Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie.


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Old 02-17-2012, 05:17 AM #1
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Default Almost 6 months post first rib resection

Almost 6 months post...................feel crap!
Whether its scar tissue formation or the fact that about 10 days ago I underwent some further EMG tests due my continual hand numbing at night, I don't know but OUCH!
I'm fed up with constant discomfort/pain but getting on with it. What else can I do?!
I HAVE LOST ALL FAITH IN, 'MEDICAL PROFESSIONALS'..... I use that term lightly.
I spoke to my vascular surgeon and asked them about the hand numbness at night and changes in hand temperature etc, he said that its more likely a nerve issue. Last week I asked the same question to the EMG tester who then replied, it is most probably a vascular issue!!!!!!!???????
Talk about fobbing me off!!! I GIVE UP ON LOOKING FOR ANSWERS
At least I can be thankful that my mind is in a good place ( I hope I can remain so).
I'm mentally strong and basically taking it on the chin!

What can you do?....... As Astern would say,
" It is what it is. " -------------I ABSOLUTELY LOVE THAT QUOTE!!!!!
I have always quoted it.......it says it all.
I just have to soldier on. In my case pre and post op, I have TOS.
I understand now that its my battle possibly for life.

I just have to learn the art of PACING myself more wisely. Do little and often. To try and keep the pace even on good days and bad.
The best thing I have done so far to help me mentally since the op has been attending a weekly CBT course, which really has helped me to remain focused on how to manage my pain levels.
It all comes down to routine, keeping a daily timetable in which you assign yourself tasks that includes daily chores ( not to push yourself to hard with......remember to " be kind " to your body) and most importantly to ensure that without fail a part of your daily routine includes something that benefits JUST YOU!!!!! Meditation, hot bath, basically anything that is uninterrupted " me time".
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Old 02-17-2012, 08:42 AM #2
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We are on the same timetable as far as our surgery. I am going through the same thing, where the doctors have no clue. I always say they call it "practicing medicine" because they have no clue and are just practicing on us. Recently the vascular surgeon said I would need the right side repaired probably within a year. If it is anything like the left side, I am not sure I want to have it done.
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Old 02-17-2012, 03:54 PM #3
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Similar timetable, similar lack of much improvement. But at least I'm not any worse and have found a great PT who is slowly but surely helping me get some semblance of range of motion back. The surgery sure isn't a magic pill, even for someone with vascular problems!
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Old 02-17-2012, 05:54 PM #4
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I got my range of motion back working with chiro who did ART on me, but is seems to tighten right back up after a week, especially the scm.
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Old 02-18-2012, 03:12 PM #5
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Quote:
Originally Posted by brmr19 View Post
We are on the same timetable as far as our surgery. I am going through the same thing, where the doctors have no clue. I always say they call it "practicing medicine" because they have no clue and are just practicing on us. Recently the vascular surgeon said I would need the right side repaired probably within a year. If it is anything like the left side, I am not sure I want to have it done.
I'm exactly the same brmr19. I was due to have the left side done for same procedure in Dec '11 but I have posponed it due to continuing post op discomfort and I really can't see myself opting to go ahead with it.
I think it will only happen if I have EXTREME issues with it.
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Old 02-18-2012, 05:23 PM #6
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I agree. I just want one doc to look me straight in the eye and tell me that they have no idea, and that I just have to deal with it. They will look at me funny, but are afraid to say the real outcome. I have spent years in law enforcement and can read peoples body language really well. I know they are not telling me everything they want to.
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SD38 (02-19-2012)
Old 02-19-2012, 12:43 AM #7
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Can you tell me who your surgeons were, please?
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