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NeuroTalk Support Groups (https://www.neurotalk.org/)
-   Thoracic Outlet Syndrome (https://www.neurotalk.org/thoracic-outlet-syndrome/)
-   -   Neurological symptoms with TOS? (https://www.neurotalk.org/thoracic-outlet-syndrome/169074-neurological-symptoms-tos.html)

Qatada 05-05-2012 08:06 AM
I have this strange episodes of dizziness that lasts for a few seconds and are brought on by sitting in a certain position on a chair, such as at the edge of the chair. This mostly happens during summer season when it is hot.

Once I was straining my neck to look closely at the monitor when I had a vertigo. My arms aren't raised above my head when this happens. There is no nausea associated with it.

Has anyone felt like this?

brmr19 05-05-2012 04:41 PM
Yes. It use to happen all the time with me prior to my first surgery. I still get it every now and then. I know I can not cross my arms in front of me because that will bring it on.

chroma 05-06-2012 01:45 PM
When my neck was really tight, I would get this when turning it to the side. Particularly turning it to the right which stretches things out on the left which is my worst TOS side.

I do gentle neck mobilizations and stretches every morning, plus some other things, to reduce muscle tension. This fixed the problem by > 90%.

brmr19 05-06-2012 04:19 PM
I had the surgery on the left side with scalenectomy. My left side of neck is still tight from scm. There is no perfect solution for everyone.

brmr19 05-06-2012 04:33 PM
it stands for sternocleidomastoid muscle

Anne4tos 05-06-2012 10:25 PM
I would never push and/or suggest surgery for anyone experiencing TOS or symptoms which replicate "TOS" on a forum based upon YOUR outcome.

In my experience, I have read thousands of forum posts pre and post op. Even though it would be wonderful to declare a surgery "successful" weeks and or months following the procedure, it is not possible. The number of recurrent problems I've read is disastrous in the patient population.

:deadhorse:

jkl626 05-06-2012 11:42 PM
Quote:
Originally Posted by Limoges (Post 876897)
By the way, I've had TOS for over 30 years. I have lived with chronic, debilitating pain, muscle spasms, an inability to take deep breaths because the pain in my scapula felt like there was a knife in it. I would most definitely suggest surgery for anyone who is a viable candidate and who has access to good medical care. (Of course, my surgeon only operates on patients who he believes he can help. He chooses his patients rather than the other way around.) I'd also recommend driving a Volvo based on my positive experiences.

If there's an option to feel less pain, then I will always recommend someone take it.
Limoges remind me ,did you have scalenctomy surgery only? If so what was the dr's reasoning? And was he going to be able to take the rib out if necessary? I am interested in scalenectomy only if possible. I am starting to see the 3 surgeons here in L. A. starting next week, Only one is covered by my insurance though so I may have to travel. How is your recovery going?

Jomar 05-07-2012 01:44 AM
Long timers around the forums have seen past battles over drs ( what dr is best or worst) :( and surgery pros and cons... we don't want that to happen here ever. It just creates tension for everyone reading..and that is not good for any of us.
Those old posts were lost in a major system crash on another site.


*Sometimes it is best to use the PM system for specific questions or comments.*


We also need to be polite about hijacking, or going off topic on another member's thread.

I'll bump up the original post to get back on track.

Jomar 05-07-2012 01:46 AM
Quote:
Originally Posted by Qatada (Post 875303)
Has anyone suffering from vascular or neurological TOS experienced neurological symptoms along with symptoms of TOS, such as dizziness, vertigo, and tinnitus?

Does TOS in any way affects the blood supply to the head, which in turn might cause these symptoms?

I'm asking this because 6 months before I started to see vasc/neuro TOS symptoms, I had such neurological symptoms as episodes of vertigo and tinnitus in one of the ears. Also, when working with both arms up I would feel dizzy. I went to a neuro who diagnosed me with vertebrobasilar insufficiency.

I still have these symptoms now. Does anyone relate?
bumping up for more replies re: dizziness, vertigo, and tinnitus

Qatada 05-07-2012 05:06 PM
Lately my dizziness has become frightening.

I have episodes of this strange kind of what looks like a dizziness but is not exactly a dizziness or vertigo, where it feels as if the vision and head is being pulled towards the left side. I especially get this feeling when walking slowly (taking a few steps). There were times I almost fell when I had episodes like this.

I am afraid that if this being caused by incomplete blood supply to the head, especially the vestibular region of brain, then it might cause TIA or even stroke.


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