Hey I noticed you said you were living in Ireland also.
I was fortunate enough to find a physio who noticed an elevated first rib within a minute.
This was after I had spent a week in hospital under "the top neurology tem' apparently!! Since then I have kept returning to the same physio when my arm kept "going" i.e weakness coldness, discolouration, tingling, numbness and PAIN!!!!! Unfortunately he told me that he could do no more for me and I should be referred to a consultant.
Since then I have had the world of tests done and I am under a very good vascular surgeon in a DIFFERENT hospital..he cannot believe the lack of treatment I received in the first hospital,, and that i was not even referred to a vascular surgeon! He finally diagnosed me with TOS but he does not believe it is vascular,,which I find it very hard to get my head around.
Would love to hear your story., its great to talk to someone who KNOWS exactly how frustrating this is..
Laura

hi Laura

Sorry I have not been on this site in a while. Trying to ignore this awful condition and keep going. However this week has been very bad. I have been having blurred vision in my right eye intermitently. Driving me crazy and not sure if related to TOS.
Anyway what results did you get that prompted a visit to vascular surgeon. What treatment has he suggested. I have recently started physio ( 2 weeks) and not sure if this is exasperating thing or not(my own doctor seemed to think physio could make worse).
Would love to swap tips with you especially cause you are trying to navigate the great Irish medical maze like myself.
Look forward to hearing from you.
Marcia

I wonder if the vision problem might be due to trigger points?
Check this interactive/clickable chart to locate possible TrPs-
http://www.pressurepointer.com/pain_reference_chart.htm
http://www.pressurepointer.com/Users1.htm

A thumb, fingers or small firm ball against the floor or wall works wonders..

I still get very watery eyes when my muscles tighten up.