Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie.

 
 
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Old 02-17-2012, 05:17 AM #1
SD38 SD38 is offline
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Join Date: Sep 2011
Location: London (Greenwich) , UK
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10 yr Member
SD38 SD38 is offline
Member
 
Join Date: Sep 2011
Location: London (Greenwich) , UK
Posts: 313
10 yr Member
Default Almost 6 months post first rib resection

Almost 6 months post...................feel crap!
Whether its scar tissue formation or the fact that about 10 days ago I underwent some further EMG tests due my continual hand numbing at night, I don't know but OUCH!
I'm fed up with constant discomfort/pain but getting on with it. What else can I do?!
I HAVE LOST ALL FAITH IN, 'MEDICAL PROFESSIONALS'..... I use that term lightly.
I spoke to my vascular surgeon and asked them about the hand numbness at night and changes in hand temperature etc, he said that its more likely a nerve issue. Last week I asked the same question to the EMG tester who then replied, it is most probably a vascular issue!!!!!!!???????
Talk about fobbing me off!!! I GIVE UP ON LOOKING FOR ANSWERS
At least I can be thankful that my mind is in a good place ( I hope I can remain so).
I'm mentally strong and basically taking it on the chin!

What can you do?....... As Astern would say,
" It is what it is. " -------------I ABSOLUTELY LOVE THAT QUOTE!!!!!
I have always quoted it.......it says it all.
I just have to soldier on. In my case pre and post op, I have TOS.
I understand now that its my battle possibly for life.

I just have to learn the art of PACING myself more wisely. Do little and often. To try and keep the pace even on good days and bad.
The best thing I have done so far to help me mentally since the op has been attending a weekly CBT course, which really has helped me to remain focused on how to manage my pain levels.
It all comes down to routine, keeping a daily timetable in which you assign yourself tasks that includes daily chores ( not to push yourself to hard with......remember to " be kind " to your body) and most importantly to ensure that without fail a part of your daily routine includes something that benefits JUST YOU!!!!! Meditation, hot bath, basically anything that is uninterrupted " me time".
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