Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie.


advertisement
Reply
 
Thread Tools Display Modes
Old 02-15-2012, 09:13 AM #1
hellothere hellothere is offline
Member
 
Join Date: Jun 2011
Posts: 157
10 yr Member
hellothere hellothere is offline
Member
 
Join Date: Jun 2011
Posts: 157
10 yr Member
Default TOS and travelling

I have boooked a trip all around europe later this year, going to be gone for like 6 weeks. Alot of planes rides alot of hiking ect..

And breaking out of my routine, . how do you think this will affect everything?

Anyone had any experince with this ?
hellothere is offline   Reply With QuoteReply With Quote

advertisement
Old 02-15-2012, 03:37 PM #2
kellysf kellysf is offline
Member
 
Join Date: Mar 2007
Posts: 282
15 yr Member
kellysf kellysf is offline
Member
 
Join Date: Mar 2007
Posts: 282
15 yr Member
Default

I went to Europe for 3 weeks a few years ago and it was the most miserable 3 weeks of my entire life.

I love travel (or should I say that I used to love travel before I got TOS). For me, too much walking really makes my symptoms worse. I had migraines and very high pain the entire time.

That said, I'm glad you're going. We can't let TOS take everything we love away.

I rented apartments rather than stay in hotels. That allowed me to be in another room if I had a migraine and my partner and child didn't have to tip toe around.

I love walking when I travel but I should have taken taxis and saved my walking for museums, sights, etc. Instead I took the subways and walked too much before I even reached my destinations. So spend that extra money on cabs to make it easier to get places. That way you won't be wiped out before you get to your desired spot.

And lastly, I really had to pace myself. The first day I was in London and Paris, I did too much and it ruined the rest of the time. I wish I had done less those first days in each city so I would have been functional the rest of the time.

Good luck. I hope you have a great time. It sounds like you can tolerate walking better than I can so hopefully none of my problems will befall you.

Kelly
kellysf is offline   Reply With QuoteReply With Quote
Old 02-15-2012, 06:12 PM #3
Anne4tos Anne4tos is offline
Member
 
Join Date: Aug 2010
Posts: 228
10 yr Member
Anne4tos Anne4tos is offline
Member
 
Join Date: Aug 2010
Posts: 228
10 yr Member
Default

I only travel to warm destinations now. I looked at Europe for this next summer and the multiple planes, trains and toting luggage here and there was not appealing to me. Opted for hot and humid Costa Rica instead.

Tips:

Check-in luggage, rolling bag is my only option. I only carry-on a teeny tiny purse, prescriptions and a Kindle. I refuse to go through the new x-ray machines which require you to hold your arms up. Even though I explain I have a disability, I get "the look" and a snark face every time by the TSA.

Aisle seat and/or window. If you don't take meds for your pain, a muscle relaxant may help for a long haul flight. A Flexeril helped me get to China. Drink lots of water and walk the plane frequently.

I bring all of my "tools." I have a collection of little balls, air pillows and a sawed off 3" roller which all fit in my suitcase. Rolled up hotel towels can work for rollers in a pinch. I do my exercise routine every morning and night while traveling. My immediate family understands this is my routine, but when I travel with others, I have to set my ground rules. Not looking forward to a trip to Vegas in a few weeks with my mom and sis -

Sleep medication, melatonin or other supplements may help you get in the time zone quicker and easier. Lack of sleep equals pain and you'll have more tolerance being well rested.

Pace yourself! If you have a busy active day, then enjoy a more relaxing one the next.

Lose yourself in the newness and fun of the destination. You may forget you have TOS for moments or even hours. Have a great time.
Anne4tos is offline   Reply With QuoteReply With Quote
Old 02-15-2012, 08:16 PM #4
hellothere hellothere is offline
Member
 
Join Date: Jun 2011
Posts: 157
10 yr Member
hellothere hellothere is offline
Member
 
Join Date: Jun 2011
Posts: 157
10 yr Member
Default

Quote:
Originally Posted by Anne4tos View Post
I only travel to warm destinations now. I looked at Europe for this next summer and the multiple planes, trains and toting luggage here and there was not appealing to me. Opted for hot and humid Costa Rica instead.

Tips:

Check-in luggage, rolling bag is my only option. I only carry-on a teeny tiny purse, prescriptions and a Kindle. I refuse to go through the new x-ray machines which require you to hold your arms up. Even though I explain I have a disability, I get "the look" and a snark face every time by the TSA.

Aisle seat and/or window. If you don't take meds for your pain, a muscle relaxant may help for a long haul flight. A Flexeril helped me get to China. Drink lots of water and walk the plane frequently.

I bring all of my "tools." I have a collection of little balls, air pillows and a sawed off 3" roller which all fit in my suitcase. Rolled up hotel towels can work for rollers in a pinch. I do my exercise routine every morning and night while traveling. My immediate family understands this is my routine, but when I travel with others, I have to set my ground rules. Not looking forward to a trip to Vegas in a few weeks with my mom and sis -

Sleep medication, melatonin or other supplements may help you get in the time zone quicker and easier. Lack of sleep equals pain and you'll have more tolerance being well rested.

Pace yourself! If you have a busy active day, then enjoy a more relaxing one the next.

Lose yourself in the newness and fun of the destination. You may forget you have TOS for moments or even hours. Have a great time.
My TOS defianetly doesnt sound as bad as yours, i can handling walking no problem, even running, even heavy weight lifting still. The pain is still ther but it comes and goes.. Jus seeing how i would go without getting all physio treatments ect.
hellothere is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Travelling with my SCS irljenn SCS & Pain Pumps 55 04-06-2012 01:00 AM
Travelling .. Saffy SCS & Pain Pumps 7 10-18-2011 02:36 AM
Travelling tomorrow Pamster Bipolar Disorder 8 08-13-2008 01:56 PM
Update on me/ back from travelling frogga Reflex Sympathetic Dystrophy (RSD and CRPS) 8 09-16-2007 12:30 PM


All times are GMT -5. The time now is 05:45 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.