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Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie. |
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11-12-2012, 06:46 PM | #61 | ||
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I hope I am doing the right thing to talk to you. I have an appt w/Dr. D Dec.3 2013 and wondered....did you have the terminology down when you asked him about what was wrong with you. I believe I have bilateral tos. My scapula, back, clavical area, shoulders to fingertips have nerve pain/dull aches, numbness and pins/needles. I have looked up the brachial plexus/scalene etc and all fit the problem, any suggestions about how to address the tos? I don't know when or where to look for your reply, but I am trying to go thru the instructions to find out, lol. I am, irisheyesmilin |
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04-21-2013, 05:35 PM | #62 | ||
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I am living proof of the problems that scar tissue can cause. The pain and burning is unreal that I have. As a surgical RN i have seen scar tissue and adhesion up close. That tissue is so tough, much tougher than a disc fragment. So it should not be hard to believe that scar tissue binding the nerve root would cause significant pain. Ive had two surgeried in the past year on my lumbar spine. I have chronic pain. I just had an appointment with a neurosurgeon at cleveland clinic and she informed me that I have much more scar tissue than the norm. Then I ask all of you, what is the norm? The text book version of what each of our bodies should be. I think all health care professionals can agree that each individual and each case is unique. To say that scar tissue can NOT cause problems is unreasonable. We all need to keep an open mind to all possibilities so that our input can be of help to each other.
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04-21-2013, 08:45 PM | #63 | ||
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I agree.....my nerve pain definitely has been caused by scar tissue and it makes me angry when you are told that what you are experiencing is just shrugged off as being not real. Mine was caused by initial surgery for TOS that resulted in complications that required not only one re-exploration but two for chyle lymph leaks that would not resolve on their own. So, 3 surgeries within the same surgical incision really "messed" with all of the nerves. It is difficult to have others understand what you are experiencing when there is no "visual" signs on the outside but it is so real! It is important for everyones input ....it can lead to some answers that could be of great help. What information were you able to get from your appointment with the Neurosurgeon? chloecasey |
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04-25-2013, 11:17 PM | #64 | |||
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My recent neurolysis procedures have not been anywhere near as traumatic as my rib resections (w/neurolysis).
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Marc . ACDF C5-C6-C7 2/28/11 . . . . |
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05-26-2013, 06:10 PM | #65 | ||
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I was wondering. Dr. Donahue told me there would be one exercise he wanted me to do for one year, 365 days. Otherwise he's not (paraphrasing) that keen on PT. Can you share with me the exercise he gave you. Thanking you in advance, I remain. Irisheyesmilin |
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05-26-2013, 08:06 PM | #66 | ||
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Has Dr d. Ever mentioned what he would consider doing a reoperation for? IM 14 MOS. POSTOP W/Dr. Donahue. Thanks for any info.
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05-26-2013, 11:06 PM | #67 | ||
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I'm 14mos postop c-rib, 1st rib, scalenectomy n neuroplasty. Recent increase n scapula, rib, clavicle pain & soreness. Don't. Know why only thing I can think of is I was taking a 1hr. TaiChi class (had lot of overhead arm MOVEMENTS) in march &2nd to last class pain started.. feels like pain in lung worse with deep breathing. Miserable! Have u had surgery yet? |
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05-27-2013, 11:34 AM | #68 | |||
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Limoges doesn't post here anymore. You can try sending her a Private Message.
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Marc . ACDF C5-C6-C7 2/28/11 . . . . |
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05-27-2013, 01:06 PM | #69 | |||
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Looking at the similar threads at the bottom of this page, I came across Scar tissue after surgery.
http://www.back-pain-info.com/back-p...technique.html The Racz procedure is for scar tissue post spinal surgery (which I suspect I have). It appears to include enzymatic therapy. Several people have recommended oral enzymatic therapies to me to mitigate post surgical scarring. Products like Vitalyzm (too expensive) and Wobenzym N claim to be of benefit. I am trying Wobenzym (with my doctor's awareness) and haven't noticed any side effects (other than a light wallet) so far.
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Marc . ACDF C5-C6-C7 2/28/11 . . . . |
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05-27-2013, 07:43 PM | #70 | ||
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I am seeing Dr. D soon (9 days) and am very likely having a re-operation. You will see in my signature the surgery I had done, it was 10 months ago and I have gotten worse and am continuing to worsen as more time passes and my other side is also getting worse (unoperated side). I believe my pain to be from scar tissue and the lack of c-rib or first rib resections. So Dr. D said if he were to do my redo he will take those both out 100%. Hope that helps.
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Parbie -6/20/14 Seroma Drainage Right Side -7/18/13 Re-do of Right sided Supraclavicular Thoracic Outlet Decompression by Resection of Cervical Rib, First Rib, and Neurolysis -8/30/12 Unsuccessful Right sided Supraclavicular Thoracic Outlet Decompression via Scalenectomy, Brachial Plexus and C2 through T1 Neurolysis, Resection of fibrous band attachment to Cervical Rib and Pectoralis Minor Tenetomy |
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