I was diagnosed with neurogenic TOS in Vancouver before moving back to Ontario. I had a positive nerve conduction test indicating C8-T1 wasting and recommendation for first rib resection.

HOWEVER - things took a big turn in Ontario. I've been to many specialists ... and not one specialist seems to know what this condition is, OR how to diagnose it, OR treat it!!

All symptoms point to neurogenic TOS, but here is the kicker - I also had a previous break to the distal clavicle. So it seems I only get consideration for orthopedic surgery. I had a bony abnormality removed from the distal end of the clavicle which is healing fine - but ALL the TOS symptoms are still there. The only relief I ever experienced is when I had a scalene block for the shoulder surgery. Again - this indicates TOS!

Can anyone recommend a specialist in Southern Ontario that I can go to that really understands this condition?

Please, please help! Geeez Ontario, you think there would be a better standard for diagnosis & treatment in this province!