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Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie. |
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12-29-2012, 02:07 AM | #1 | |||
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How are you doing?
Just read through ALL your journeys, advice and the sharing. Thank God for people like you...perfect example of how I found my docs and referrals for correct medical help. Ur story is parallel to mine seeing multiple docs before Dr Williams, the lack of return calls from other docs, the ER room, etc..He can diagnose but his protocol and lack of patient care is sad. Yes, Dr Ahn needs 50 lashings for his approach, surgical malfunctions and lack f honesty. However, we dont hear of the patient's who have been a success with him do we? Dr Gelabert, Jordan and even Justin Brown are educated TOS professionals for sure. Ando and Aston had a lot to learn about TOS when we connected and boy did Art learn quickly. Keep me posted on your recovery and life with TOS. It is an unforgiving condition. And when someone like yourself shares their story it makes life so much easier for others
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Cyndy . color="Black">Slowly I turn, step by step, inch by inch *The 3 Stooges . |
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04-30-2013, 05:46 PM | #2 | ||
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I am 3 weeks post op from a first rib resection and doing great!! I am having "normal" post op pain, but already feeling so much better!!
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09-15-2016, 12:22 AM | #3 | |||
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It's been a long time since I checked in on this board. As time has passed my symptoms attributed to TOS have faded away.
I have continued to suffer from pain from fibromyalgia and the cervical & lumbar spine. About a year ago my fibromyalgia symptoms worsened. I was suffering from stiff-leg syndrome. When I woke at night or the morning my legs were so tight I could barely walk and couldn't go down the stairs until I loosened up (hot showers did the trick). They maxed me out on Mirapex which helped me sleep. I hadn't realized a had stopped dreaming. It was a sign I wasn't getting REM sleep. Sleep help has made a huge difference for me. The biggest difference for me has been an experimental treatment, Ketamine Infusions. They have not only helped my muscle tension & spasms, my mood has improved, and my neck & low back pain is down to a 3 from a 7 six months ago. The infusions are administered by Interventional Anesthesia/Pain Management. UCLA is the leader in this research as far as I know. While I am technically a chronic pain patient and not a TOS patient anymore, this group is my home. This outlet helped me cope, and has helped others. I believe stories can have happy endings. I am no longer an engineer but I have an amazing 3-year-old boy and wife who stuck with me through it all. I am finally feeling good enough to return to work part-time. Today was my first day back to work. It's just part time, but its a start. Thanks to all who encouraged me and to everyone out there… keep fighting, never give up!
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Marc . ACDF C5-C6-C7 2/28/11 . . . . |
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