Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie.


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Old 04-29-2012, 10:13 PM #1
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Originally Posted by Jo*mar View Post
What is the name of the hospital where you got the staph infection? Just curious, only if you feel comfortable posting it.
I think the hospital staff is in charge of preparation/cleaning /sterile equipment.
But it could be a combination of Dr, staff or something else...for that to happen.
Did they investigate how it happened?
Hospitals are one of the most likely places to get staph. That's common knowledge I thought.
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Old 05-26-2013, 06:10 PM #2
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Help the one exercise give post op

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Originally Posted by Limoges View Post
Hospitals are one of the most likely places to get staph. That's common knowledge I thought.
Hi Limoges,

I was wondering. Dr. Donahue told me there would be one exercise he wanted me to do for one year, 365 days. Otherwise he's not (paraphrasing) that keen on PT. Can you share with me the exercise he gave you.
Thanking you in advance, I remain.

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Old 04-30-2012, 12:56 AM #3
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Dr. Filler is affiliated with 1 hospital :
Brotman Med Ctr, Culver City, Ca
http://www.vitals.com/doctors/Dr_Aaron_Filler
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Old 04-30-2012, 07:14 AM #4
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Hospitals are one of the dirtiest places around! ICK! those little sticky germs spread and hang onto every tiny corner. MDs ties are the worst offenders. They never wash those things, and I think they should be banned. Those curtains between the beds are another. Staph is a very hard to kill bacteria.

Folks used to be very worried about a drop of AIDS infected blood, but if you put one drop of Aids blood, next to a drop of Hep B blood and checked them out. The minute the Aids blood is cool, its dead. 2 weeks later you can come back and still find life in that Hep B droplet. Scary! You MUST be PRO active in a hospital. DEMAND that anyone who come near you wash their hands first. Put your own BP machine in your room, and dont share. Keep your own hands really clean and NEVER touch your face unless you are washing it. With so many rapid fire patients going from ER to OR its amazing we dont have more sick folks.

Im sorry you got sick. I hope they find a way to make it better, quick.
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Old 04-29-2012, 06:20 PM #5
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Originally Posted by Brachial6 View Post
Beware of Dr. Aaron Filler! I got a staph infection from the operating room when he did surgery on me to remove scar tissue! This left me worse off than I started out to be as a result he wanted me to get a pain pump! I have lived on pain medications without a pain pump since I had the nightmare surgery at Dr. Filler's hands all a result of a work injury!
I have been told by other dr's to stay away from him too and there are other warnings on this site too. . In addition he is way more expensive for procedures(3x more) than mine and mine is not cheap. In fairness , I saw him and liked him, and he felt thourough but there was something fishy about the sales pitch and the operating room downstairs .there were also too many bad reviews on all the sites My current dr. told me there is a reason he is no longer practicing at UCLA.My doc also says US is better than the MR machine for the injections because it is a live picture
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Old 10-27-2015, 06:43 PM #6
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Default Dr. Aaron Filler sucks! My body is now a torture chamber thanks to him!

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Originally Posted by Brachial6 View Post
Beware of Dr. Aaron Filler! I got a staph infection from the operating room when he did surgery on me to remove scar tissue! This left me worse off than I started out to be as a result he wanted me to get a pain pump! I have lived on pain medications without a pain pump since I had the nightmare surgery at Dr. Filler's hands all a result of a work injury!
Dr. Aaron Filler is very bad! My body is now a torture chamber thanks to him! The scar tissue is now pinching my nerves in my left clavicle! My wonderful pain physician is trying to obtain from the terrible Travelers Insurance for me to have Botox injections! As of late, Travelers is denying me my necessary pain medications! All those with work injuries beware the whole process is a nightmare and there is no justice to me the work comp patient left with a lifetime of nerve pain even when I have an attorney in CA!
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Old 11-12-2012, 06:46 PM #7
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Default what to ask Dr. Donahue on my Dec. 3, visit

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Originally Posted by Limoges View Post
I had another appointment with Dr. Donahue yesterday and I'm doing great. I find a lot of my visits are spent asking about some of the things I read on this board, and Dr. Donahue is great at addressing the loads of misinformation being passed around.

Scar tissue and adhesions are not preventable. Our bodies are programmed to heal themselves and they do so by producing scar tissue. Some people are predisposed to making more scar tissue than others (those that produce keloids, for example), but there's no way to stop it. He said he has never had to reoperate on someone who developed so much scar tissue that it hurt the positive effects of surgery. Doing too much after surgery is worrisome because you could overstretch nerves or otherwise damage them, but scar tissue does NOT cause problems. I will continue to do gentle range of motion stretches as I heal over the course of the next year or so.

The idea that you can simply pick a surgeon and ask him/her to operate on you is also sort of horrifying to me. Anyone who gives you a sales pitch, or is ready to operate on you regardless of whether or not they think surgery will actually help, is someone you should run away from. Dr. Donahue will not operate unless he is quite sure that surgery will benefit a patient. There are no guarantees, of course, but his vast experience has given him a pretty good idea of who will and will not be a good candidate for surgery. Also, there are lots of things that can't be seen on various imaging techniques. Apparently it takes getting into that area surgically to actually see certain problems.

A doctor's credentials actually DO matter. You want a surgeon who has a high success rate and who does a lot of these surgeries.

Another thing that I find worrisome is that for the over 30 years I suffered from TOS, a lot of my pain was the result of nerve impingement from my c-spine over the damaged rib. My scapula hurting was the result of nerve pain elsewhere, as were many other symptoms. I had a doctor at MIT give me shots in my scapula and neck because that's where the pain was. It was NOT where the pain was coming from and was a horrible idea.

Ok, off my ergonomic soap box for now! Sending good thoughts for less or no pain to all of you.
Limoges

I hope I am doing the right thing to talk to you. I have an appt w/Dr. D Dec.3 2013 and wondered....did you have the terminology down when you asked him about what was wrong with you. I believe I have bilateral tos. My scapula, back, clavical area, shoulders to fingertips have nerve pain/dull aches, numbness and pins/needles. I have looked up the brachial plexus/scalene etc and all fit the problem, any suggestions about how to address the tos? I don't know when or where to look for your reply, but I am trying to go thru the instructions to find out, lol.
I am, irisheyesmilin
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Old 05-26-2013, 08:06 PM #8
16rhonda 16rhonda is offline
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Has Dr d. Ever mentioned what he would consider doing a reoperation for? IM 14 MOS. POSTOP W/Dr. Donahue. Thanks for any info.
Quote:
Originally Posted by Limoges View Post
I had another appointment with Dr. Donahue yesterday and I'm doing great. I find a lot of my visits are spent asking about some of the things I read on this board, and Dr. Donahue is great at addressing the loads of misinformation being passed around.

Scar tissue and adhesions are not preventable. Our bodies are programmed to heal themselves and they do so by producing scar tissue. Some people are predisposed to making more scar tissue than others (those that produce keloids, for example), but there's no way to stop it. He said he has never had to reoperate on someone who developed so much scar tissue that it hurt the positive effects of surgery. Doing too much after surgery is worrisome because you could overstretch nerves or otherwise damage them, but scar tissue does NOT cause problems. I will continue to do gentle range of motion stretches as I heal over the course of the next year or so.

The idea that you can simply pick a surgeon and ask him/her to operate on you is also sort of horrifying to me. Anyone who gives you a sales pitch, or is ready to operate on you regardless of whether or not they think surgery will actually help, is someone you should run away from. Dr. Donahue will not operate unless he is quite sure that surgery will benefit a patient. There are no guarantees, of course, but his vast experience has given him a pretty good idea of who will and will not be a good candidate for surgery. Also, there are lots of things that can't be seen on various imaging techniques. Apparently it takes getting into that area surgically to actually see certain problems.

A doctor's credentials actually DO matter. You want a surgeon who has a high success rate and who does a lot of these surgeries.

Another thing that I find worrisome is that for the over 30 years I suffered from TOS, a lot of my pain was the result of nerve impingement from my c-spine over the damaged rib. My scapula hurting was the result of nerve pain elsewhere, as were many other symptoms. I had a doctor at MIT give me shots in my scapula and neck because that's where the pain was. It was NOT where the pain was coming from and was a horrible idea.

Ok, off my ergonomic soap box for now! Sending good thoughts for less or no pain to all of you.
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Old 05-27-2013, 07:43 PM #9
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Has Dr d. Ever mentioned what he would consider doing a reoperation for? IM 14 MOS. POSTOP W/Dr. Donahue. Thanks for any info.
Hi 16rhonda,
I am seeing Dr. D soon (9 days) and am very likely having a re-operation. You will see in my signature the surgery I had done, it was 10 months ago and I have gotten worse and am continuing to worsen as more time passes and my other side is also getting worse (unoperated side). I believe my pain to be from scar tissue and the lack of c-rib or first rib resections. So Dr. D said if he were to do my redo he will take those both out 100%. Hope that helps.
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-6/20/14 Seroma Drainage Right Side

-7/18/13 Re-do of Right sided Supraclavicular Thoracic Outlet Decompression by Resection of Cervical Rib, First Rib, and Neurolysis

-8/30/12 Unsuccessful Right sided Supraclavicular Thoracic Outlet Decompression via Scalenectomy, Brachial Plexus and C2 through T1 Neurolysis, Resection of fibrous band attachment to Cervical Rib and Pectoralis Minor Tenetomy
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Old 04-11-2012, 01:05 PM #10
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[What I said was that my surgeon told me that too much movement post surgery will not cause scar tissue to regrow more quickly]

Ah that clears it up - I didn't see that from my readings of the first post.
What I saw was this and that's what I was replying about.
[but scar tissue does NOT cause problems]
probably what others were replying about because they have scar tissue and it causing problems.

So the thread got off due to a misunderstanding of sorts...apples vs oranges ...

[I do find that telling people to restrict their movements post surgery for fear of scar tissue forming is misinformation. ]

You thought the suggestion of limiting movements after surgery was in relation to scar tissue growth.??
If I had noticed a post saying that I would have tried to clarify, I must have missed that one.

I usually suggest gentle ROM movements - but limiting of any quick, fast, jerky moves that may cause a problem.
Like trying to catch a falling cup or dish..
( nothing to do with scar tissue- but just in general- post op advice)




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About Dr talk...
I will say that everyone has their own experiences with various Drs and while some love their Dr, another may have had a bad experience with the same one..
It nothing personal and no Dr is or his office staff is 100% perfect every day..

Mistakes happen.
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Last edited by Jomar; 04-11-2012 at 01:27 PM. Reason: added
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