http://surgery.wustl.edu/TOS_Consortium.aspx

Check out this website for more listing. These are the most well known dr's in the TOS consortium. If you dont want to travel-call a few to see if they can recommend someone in your area. I have another source I will check for you later when I have some more time.

That's a great list, thanks for posting it!

Thank you so much--appreciate your time and help!

are all of these online?

Youre welcome and Good luck! I saw 4 different TOS doctors before I settled on one and and I havent even started with Surgeons yet.I've also done a ton of research so I will look for someone in your area.

Im new to this so I hope what I have to say will inspire you to see another doctor on your long list. My husband just turned 50 and has always been active. For the last 5 years he has had headaches, numbness in both arms and fingers. 1 year ago he was in the ER for what was diagnosed as pneumonia. He got better and then bad again. Another ER visit and he had bi lateral multi pulmanary emboli ( blood clots), in both lungs.

I will keep it brief, but through having to take coumadin a blood thinner multi[ple test and doctors we just today have a solution to where the clots came from. We went to see a Vascular Surgeon whom ran several tests including an outpatient procedure today called a veinography. It was worth its weight in gold.

they put catheters in the right leg and in the arm and ran dye through it. There it was a .large vein going through the clavical and rib. the doctor is 90% positive this is where they originated from and went to the lungs.
My husband has had carpil tunnel surgery and elbow surgeries and nothing has solved it. The doctor in convinced this is his problem. So through all the EMG's, CT Scans and Ultra sounds nothing prooved positive until this test.
Yes, they sedate you to twighlight, but there is no pain during and you can even talk, (or at least my husband could). The procedure took an 1 hour and he walked out of the hospital. The pain afterward is minimal not even a Tylenol. I can certainly feel what your going through and sympathize greatly for your pain. Perhaps, it might be worth seeing a Vascular/Endovascular surgeon like we did.

We were lucky that my husband made it through the clots without stroke or heart attack. He has all the symptoms you are talking about including when the check his pulse with his arms up it becomes vertually non exsistant. Numbness in arms, tingling, back pain, left hip pain, no grip and even a slight tremor. doc said that if my husbands wasnt so severe causing the vein to be restricted and 2 hospitalizations, PT might have worked. From what I have been reading online it sounds as though your symptoms are getting worse, or traveling further.
I hope that our experience has been helpful and I wish you luck and a quick recovery

You can buy them online. They are books and DVDs. The cost is close to $0 compared to a single session of PT or chiro, and way cheap for the information and benefits therein.