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-   -   JKL'S TOS Journey or How I am seeing all the doctors in L.A. (https://www.neurotalk.org/thoracic-outlet-syndrome/169611-jkls-tos-journey-am-seeing-doctors.html)

jkl626 05-31-2012 09:02 PM

Quote:

Originally Posted by parbie (Post 884951)
My neck MRI from August 2011 showed a disc bulge also at C5/C6. But a redid the MRI recently (April 2012) and there was no indication of the bulge. According to my doctors, discs regenerate over time so I guess that's what happened. I had the epidural done first in December 2011. After that didn't help, I did an EMG which came back negative. My doctor said that medial branch nerve damage does not usually show on the EMG so he convinced me to get the facet block (in January 2012) to see if it helps and to confirm his diagnosis for Cervical Facet Syndrome. Because it gave me some relief I did the ablation in February.

The doctor who did these in NJ (as I am from NY). After I went back to him for follow-up to tell him it didn't help, he told me to go to physical therapy (for the second time). I went for 10 weeks and I got worse. So I am not sure if the epidural or block particularly made me worse, or the physical therapy or the combination of all this. But I am much more worse now. But on my follow up after 4 weeks of physical therapy, the same doctor told me I was faking my pain (in better words) and that he had no idea what to do next. The entire time he was also only focused on my neck and told me he did not know where my right shoulder, arm and hand pain or the pain in my occipital lobes was coming from.

The epidural is basically a lot of steroids injected into your cervical spine. The block is usually either a numbing medication, steroid, or a combination from what I was told. Even if you are able to confirm that the bulge may be causing some of your symptoms, I don't believe these procedures can make you entirely sure.

My current doctor is also having me do a block to my brachial plexus (lower trunk). I am going ahead with it next week to see if my cervical ribs are compressing my lower trunk since that is what he believes (and I need some answers).

Let me know if you have any other questions.

hmm, thats interesting too. I had my MRI in June 2011. I have not repeated it, but maybe I'll check into that before doing any more injections. I dont know how many my insurance will cover.
Good Luck-Let me know how the block works for you

nospam 05-31-2012 09:08 PM

I believe a diagnostic block is just Marcaine and short acting. A therapeutic block adds steroid and is longer lasting. Often Drs want to do the diagnostic block before therapeutic or ablation/rhizotomy.

jkl626 06-01-2012 11:16 AM

Quote:

Originally Posted by nospam (Post 884961)
I believe a diagnostic block is just Marcaine and short acting. A therapeutic block adds steroid and is longer lasting. Often Drs want to do the diagnostic block before therapeutic or ablation/rhizotomy.

My scalene block was marcaine and a little bit of steroid. It didnt last long at all.

jkl626 06-04-2012 05:08 PM

Saw Dr. Jordan today
 
I saw Dr. Jordan today and we looked at my c-spine mri again which shows bone spurs and the disc bulge pushing into a nerve and narrowing the foramina.

He is now recommending a transforaminal nerve block with steroids and stimulate the nerve as a diagnostic to see if it reproduces the pain. This will help decide if the disc is causing any of my shoulder and scalpular pain. If it does reproduce the symptoms then he will do pulsed radiofrequency to help with the pain for 6 months. Even though we dont think the pain is coming from the disc,I guess its worth doing if it will help rule it out.

I feel better about doing this one then I did about doing the BP nerve block as my shoulder pain is worse than my arm pain. I may feel better about doing the BP one later if this one isnt so bad. Hopefully it will tell me once and for all if the disc is responsible for any of the pain. All the surgeons want to rule this out first too. He didnt mention the facet block this time,but I think he was responding more to what he saw on the MRI.

I went ahead and asked them for a pre auth since this will take a few weeks to get anyway and it will give me some time to think about when /if I want to do it. Dr. J says he does them all the time and I have to trust that he is one of the best at doing these.

I told him I was going to try the neural prolotherapy that Dr.Aufiero recommends but he doesnt think it will do anything since i didnt respond to the trigger pt's but it is so much less invasive than any of these other injections and insurance will pay for the first one so I dont really see the downside.

He also gave me the name of an innovative pt that he recommends closer to me: Li-der Chan and a Chiro- Joe Horrigan. Anybody heard of these? I havent reseached either of them yet but that is next on my list.
He respects dr. Ando and says he is go to guy in Orange County. Its too bad he didnt give me those names earlier, because I am going to stick with Ando for awhile but for long term I will need to find treatment closer to me.Plus my pt visits have run out. I am in the midst of trying to ask for more but my insurance almost never approves it.

Everytime I see him there is so much to talk about and even though he spends almost an hour with me I always have more questions. ITs $200 everytime I go.

nospam 06-04-2012 07:42 PM

I have had the transforaminal lumbar block and it was effective. It is also easier (fewer needles) than the medial branch (facet) block. I hope it brings you some relief. Spinal issues are much easier to deal with than TOS in my experience. Is Aufiero or Jordan going to do the injections?

jkl626 06-04-2012 07:53 PM

Quote:

Originally Posted by nospam (Post 886083)
I have had the transforaminal lumbar block and it was effective. It is also easier (fewer needles) than the medial branch (facet) block. I hope it brings you some relief. Spinal issues are much easier to deal with than TOS in my experience. Is Aufiero or Jordan going to do the injections?

This is thru Dr. Jordan. Dr. Aufiero just does the neural prolotherapy which I will probably try first. I like the idea because it is diagnostic and it will be good to know once and for all if the pain is just the TOS or not. I hate being experimenting but I guess every procedure is.

I am still feeling better since starting to see Dr. Ando, so maybe I wont even need to do these,but my goal is to start working part time in July and then hopefully go back to my regular work in the fall and that will certainly be a challenge. The chin-tuck exercise is really difficult for me and gave me bad shoulder pain, I have to talk to him about it when I see him tomorrow.

Jomar 06-04-2012 11:51 PM

Think this is the chiro guy?? Interesting :)

[Joseph M. Horrigan, DC, DACBSP, CSCS
Dr. Horrigan is the President of Horrigan Sports Chiropractic and Soft Tissue Center. Dr. Horrigan served on the American Chiropractic Board of Sports Physicians for seven years, of which four years were as Vice-President. He served as the Chair of the Written Examination Committee for nine years. Dr. Horrigan was awarded the 2001 Sports Chiropractor of the Year. Dr. Horrigan also served as the Head Speed-Strength and Conditioning for the Los Angeles Kings for three years. He served as the Team Chiropractor for the Long Beach Ice Dogs hockey team for several years and as their Director of Speed-Strength and Conditioning for seven years. Dr. Horrigan serves on the Medical Committee for USA Weightlifting. He served as the Chief Medical Officer for Team USA for the 1999 Junior World Championships and 2003 World Championships in Weightlifting. ]
http://softtissuecenter.com/about/st...r-Joseph-49575

jkl626 06-05-2012 11:15 AM

Quote:

Originally Posted by Jo*mar (Post 886134)
Think this is the chiro guy?? Interesting :)

[Joseph M. Horrigan, DC, DACBSP, CSCS
Dr. Horrigan is the President of Horrigan Sports Chiropractic and Soft Tissue Center. Dr. Horrigan served on the American Chiropractic Board of Sports Physicians for seven years, of which four years were as Vice-President. He served as the Chair of the Written Examination Committee for nine years. Dr. Horrigan was awarded the 2001 Sports Chiropractor of the Year. Dr. Horrigan also served as the Head Speed-Strength and Conditioning for the Los Angeles Kings for three years. He served as the Team Chiropractor for the Long Beach Ice Dogs hockey team for several years and as their Director of Speed-Strength and Conditioning for seven years. Dr. Horrigan serves on the Medical Committee for USA Weightlifting. He served as the Chief Medical Officer for Team USA for the 1999 Junior World Championships and 2003 World Championships in Weightlifting. ]
http://softtissuecenter.com/about/st...r-Joseph-49575

Thanks, I looked him up too. It sounds like a big place, ofte you dont get to see the main dr. in these places They are right by my house so I'll give them a call. They are out of network with my insurance so will see how much it costs,but its worth in my search for a non-traditional chiropracter. Dr. J says he knows about TOS.

parbie 06-05-2012 06:48 PM

Quote:

Originally Posted by jkl626 (Post 884960)
hmm, thats interesting too. I had my MRI in June 2011. I have not repeated it, but maybe I'll check into that before doing any more injections. I dont know how many my insurance will cover.
Good Luck-Let me know how the block works for you

I got the BP block to the lower trunk yesterday. Today I am still in pain after being completely numb until this morning. However, I felt 10-20% relief in my arm and hand. My anesthesiologist wants me to wait until tomorrow to see how I feel after the pain from the injection site wears off (I am having a lot of pain in my collar bone, side of my neck and shoulder). Clearly there is more than just something in my BP going on, so I have to figure out the next step. But I think it's good that you are trying to rule out your disc first and holding off on the BP block for now since your shoulder pain is worse. When you did the scalene block, where did you feel relief? I am so confused about what could be the source of my shoulder and neck pain since I don't have any disc issues.

jkl626 06-05-2012 07:19 PM

Quote:

Originally Posted by parbie (Post 886376)
I got the BP block to the lower trunk yesterday. Today I am still in pain after being completely numb until this morning. However, I felt 10-20% relief in my arm and hand. My anesthesiologist wants me to wait until tomorrow to see how I feel after the pain from the injection site wears off (I am having a lot of pain in my collar bone, side of my neck and shoulder). Clearly there is more than just something in my BP going on, so I have to figure out the next step. But I think it's good that you are trying to rule out your disc first and holding off on the BP block for now since your shoulder pain is worse. When you did the scalene block, where did you feel relief? I am so confused about what could be the source of my shoulder and neck pain since I don't have any disc issues.

Hi Parbie,Thats good you feel relief,give it some time. It took me 2 weeks to feel better after the botox. I have bad shoulder and neck pain too and I really dont think its from the disc,and alot of my dr's dont either but theres no way to know for sure without some of these diagnostic tests. In your case it probably is the BP compression, alot of TOS sufferers have this type of pain. The muscles and nerves get inflamed from the BP compression so it could be the source of your pain.My PT is really helping with this with Rib Mobilization. I may get the disc injection just to rule it out,also he stimulates the nerve to see if it recreates the pain.but not sure when.

When I got the scalene block, I really didnt get much releif. If I did it was just for a few minutes.I remeber my scalpula pain coming back in the car on the way home. When he did the 90 degree hand test my pain was better after than before,but the problem is I wasn't in that much pain when I took it, The Dr. thinks it was positive, but I'm not so sure. I may have to repeat it if I decide to go for surgery.

Did you get Radiofrequency or just the block?


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