[dianeb46]

Hi, I am new to this site and hope that someone might be able to help me. I will try not to make this too lengthy, but there is alot to say.

About 15 years ago, I was diagnosed with cervical degenerative disk disease as well as bulging disks in my c 5/6 and c6/7. Although this was uncomfortable, it was managable with meds and massage.

Almost 4 years ago, I fell onto my right outstretched arm and was diagnosed with tendonidis, bursitis, frozen shoulder. After 6 months of pain, I had surgery for impingement of the shoulder. The surgery did nothing for my pain and 3 months later had a bicep tenodesis to try to relieve severe bicep pain. Again, the surgery didn't help at all. Did many many months of pt trying to get back lost rom without much luck. I could barely raise my right arm without much pain. My Dr was at a loss what was causing my pain. I was having severe pain in the bicep tendon area so he decided that maybe it was scar tissue build up and went in for surgery #3 to break it up. Right now my shoulder is just as bad as ever.

Six months ago I woke up with pain in my right shoulder blade area, forearm pain, and hand pain. This was constant pain that didn't let up. 4 weeks later I was having what felt like nerve pain shooting down my right arm, pain in my chest area right below my collar bone, armpit pain, pinkie and half of ring finger numb, along with the same shoulder blade and hand pain. It never stopped. Never. Had MRI that showed nothing that should be causing that kind of pain. My neuro did a nerve cond test and told me I had cubital tunnel. He decided to do CT and results said I had nerves being compressed at 5/6 and 6/7.

One month ago I had a cervical decompression and fusion. About a week before my surgery I noticed that for the first time I was having neck pain on my left side. All my symptoms had only been on the right at this point. After I woke up from surgery I had shoulder blade pain on my left side this time. It was there for 2 days and then stopped for a week or so. Ten days after my surgery it was back along with other symptoms ....

- right side pinkie and ring fingers numb again at night, sometimes on left hand pinkie and half of ring finger
- pain in middle finger and hand on right side
- tenderness on right in armpit area and under collar bone
- tenderness on left in armpit area and under collar bone
- left side severe neck pain, almost like mumps pain
- severe upper arm pain( feels alot like my bicep area pain on right shoulder that I have)
- can't turn my head to the left at all and can about half way on other side
- left forearm pain
- twitching in shoulder blades on both sides

Went fact to my neck surgeon to talk about these symptoms, and he spent 2 min with me saying its all normal and prescribed me steroids. I know this is not normal and i am hoping to se a new dr if and when my ins approves. Another thing I didn't mention was
that my shoulder surgeon told me that I had slight winged scapula probably due to the way I adjusted my posture from years of shoulder pain. If anybody has any ideas I would really like to hear from you. Thanks for listening.

[jkl626]

Hi Diane,
I have alot of the same symptoms you are describing.
I also have DDD at c-5/6 but have not had surgery for it. I was treating it for 8 months with no results and then I finally got a TOS diagnosis. I have been doing pt,injections and am starting to look into surgery now. I beleive there is a connection between the DDD and TOS since so many of us have both.

It is important that you find a dr who knows about TOS to get properly diagnosed. Look at the threads at the top for listings and also let us know where you live as there are dr's all over the country.

[Jomar]

Much of those sx sound very familiar.

Here is one of the posts from our useful sticky thread that may be helpful for you, the bottom 2 links have listings of many member sx top 5 & a comprehensive list.
http://neurotalk.psychcentral.com/sh...5&postcount=18

All the sticky threads are full of info acquired over the years.

I hope you can find a knowledgeable TOS dr to help you , since it seems to be a co condition.