Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie.


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Old 02-07-2014, 11:46 AM #11
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Originally Posted by husky601 View Post
That's may be him. "His clinical work focuses on pediatric facial paralysis, nerve injury, hand surgery and micro-vascular reconstruction"

Yes i did have a first rib resection but din't work. I did lots of studying after my surgery about TOS and i tried lots of different treatment and i wasn't able to find something to manage my pain till i tried global postural re-education (GPR). It make a difference and i think i start to reverse the cycle but i still have lots to do.

I found some others trick like cold bath with ice cube on it for 5 minutes in the morning. Just cold water with lots of ice. It's making a huge difference at the point who i am able to relief pretty much 100% of my pain for few hours even for the whole day sometime. Also relaxing hot bath with epsom salt at night just before going to bed feels good to me.

There is only one thing who i think is good for everone here and it's global postural re-education. For the rest i believe it's different for everyone here. Not to be a bad person but there is to much people here who think they know how to heal with different method and they think everyone has to use the same way to heal so may be not a bad idea to not listening everyone here but must of people are realist and give their opinion which is great.

The truth is that substantially everyone react on different way to all the different treatment. Chiropractic is good for me but not necessarily for you as substantially all other treatments offered except the global postural re-education who i'm sure will help anyone here. Unfortunately there are not many of those and they are really hard to find in the US and i don't know why. In Quebec they are pretty easy to find, same in Europe. It's not to bad to find one in Ontario but there are not much in the US.

Anyway my opinion is posture and disciplines are the keys. For the rest i think you have to find your own tricks and reed the maximum as you can about TOS to understand what is TOS and maybe find out what type of TOS you think you have. If you are up to give you bit of hard time I suggest you to try a cold water bath with ice on it but i am not sure if it's good for everyone. One thing i know is it's freaking cold!!!


Alexis
I agree with you that posture is a huge deal. I've been working on mine for almost four years now and improvements come very slowly, but I've had TOS for more than 30 years. It's a lot more than just standing up straight. It's about restoring balance to the entire body and getting everything working together as one functional unit. It takes a lot of knowledge but I'm learning more about it all the time.
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Old 09-07-2015, 11:38 AM #12
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Check out Dr. Al-Omran, head of vascular surgery at St. Michael's, who is now doing the surgery there. He did my surgery where he removed my first ribs and scalene muscles.

**
Also check out Dr. Mark Leung if you are looking for an initial diagnosis. After many many doctors he finally had the hunch of TOS.

**
**

Last edited by Jomar; 09-07-2015 at 11:46 AM. Reason: sorry no linking for new members
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Old 09-07-2015, 12:33 PM #13
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Both are based out of Toronto.
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Old 10-17-2015, 01:35 AM #14
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Hi, I'm a 19 year old male based about 45 minutes North of Toronto and suffer chronic pain through my upper extremities on a constant, daily basis. I havent been officially diagnosed but through vast research over the past year and frequent hospital visits with no results, I'm fairly certain I have Neurogenic Thoracic Outlet Syndrome and I don't know what to do.

About a 15 months ago I went swimming in a public pool at night with some friends and accidentaly dove head first into the shallow end of the swimming pool. I could move my head for a month, i got xrays and they said i was okay, my head started to get better and i started working full time on an assembly line. after 6 onths i had to quit because i was suffering eexcrusiating pain by working. Ibuprofen did nothing.

I now have to stretch my shoulders and crack my neck on constant basis to keep my neck and head from seizing up in pain. I cant lift my arms above my head, my vision goes dark when i take a deep breath, my lymph nodes are always swollen and there are lumps forming on my esophagus. and i have had a blind spot in the center of my right eye for 2 months, I cant wear a backpack, i cant drive because i start to swerve whenever i have to crack my neck which is about every 5 minutes or so. I now work 3 shifts a week at a convenience store and even that's over baring to do, the pain's taking control of my life and every doctor i go to tells me im fine.

TLDR: Does anyone know of a Neurogenic Thoracic Outlet Syndrome Specialst in Ontario because I feel like I'm dying.
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Old 10-17-2015, 03:12 PM #15
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Quote:
Originally Posted by KentonHorgan View Post
Hi, I'm a 19 year old male based about 45 minutes North of Toronto and suffer chronic pain through my upper extremities on a constant, daily basis. I havent been officially diagnosed but through vast research over the past year and frequent hospital visits with no results, I'm fairly certain I have Neurogenic Thoracic Outlet Syndrome and I don't know what to do.

About a 15 months ago I went swimming in a public pool at night with some friends and accidentaly dove head first into the shallow end of the swimming pool. I could move my head for a month, i got xrays and they said i was okay, my head started to get better and i started working full time on an assembly line. after 6 onths i had to quit because i was suffering eexcrusiating pain by working. Ibuprofen did nothing.

I now have to stretch my shoulders and crack my neck on constant basis to keep my neck and head from seizing up in pain. I cant lift my arms above my head, my vision goes dark when i take a deep breath, my lymph nodes are always swollen and there are lumps forming on my esophagus. and i have had a blind spot in the center of my right eye for 2 months, I cant wear a backpack, i cant drive because i start to swerve whenever i have to crack my neck which is about every 5 minutes or so. I now work 3 shifts a week at a convenience store and even that's over baring to do, the pain's taking control of my life and every doctor i go to tells me im fine.

TLDR: Does anyone know of a Neurogenic Thoracic Outlet Syndrome Specialst in Ontario because I feel like I'm dying.
Hi, did you have a detailed cervical screen? MRIs are necessary not just x-rays for any disc related issues.

also, please try not to crack your neck too much, you could be contributing to cervical instability by weakening or spasming your overactive muscles.

a possible alternative could be to take some pain relieving gel and deeply massaging your muscles.
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Old 10-17-2015, 07:27 PM #16
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A vascular surgeon can also dx & treat NTOS I believe.. they aren’t limited to Vascular issues only..

So you had a concussion or possible TBI from the pool diving? You hit your head?
That can cause quite a few issues also..
If so you might benefit from some upper cervical chiropractic care.. it is not scary, if you are leery of general chiropractic the upper cervical is so gentle. look it up on you tube.. but basically your c 1 c 2 probably got really misaligned when you hit your head in the pool..
info-
www.upcspine.com
http://www.upcspine.com/self.htm

A full cervical MRI should be done as mentioned..to clearly rule in/out any injury.

Have you had any expert PT at all?
They can do some positional & other testing during the evaluation..
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Old 10-18-2015, 08:22 AM #17
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I have been looking up upper cervical chiropractic on the net, but can't find any evidence to support it.

Did it help your symptoms Jo mar?
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Old 10-18-2015, 03:41 PM #18
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Yes, but I know I had a concussion event at age 15 , and my shoulders, hips even eyes & ears have been slightly off level for quite awhile.
So it made sense to me after I found out about upper cervical..

Plus the chiro was a multi modality practitioner, so soft tissue /posture was addressed also.

If anyone has had any head/shoulder hits or falls , sport injury, it might be a good thing to look into..
Many w/TOS do report uneven shoulders..and later on hip problems...

Some upper cervical hard liners will say it will fix everything.. but I and many others on the PCS/TBI forum don't agree with that, we feel many other therapies are valid and a mix is needed for each individual..
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Old 10-19-2015, 10:08 AM #19
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Quote:
Originally Posted by Akash View Post
Hi, did you have a detailed cervical screen? MRIs are necessary not just x-rays for any disc related issues.

also, please try not to crack your neck too much, you could be contributing to cervical instability by weakening or spasming your overactive muscles.

a possible alternative could be to take some pain relieving gel and deeply massaging your muscles.
No i have not. I've been trying to get an MRI for months and I just had to change my family doctor because my old one kept insisting i was fine, and that i just have muscle soreness and gave me a celebrex prescription which ultimately worsened my condition.

I have a massage scheduled for tonight and an appointment with a chiropractor tomorrow who specializes in head trauma after upper cervical treatment only provided me with temporary relief.

I'll try 3 treatments with this new chiropractor and if that doesn't prevail, I've been recommended an Osteopath
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Old 10-19-2015, 10:22 AM #20
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Originally Posted by Jo*mar View Post
A vascular surgeon can also dx & treat NTOS I believe.. they aren’t limited to Vascular issues only..

So you had a concussion or possible TBI from the pool diving? You hit your head?
That can cause quite a few issues also..
If so you might benefit from some upper cervical chiropractic care.. it is not scary, if you are leery of general chiropractic the upper cervical is so gentle. look it up on you tube.. but basically your c 1 c 2 probably got really misaligned when you hit your head in the pool..

A full cervical MRI should be done as mentioned..to clearly rule in/out any injury.

Have you had any expert PT at all?
They can do some positional & other testing during the evaluation..
I have no idea. Anything could have happened to me after that pool accident but I wouldn't have a clue because apart from the chiropractor who took a look at my x-rays, everyone i've been to has told me I'm completely fine. And having such severe damage to my neck go untreated for 15 months, it's possible many more complications have arisen.

I'll make sure i mention all of this to the chiropractor im going to see tomorrow. I've been suggesting PT and asking my doctor for an MRI for months but he has had no interest in helping me from the start. Due to my young age, I believe he thinks me to be another teenager complaining about non existent symptoms in order to get pain killers or pot or something. My first appointment with my new doctor isnt till Nov. 2nd so I wont be able to get an MRI until sometime after then, unfortunately
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