Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie.


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Old 02-22-2012, 01:14 AM #11
agabor agabor is offline
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Originally Posted by Limoges View Post
I am going to have a first rib resection done by Dr. Dean Donahue in several weeks. I have a congenital abnormality in my first rib. I've done a lot of research and am very confident about Dr. Donahue. He's smart, conservative in his approach, and gets rave reviews. Obviously I'm hoping for a good or at least "better" outcome for pain I've suffered for most of my adult life.

I guess I'm looking for encouragement!
My biggest tip: don't dance with your arms. EVER. or at least for a long time. Last night I did a team dance (I kinda had to, it was in front of all the varsity athletes, a charity event), but MAN am I feeling it now! Super tight neck muscles that are giving me sinus/tension headaches and a swelling feeling in the side of my head. I guess doing the Thriller dance was fitting - because I feel like a zombie now!

Other than that, I hope your operation goes well! Just don't push it too much in the beginning
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Old 03-04-2012, 09:31 AM #12
julidean julidean is offline
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I was thinking about seeing Dr. Donahue because i have heard good things about him. I live in New York and need a phenomenal surgeon. I am young like you, I'm 26, and i have strictly circulatory problems. Im in no pain and havent been diagnosed yet. Well the only pain im in is right sided neck and head pain. I haven't been diagned yet but im positive something is interfering with my circulation. It's consuming my life and thoughts.

I really need someone to talk to me who knows what im going through so we can help eachother amd get through this. I'm terrified ill drop dead from a stroke if i dont get this taken care of first but due to health insuramce I havent veen able to seek Dr Donahues assistance.

How is his outlook on arterial or vennous tos ? Positive and hopeful or negative ?? How fast was he able to determine where the compressiom was coming from and how many tests does he normally run? Is he positive where compression is or takes a guess ? I know if a surgeon knows exactly what is causing the compression than after surgery you would be cured. its when they aren't sure where it runs into a problem bc if they take out what is not causing the compressiom then you'll still have the issue.

THis is strictly arterial or venous tos I'm speaking of. Did he mention risk of stroke and if its likely , even in the worst of cases ? I know nothing about this. I know you'll b just fine after surgery
Hi there,
If you have venous tos, your recovery after surgery is highly successful. When the nerves are involved, it can be a bit longer and more complicated. Hopefully you can work it out so you can see him.
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Old 03-07-2012, 03:29 AM #13
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Default Issues post op.....circulation still not great!

Pretty concerned but don't want further surgery!
I'm 6 months post first rib resection and have begun to experience issues with my arm/hand on OPERATED side, it still fatigues very quickly. Even though my vein and artery have been released from the first rib I think that they have not been through enough in their investigations and feel that they have missed part of the compression ?????? My pec is very troublesome and when my arms are stretched out above or in front of me and across my body my hands are going pale very quickly!!
I'm VERY confused as to what I should do. I still have issues with my left side too BUT really don't want to be touched again..... I have lost all faith in medical intervention, it hasn't helped me and I don't want to go down the road of being dependent on meds.
I'm working hard on doing things as holistically and gently as possible.
The only time I get cut again is if its a there and then life or death situation.
Damn I'm confused!
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Old 03-07-2012, 02:59 PM #14
chroma chroma is offline
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Pretty concerned but don't want further surgery!
I'm 6 months post first rib resection and have begun to experience issues with my arm/hand on OPERATED side, it still fatigues very quickly. Even though my vein and artery have been released from the first rib I think that they have not been through enough in their investigations and feel that they have missed part of the compression ?????? ...
The only time I get cut again is if its a there and then life or death situation.
Damn I'm confused!
If they missed part of the compression then things for you to investigate include at least:

-- pec minor syndrome

-- droopy shoulder syndrome

I have the pec minor problem. It is not enough for me to stretch the scalenes and shove my rib down. I must also stretch the pec minor every day or my circulation will get backed up into my pec.

Good luck!
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Old 11-16-2012, 10:07 AM #15
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Originally Posted by Limoges View Post
I am going to have a first rib resection done by Dr. Dean Donahue in several weeks. I have a congenital abnormality in my first rib. I've done a lot of research and am very confident about Dr. Donahue. He's smart, conservative in his approach, and gets rave reviews. Obviously I'm hoping for a good or at least "better" outcome for pain I've suffered for most of my adult life.

I guess I'm looking for encouragement!
Hi, I am curious the outcome of your first rib-resection with Dr Donahue, I am waiting to get a second opinion from him and considering travelling from florida to have the surgery. Any help would be much appreciated. do you have venous tos? thanks!
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"Thanks for this!" says:
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Old 11-17-2012, 02:42 AM #16
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had a rib resection this year what can i say i am way worse today then i have ever been the doc removed the wrong rib ended up getting rsd and because i am on worksafe i cannot sue the doctor for removing the wrong parts , hope yours is better i have nothing left to give or say except good bye and see you on the other side
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Old 08-17-2018, 02:15 AM #17
HayleyJo HayleyJo is offline
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Default 3 weeks post op first rib re-section transacillary

I am 3 weeks post op, still very sore but noticed a massive difference in my symptoms. I was operated on by an amazing vascular surgeon Dr Angus Rude in Morriston hospital Swansea. This surgery was done on MHS yet Dr Ruddle provided his own mobile telephone number so I could text him at any time with concerns. I have seen a definite improvement as I say, the constant pain I had in my arm (like hitting my funny bone) has eased, I don’t have the tense muscular pain in my neck (like elastic bands on full stretch) that I was experiencing and I have more movement in my arm and shoulder. It had been remarkable. I am however still experiencing pec pain and stabbing behind my shoulder blade. Dr Ruddle used transaxillary approach which seems to have better outcomes for patients. He was the only surgeon in my locality who could perform the surgery using this approach. I had two surgeries cancelled and then had to wait four months as he went on sick leave for him to come back to perform the procedure but I am so glad I did. I’m still on pain medications but 6 week post op I am hoping to be able to reduce these. I will have s follow up, de Ruddles advice was of it hurts don’t do it but other than that try to lead a normal life.
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Old 08-22-2018, 12:19 PM #18
lookingfortoshelp lookingfortoshelp is offline
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Originally Posted by HayleyJo View Post
I am 3 weeks post op, still very sore but noticed a massive difference in my symptoms. I was operated on by an amazing vascular surgeon Dr Angus Rude in Morriston hospital Swansea. This surgery was done on MHS yet Dr Ruddle provided his own mobile telephone number so I could text him at any time with concerns. I have seen a definite improvement as I say, the constant pain I had in my arm (like hitting my funny bone) has eased, I don’t have the tense muscular pain in my neck (like elastic bands on full stretch) that I was experiencing and I have more movement in my arm and shoulder. It had been remarkable. I am however still experiencing pec pain and stabbing behind my shoulder blade. Dr Ruddle used transaxillary approach which seems to have better outcomes for patients. He was the only surgeon in my locality who could perform the surgery using this approach. I had two surgeries cancelled and then had to wait four months as he went on sick leave for him to come back to perform the procedure but I am so glad I did. I’m still on pain medications but 6 week post op I am hoping to be able to reduce these. I will have s follow up, de Ruddles advice was of it hurts don’t do it but other than that try to lead a normal life.
Glad to hear you are feeling relief and recovery well thus far. Thank you for sharing your story. I am trying to
Find out if anyone has had success on Toronto
With neurogenic surgery, physio, Chrio, massage abs or with an experienced sports medicine specialist In Tos. If so if they can share results and specialist Names would be great to hear.
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