[mspennyloafer]

so i personally wouldnt recommend ts ys or ws for tos. my pt gave me an exercise to do and its so easy that i KNOW i am using my levator. i think those exercises are overrated.

this is gonna sound crazy but i'm going to try soaking in some epsom salts and taking maybe grape seed extract every day and then doing some aerobic type exercise to bump up my circulationa AND scapular stabilization exercises. maybe like flood magnesium to my muscles.


i found a txt file of stretching exercises rec'd by sharon butler i might post later

2 weeks ago i couldn't get on all fours on the ground without feeling like i was going to fall over. now i can and i can slightly lift one arm

[mspennyloafer]

heres what pt wrote about my gait >_<

trendelenburg gait
sig knee valgus
pronatory gait
thoracic kyphosis/anterior head, l >r shoulder elevation

i need to read more about the "Serape effect"
•
Providing global stability but is integral to generating and transmitting functional mobility
–
Serape effect is described as the function of trunk muscles generating and transferring forces to the extremities
–
Combining all 3 planes of motion (power movements)
–
PNF patterns moving in functional combined planes

[mspennyloafer]

http://eeshop.unl.edu/text/mistrech.txt

good read

[mspennyloafer]

i'm stretching *shudder* the left side of my body VERY gently. my left-tspine is stuck so i stretch that a TINy bit and then if i get any weird sensations i stop. i think being low mg was giving me those firework type sensations. im still terrified of stretching tho

I highly recommend that you try stretching your armpits. Start by lying on
your back on the floor and extending both arms straight out to the side. If
this causes too much aching, prop your arms up on a folded towel, but keep
them straight out to the side. Remain in this position until all aching and
stretching sensations are gone. You might have to repeat this posture
several days in a row until all the sensations are gone. Once you have
achieved a
sensation-free state, then raise your arms a few inches toward your head.
Repeat the same waiting until all sensations are gone. Again, raise your
arms a bit higher and keep repeating this cycle until your arms are all the way
up next to your ears. Don't rush any part of these positions. It may take you
several weeks to get all the way to the top position, but your condition
will continue to improve as you do the exercise.

Also so get this, people with DYSAUTONOMIA can suffer from these symptoms

• subclavian steal syndrome
• coat hanger pain
• vasovagal syncope

sounds tosish no?

so ive suffered from ALL OF THESE and i believe my stress and bad posture is exacerbating it, coathanger pain describes me really well. i am going to try a drug called florinef to decrease salt wasting.


http://www.youtube.com/watch?v=OAkftY6BZS0

my eyes do that ^

more on coathanger pain
http://www.cfsnova.com/qnaCoatHanger.html

The sudden constricting of the muscles of the neck and shoulders and/or a lack of circulation through the area due to illness or muscle tension seem to fit many causes.

A sudden constriction could come from trauma of some kind including a fall or a car accident. If one is about to be hit, once often turns to let the back take the impact, protecting the front by tensing around it.

It could also come from a sudden overwhelming emotion such as fear, such as when hearing frightening news, or feeling "in trouble again," being yelled at.

If the tension in the area backs off some, but some remains, the constant presence of the tension could be a set-up for long term problems, and seemingly "sudden" flares later on.

spot on!

[mspennyloafer]

so for the first time EVER i felt my shoulder blades wrap around my ribcage correctly during an exercise (scap push up). before it would just irritate my upper trap/levator.. this was after stretching my lats and doing a lower trap strengthening exercise on the ropes. i'm trying not to get my hopes up.

[mspennyloafer]

i have GOOD health insurance and trying to get this covered is a NIGHTMARE.

i dont see how anyone does it. its ridiculous..paying this much for health insurance, being told youre covered 90 pt visits and then you arent

also i think some of this doctor/pt stuff regarding trigger points...are like full of it. i have huge trigger poitns (BIGASS knots) at the base of my head and a doctor and a pt did not feel them.

[mspennyloafer]

pm me if you'd like a bunch of nerve tension/glide pdfs (whole body) used by pts.

[Sheri_TOS]

Originally Posted by mspennyloafer

i have GOOD health insurance and trying to get this covered is a NIGHTMARE.

i dont see how anyone does it. its ridiculous..paying this much for health insurance, being told youre covered 90 pt visits and then you arent

I completely agree about the insurance hassle part. I think we have the same insurance company based on a prior post of yours. My plan covers 60 visits a year but I highly doubt they'd pay for 60 visits. Every visit of mine is subject to medical review which can only take place after the appointment has happened. And the review can take up to 30 days once they receive the additional data. You can rack up a lot of uncovered PT visits before you hear the verdict of the visits that they evaluated!!

[mspennyloafer]

yup exactly, it makes me ****** off. someone with ehlers danlos syndrome needs to be monitored more than a healthy person. the medical review process is a joke. i'd like to see how they review these things. try telling someone whose body is on fire to just wait thirty days between visits, lol.

i work at a well known hospital/university too. i cant imagine if i had self insurance, not through my employer, i wouldve gone to a bunch of crappy in network pts (not to say all in network pts are crappy but a lot of them are) and i wouldve run out of money and gone on disability.

its pretty frightening.

altho i have to say obsessively reading on the internet has helped me the most. that + taking certain things (not all things) from my pt.. such as not letting my head flop around.

[Sheri_TOS]

Originally Posted by mspennyloafer

i work at a well known hospital/university too. i cant imagine if i had self insurance, not through my employer, i wouldve gone to a bunch of crappy in network pts (not to say all in network pts are crappy but a lot of them are) and i wouldve run out of money and gone on disability.

I had personal health insurance for several years and would absolutely return to that insurance provider. I never had a problem getting PT covered and my bills were always promptly paid. Maybe it's changed in the two years since I had personal insurance policies. It took them 8 months to pay for my daughter's hospital stay when she was born . . .