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05-11-2013, 03:23 PM | #291 | |||
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I have tapered down to 2.5 mg of Percocet 3/day and hope to be off of it soon (I had withdrawl symptoms last time I titrated off too quickly). I am still dependent on Valium to keep my SCM tension and occipital headaches under control.
I'm confident that the majority of my remaining post-surgical pain is rotator cuff: AC joint bursitis & supraspinatus tendinitis (icing and ultrasound/TENS combo have helped greatly). I hope to get AC joint cortisone injections for the bursitis/tendinitis next week. I am scheduled for Botox in two weeks: occipital headache protocol plus SCM dystonia protocol (not EMG-guided). If the Botox doesn't work, I may be looking at being on Valium indefinitely.
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Marc . ACDF C5-C6-C7 2/28/11 . . . . |
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"Thanks for this!" says: | mspennyloafer (05-25-2013) |
05-13-2013, 07:45 PM | #292 | ||
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Oh wow I have missed so much going on with the forum and your thread Marc! I had no idea you went back for surgery. I hope you are doing well and this works this time around I really really do, you have always been an inspiration to me.
I am about to update my own thread, it looks like more surgery is in the near future for me as well, and there is a good chance I will be coming to your area as I want to meet with Dr. Angle. I hope you don't have to be on Valium indefinitely, that is what I've been told too since my first surgery and when I tried to get off that and Norco I had insane withdrawal symptoms. Also, Are you sure your other symptoms are AC joint bursitis? My newest physiatrist believed I have the same issue and gave me 4 cortisone injections on each shoulder and they made all of my symptoms much worse...please tread carefully! What made you decide to go with Botox for the occipital neuralgia? Quote:
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05-13-2013, 08:14 PM | #293 | |||
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Botox seems to be the only option left to treat these SCM spasms. I've seen several Neurologists and a Physiatrist. I even saw a neuro that specializes in movement disorders and EMG-guided botox and he didn't accept me as a patient, said I need Botox but not EMG guided (that my problem was myofacial and not spasmodic torticollis/cervical dystonia). Some have hypothesized that I've developed a fibromyalgia type of hypersensitivity in the neck due to all that I have been through. Dr. Angle is going to check around to see if there is someone in his network that may be able to help me.
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Marc . ACDF C5-C6-C7 2/28/11 . . . . |
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05-14-2013, 08:59 PM | #294 | ||
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Anyway I am updating on your thread sorry lol! But seriously the SCM spasms and bursitis are the main issues for me as well and they actually got way worse AFTER surgery. I hope the botox and injections help, keep us posted! I may consider botox as well, I really did not want to go back for more surgery but I might not be able to avoid it. |
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05-15-2013, 05:08 PM | #295 | |||
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My Family Doctor (also Sports Medicine) is on vacation this week. The PA gave me two trigger point injections on each side yesterday and my shoulders are feeling better. I will likely be returning next week for the AC joint injection as I still feel a lot of friction deep in the joint. Botox is scheduled for Tuesday and I hope it all does the trick.
I'm diagnosing myself with Chronic Myofacial Pain Syndrome which is like Fibromyalgia but not (google it).
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Marc . ACDF C5-C6-C7 2/28/11 . . . . |
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05-15-2013, 05:14 PM | #296 | |||
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I saw Coleen today and I was very impressed by her approach. My main problems are in my SCMs. She started in my lower body and identified all of the misalignments caused by years of chronic pain. She didn't touch the neck until the very end after really working my shoulders. I am going to be reducing the number of PT sessions and doing more massage therapy (Coleen & Melissa Ricker) and Pilates. I start back on Pilates Friday.
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Marc . ACDF C5-C6-C7 2/28/11 . . . . |
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"Thanks for this!" says: | chroma (05-15-2013), Woodstock3 (05-16-2013) |
05-19-2013, 05:07 AM | #297 | ||
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05-25-2013, 08:14 AM | #298 | |||
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My scm is my enemy. I know it's the reason why I love my neck brace
It can cause a lot of BIZARRE sx I think I have tendinitis too but in my bicep and then inside of my forearm???? Can tendinitis make your whole arm feel boggy? The Neck hypersensitivity fibro describes me
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05-28-2013, 07:42 PM | #299 | |||
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I've been battling a sinus infection for the last 10 days (on antibiotics for 5 days). I feel like the Botox has kicked in but not sure if the headache is completely gone since I have the sinus headaches.
Therapy has been focussing on the shoulders and neck. The AC joint cortisone injection made a big difference. I am completely off of Valium and Percocet and hope to stay this way.
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Marc . ACDF C5-C6-C7 2/28/11 . . . . |
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05-30-2013, 03:58 PM | #300 | ||
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Parbie -6/20/14 Seroma Drainage Right Side -7/18/13 Re-do of Right sided Supraclavicular Thoracic Outlet Decompression by Resection of Cervical Rib, First Rib, and Neurolysis -8/30/12 Unsuccessful Right sided Supraclavicular Thoracic Outlet Decompression via Scalenectomy, Brachial Plexus and C2 through T1 Neurolysis, Resection of fibrous band attachment to Cervical Rib and Pectoralis Minor Tenetomy |
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