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Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie. |
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04-07-2013, 06:24 PM | #1 | ||
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I hope that you are doing well and I'd like to thank you for your contributions to this website. I was hoping that you would be open to speaking with me about TOS and different experiences and doctors in OC/LA. It is difficult for me to type much so I would love to get on the phone with you. If that's okay, shoot me an e-mail **** Thanks, Colin Last edited by mrsD; 04-07-2013 at 06:42 PM. Reason: removing link for newbie ..re: guidelines of NT |
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03-05-2012, 12:47 PM | #2 | ||
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03-05-2012, 01:29 PM | #3 | |||
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"Thanks for this!" says: | chroma (03-05-2012) |
03-04-2012, 01:45 PM | #4 | ||
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I wanted to welcome you to Neuro Talk. This site should help you while you address all the issues pertaining to TOS. I have major cervical issues myself, so I do understand the suffering you are going through. There will be others that have the condition, who can address some of your issues. I hope that while you seach for answers, that you keep track of all this that you've gone through in writing. No matter who you see, they will appreciate the effort you took to document your case. I hope a permanent solution can be found for you, where you have a better quality of life. Again, I am glad you found Neuro Talk, this site has helped me to cope better with all my medical conditions. You will make a few friends along the way. take care, ginnie
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"Thanks for this!" says: | nospam (07-11-2012) |
03-04-2012, 07:13 PM | #5 | ||
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In Remembrance
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I have posted here since approx. 2004-
I have neurogenic vascular TOS, which then prompted RSD, bedridden, Right sided surgery after long attempts to get work comp hearings, but surgery in Denver (flew myself out first after denial from work comp and got two great reports that I needed surgery.) My doc for surgery was Dr. Annest. He was very professional and competent, and honest - he said he may only get 10% better due to long wait for surgery. But what happened was the TOS slowed down extremely, and then, the RSD left for an entire year. I believe there is a very big difference between men and women in surgery outcomes, how they got TOS and how the TOS reacts.[/U] TOS has many flavors - try the advanced search for threads on many symptoms, or main 5 symptoms. My TOS testing thread is complete and tells you all I know about TOS. Now I fight after work comp judgment - you must not quit or give in. See as many free consults as possible. I will never work again. I am lucky to have nurses, stable mate, good doctors...I can't write to everyone - I'll hurt for weeks. But my love and prayers go to all. |
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"Thanks for this!" says: | ginnie (07-11-2012) |
03-06-2012, 01:35 AM | #6 | |||
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I went 5-6 days with only 2-3 hours of sleep per night last week. I finally slept 6 hours last night. I believe the trigger point injections, an increase in Pamelor to 20mg, Norco 5/325, and Mobic combined gave me enough pain relief to sleep. I believe Pamelor has provided the same relief I use to get from Cymbalta (had to stop because of tachacardia) with no noticeable side effects. The symptoms on my left side are getting worse as my hand went into some wierd spasms trying to type this morning. I've also noticed a loss of dexterity when I hold a phone without even raising my arm. I'm beginning to believe that surgery is imminent. I'm hoping to get some definitive details from the ultrasound with Dr. Ahn tomorrow. I'm really looking forward to it. |
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03-06-2012, 07:26 PM | #7 | ||
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Dr. Ahn is a butcher and should be avoided at all costs. Of course that is just my personal opinion based on a friends decompression surgery from him, which had to be corrected by another surgeon later on.
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03-06-2012, 07:41 PM | #8 | |||
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All the complaints on here about Ahn seem to be secondhand, or trolls who post a negative comment and are never heard from again. Do you know of anyone here that has posted about a negative outcome with him firsthand? No surgeon in this world has a 100% success rate. There is a chance that my surgery won't be a success no matter who it is with. I am sorry for your friend, but I think Ahn has proven his competence with TOS. Thanks for the heads up, I will continue to research. |
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03-06-2012, 07:31 PM | #9 | |||
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I saw Dr. Ahn today.
After a review of my history and a brief physical exam, he believes this is TOS. After just a few minutes with him I felt that he is ahead of the curve vs. the other surgeons in this area. Here is why:
My angiogram is scheduled for 4 weeks from now (hopefully, earlier if there is a cancellation). My pain is no different, but I feel better about my outlook and that has helped me feel better overall. If you are on the fence about Dr. Ahn or are even pursuing conservative treatment options, I highly recommend you consult Dr. Ahn. I am convinced that everyone should have the fluoroscopic balloon angioplasty before going into surgery with any surgeon. Ahn's bedside manner may be relatively cold and clinical, but he sure seems to know what he is doing. On a side note, UCLA still hasn't gotten back to me regarding the tests and follow up Gelabert ordered. |
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03-15-2012, 04:10 PM | #10 | |||
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I have eliminated Dr. Ahn from consideration. Drs. Gelabart, Angle, and Fujitani remain. I'm very disappointed that UCLA still hasn't scheduled me for the tests and follow-ups Gelabert ordered even though I've been reaching out to them to inquire of the status. What a slow moving machine!
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Marc . ACDF C5-C6-C7 2/28/11 . . . . |
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