Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie.


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Old 09-15-2016, 12:26 AM #1
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Originally Posted by thortime View Post
Hi Marc, thank you so much for sharing your story... I had a few questions and would love to hear your thoughts:

-You mentioned that you originally tested positive for venous tos. Which test confirmed that? My doctor wants me to have a venogram and IVUS, but since they're both invasive, it makes me nervous.

-Clinically, it seems pretty clear that I have venous tos. I feel like the venogram and IVUS would simply confirm the clinical exams. Do you think that it's necessary?

Hope everything is continuing to get better and better for you.
I'm sure you have found more answers by know, but I had a MRI w/contrast (MRA) with arms raised. This showed occlussion of the subclavian veins.
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Old 09-17-2016, 08:22 PM #2
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Hey Marc...good to hear from you. Glad you have found some relief... I have been good but wondering if this is not acting up again. Dr Angle moved to Bay area so no one hear in Oc unless you know of someone. USC actually started the ketamine infusions with Dr Richeimer. He is amazing. Happy that you are doing better.
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Old 09-20-2016, 04:41 AM #3
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I'm sure you have found more answers by know, but I had a MRI w/contrast (MRA) with arms raised. This showed occlussion of the subclavian veins.
You know, maybe you don't have TRUE VENOUS TOS and that COULD be why your surgery went well. Not to say you don't have TOS because I dunno your medical history. But based on that comment alone. Dr. Thompson at Barnes Jewish who is supposedly a champion here will reject it. I've met with him 2 times and He said, everyone has some what of a compression when you raise you arm. that is the reason why we cant raise our arms for a very long time like we do when we stand with our legs without thye arms being tired and the lack of circulation will cause you to put it down. MRA with hands up is not gold standard he does not order it to diagnose only order MRA for redo for liability. If you talk purely venous TOS a good indication would be DVT, collateral veins or extra ribs pressing on all 3; veins, artery and nerves. I like success stories but I also wanna hear more cases on Dr. Ankles. and more severed cases such as DVT or large collateral vein or having to remove both ribs.
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