Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie.


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Old 05-10-2012, 07:59 AM #21
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different strokes, ive done that and it was irritating

exercises that require me to be in good posture pressed up against a wall have been bad news

serratus slides are good though, but you are facing a wall

i wonder how many people here have downwardly rotated shoulders
its weird this guy whos a shoulder guru, im not going to post his vids but he says that the upper trap is actually inhibited in downwardly rotated shoulders. you get trigger points around the shoulder blade but the real problem is the levator and the rhomboids.

i definitely have this on my right side (where it wings at the bottom) but i dont think its common to tosers. it could be an aggravating factor tho
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Old 05-10-2012, 12:26 PM #22
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Quote:
Originally Posted by mspennyloafer View Post
if you are truly hypermobile (can u touch your thumb to your wrist?)

then you must strengthen but i wouldnt strengthen your upper traps wtf. do your lower traps..rotator cuff muscles. DO NOT stretch or you will end up like me!! i used to have droopy shoulders now my shoulders are hiked up to my ears from overstretching as a defense mechanism. theres no middle ground. and your neck will hate you for it.

what works for me is strengthening without weights just holding up your body weight, dont let them talk you into resistance bands, you will get worse! trust me then you combine that with the barest MINIMUM of stretching...one stretch i do is just lying down on my back and putting my arm over my head to stretch my armpit. THATS IT and if i ihave any slight tingling or nervy sensations i dont even do that. people who are hypermobile don't know how to stretch properly. they overstretch. nerves go into protection mode. repeat ad nauseum.
Thanks so much for this message, it makes so much sense.This is exactly my problem, I am hypermobile too. I think this is worth posting as a new thread for all members on the forum as it is very valuable advice.
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Old 05-10-2012, 05:55 PM #23
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Yay! Ill make one.

I think hypermobile people have their own type of tos. I've talked to several women with ehlers danlos syndrome and they all have some version of tos. Even without their ribs necessarily being raised. Like mine can raise but they went down. Still feel awful
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Old 05-15-2012, 06:50 PM #24
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http://www.youtube.com/watch?v=dyDA930s7MA

Maybe this will help someone he doesn't like scapular pushups either

Im too weak to do this ugh
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Old 05-24-2012, 10:28 AM #25
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Default oh that pt confusion...

Thera bands, for me, were awful.
The arm bike-terrible.
The usual things therapists try-gave me terrible flareups.
Listen to your body if a therapy does not sound right or does not work for you. Don't torture yourself for weeks and weeks like I did hoping to void surgery.
TOS may not be well understood, but you deserve to be well cared for!
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Old 05-27-2012, 08:47 PM #26
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Quote:
Originally Posted by klm207 View Post
Thanks so much for your comments everyone. The new PT has me doing 15 simple shoulder shrugs 10 times a day, alongside wall push ups (20 each hour), and rowing with a theraband. And I'm not allowed to stretch anything! I've been doing the shrugs for 2 days now and my shoulders feel exhausted, and my left shoulder (less bad tos) has started crunching away like mad. Haven't done the other exercises yet as I'm scared! He also has me elevating my shoulders at all times by about 2 inches, so that my clavicles are at approx 30 degrees (they are normally horizontal or sloping down towards my shoulders). Am feeling quite tingly in my arms and hands, but not the deep achey pain that has me crying!
This new regime is so counter-intuitive to me I don't know what to do. One interesting thing that makes me think this new PT might have a point is that on my cervical spine MRI the scalenes on the right (bad tos side) were actually hypotrophied, as are my upper traps on that side. And then I went on madly stretching these weak muscles for 5 months!
It would be really interesting to hear more thoughts on shoulder elevation for treating tos, and for us to think that maybe, the model we read everywhere about stretching and releasing the scalenes might not be right for everyone...
...
How are things going? Are you still on the same program?
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Old 04-25-2014, 03:24 AM #27
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Default Sadly, the same story

Hey all,

Going through the exact same problem

Although I've constant swelling of the hands and veins too, I've recently found a new PT who's stated the same 'your upper trap (right) has wasted and you must shrug!'. I kinda understand what he's say, but for for the past 3 years I've been give 'shoulders down and back', with no progress - so maybe he's right?

I have a desk job, so all my pain comes during work hours.

I guess I'm querying whether anyone's been through a similar story with the PT?
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Old 04-25-2014, 03:44 PM #28
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I was told to shrug my shoulders following surgery and I always found that it exacerbated my pain in the neck and traps. Most of the usual things PTs proposed for me were aggravating. The only thing I've been able to do that helps is lie on the floor and practice diaphragmatic breathing. But, at some point, one has to get off the floor so it hasn't been a practical solution, but it does take the edge off for a bit.
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Old 04-28-2014, 02:59 AM #29
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As opposed to generic shrugs, search monkey shrugs. My PT recommended these against the normal exercises as they don't activate the levator scaps, which tends to be the main cause of the pain in and around the neck area.

What surgery did you receive and was it a success? Is your PT designed to lift the shoulder up?

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I was told to shrug my shoulders following surgery and I always found that it exacerbated my pain in the neck and traps. Most of the usual things PTs proposed for me were aggravating. The only thing I've been able to do that helps is lie on the floor and practice diaphragmatic breathing. But, at some point, one has to get off the floor so it hasn't been a practical solution, but it does take the edge off for a bit.
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Old 04-28-2014, 12:50 PM #30
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I'm not sure if you're asking me, but I had left rib resection and scalenectomy in January 2005.

I searched for monkey shrugs and found a Youtube video. I can do it (without weights) without aggravating my neck pain.

Thanks,
Kelly
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