Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie.


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Old 01-30-2012, 09:30 AM #1
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Default thread where i talk to myself and complain

so my employer accidentally dropped me from my health ins at the end of last year and now, coincidentally, aetna is saying that are not going to pay for the remaining pt visits for that year, 6 total.

i am not *progressing* fast enough

which is stupid because

i have EHLERS DANLOS SYNDROME and my shoulders are winged!!!!!!!! that take 1-2 years to fix!!!!!!!!!!!!!!!!!!!!!!!
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Old 01-30-2012, 09:32 AM #2
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oh and my sex hormones are all low, i started taking some otc creams. i'm not sure if theyre doing anything but we'll see. sex hormones can contribute to pain
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Old 01-30-2012, 04:51 PM #3
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Also when I put my arm over my head it feels like my armpit is going to rip in half. Pt said its my lats being too tight
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Old 01-30-2012, 09:05 PM #4
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That all sounds Crappy!
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mspennyloafer (01-31-2012)
Old 01-31-2012, 01:52 AM #5
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#5 Lat Stretch:

http://www.drnickcampos.com/health-n...retchPain.html
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Old 01-31-2012, 11:40 AM #6
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Angry

damned if you have it, damned if you don't.
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Old 04-07-2013, 10:15 PM #7
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hope you're doing ok! ED can be crazy, I know a girl that can't even eat food because of it
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Old 04-10-2013, 12:12 PM #8
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jesus!!

i have to say tho im not surprised, people at work think im anorexic because i eat low carb and no sugar




http://www.youtube.com/watch?v=XLAOxIHK5ko

is a new nerve glide i found, i like it
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Old 06-04-2013, 09:37 AM #9
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so i said in another thread i finally got my serratus firing off. its a god send. the entire front and sides around my neck collarbone feel less stressed and sometimes at dare i say normal. i am stretching too, but being very cautious about it.


it feels like i have a corset on in the am which is ODD and then at night i feel loose. i have to set my right shoulder and i do that as much as possible. sometimes it sets itself which is what im hoping for permanently. my left shoulder is a little neglected, my levator gets knotty on that side every once n awhile.


bad news, hands are still numb, index finger the closer out to the tip it is the number it gets. if its really bad itll burn slightly. trying nerve glides every night, i am much better at them. i havent been to pt in six months and my shoulders ironically didnt get a lot better until i stopped going to pt and started going with my gut/dr. evan osar's cues. i def have/had pec minor syndrome and my ribs would elevate..so double crush or even triple crush at my worst

also TMI ive been having normal bowel movements for about six months too so magnesium absorption im sure is playing a part.

re: numb hands my pt said this "The numbness in your hands could just be from increased strain on the nervous system due to using your hands/arms too much, or lack of stability at the various joints they cross or from above." to me seems like a crock. i know people with eds who dislocate all the time (i dont even dislocate!!) and they do not have 24/7 numb hands.

looking into my elbows next i have fluid there and ganglions at the bicep tendon. i can't lift weights properly for my bicep. also they are a bit loose, if that's not it then im gong to assume i have nerve damage or something systemic like small fiber neuropathy. i have numb patches on the outside of right arm above the elbow into the bicep area



http://www.alignedandwell.com/katysays/hypermobility/

is a decent article about hypermobility, altho i dont like her smartass writing style or agree with everything she says
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Last edited by mspennyloafer; 06-04-2013 at 09:52 AM.
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Old 06-08-2013, 07:18 PM #10
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Started pinching the skin around my ear/jaw to improve circulation..its intense but needs it, very tight
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