Post Concussion Syndrome 4 09-27-2010 07:25 PM
My story and advise needed sugrkiss Myasthenia Gravis 13 09-14-2009 04:57 PM
need an advise saddyme Attention Deficit Disorder 4 06-26-2007 01:55 PM
traveling advise needed -- by car Abbie Reflex Sympathetic Dystrophy (RSD and CRPS) 5 01-05-2007 02:56 PM


All times are GMT -5. The time now is 02:15 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.