Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie.


advertisement
Reply
 
Thread Tools Display Modes
Old 05-30-2012, 05:52 AM #1
nospam's Avatar
nospam nospam is offline
Member
 
Join Date: Feb 2012
Location: Orange County, CA
Posts: 835
10 yr Member
nospam nospam is offline
Member
nospam's Avatar
 
Join Date: Feb 2012
Location: Orange County, CA
Posts: 835
10 yr Member
Default

Quote:
Originally Posted by jlrob6 View Post
I live in Melbourne, Australia

Hematologist recommended staying on warfarin (blood thinner) for the rest of my life, as rib removal is quite invasive and takes a while to recover from, she's also set up an appt w/ another hematologist for a 2nd opinion
Rib removal is not terribly invasive and recovery times (especially for young people) are reasonable. I have had rib resection surgery on both sides and my recovery is going even better than expected.

Maybe you should try and see this guy for another opinion:

Quote:
Originally Posted by OzKira View Post
This is my specialist who see's a lot of patients with Vascular TOS

Terry Devine (Vascular Surgeon)

158 Lennox St
Richmond Victoria
Ph 9429 5922 (for appointments)

Also practices at Monash Medical Centre Clayton
South Eastern Private Hospital Noble Park
Knox Private Hospital Wantirna

I hope this helps someone in my state
__________________
Marc

.


ACDF C5-C6-C7 2/28/11

.


.


.


.
nospam is offline   Reply With QuoteReply With Quote
Old 05-30-2012, 09:31 AM #2
jlrob6 jlrob6 is offline
Junior Member
 
Join Date: May 2012
Location: Melbourne, Australia
Posts: 6
10 yr Member
jlrob6 jlrob6 is offline
Junior Member
 
Join Date: May 2012
Location: Melbourne, Australia
Posts: 6
10 yr Member
Default

Quote:
Originally Posted by nospam View Post
Rib removal is not terribly invasive and recovery times (especially for young people) are reasonable. I have had rib resection surgery on both sides and my recovery is going even better than expected.

Maybe you should try and see this guy for another opinion:
This is great. Thanks!
I have a appt next Monday w/ another hematologist for a second opinion. The more I read about rib removal, the more I'm leaning towards it. The side effects and lifestyle changes that comes along with life-long warfarin in take is something I would prefer to avoid.

How long were you out of work for? From what I can see average recovery is about 6-8 weeks
jlrob6 is offline   Reply With QuoteReply With Quote
Old 05-30-2012, 10:58 AM #3
nospam's Avatar
nospam nospam is offline
Member
 
Join Date: Feb 2012
Location: Orange County, CA
Posts: 835
10 yr Member
nospam nospam is offline
Member
nospam's Avatar
 
Join Date: Feb 2012
Location: Orange County, CA
Posts: 835
10 yr Member
Default

It seems that my return to work range will be 8-12 weeks (I'm currently in week 6). However, I have neurogenic and vascular TOS and it takes a while longer for nerves to recovery. If you have strictly vascular TOS, 6-8 weeks sounds about right for bilateral surgeries.
__________________
Marc

.


ACDF C5-C6-C7 2/28/11

.


.


.


.
nospam is offline   Reply With QuoteReply With Quote
Old 05-31-2012, 07:30 PM #4
Blurto Blurto is offline
Junior Member
 
Join Date: Mar 2012
Location: Canberra, Australia
Posts: 43
10 yr Member
Blurto Blurto is offline
Junior Member
 
Join Date: Mar 2012
Location: Canberra, Australia
Posts: 43
10 yr Member
Smile

Hi jlrob6, I must say, I'm a little surprised at your Hematologist's narrow focused response to your condition. A range of tests are used to discount what maybe wrong before final diagnosis, and reading through these forums, you will see nearly everyone has a different experience with it.

I saw on TV the other week that an AFL player has had a similar operation near his clavicle. The younger patients recover quicker, as nospam has mentioned but I'm afraid your Hematologist doesn't know enough to advise you.

I had my rib resection done five weeks ago, just after nospams first one, but the surgeon went in from the front because my issues were many, the simpler ones and less invasive are transaxillary, through the armpit and there are less nerves to disrupt.

The surgery is less common in Australia, but not unheard of. If you look online, an episode of RPA had a rib resection in 2010. This link can give you some easy to understand information as well. http://morphopedics.wikidot.com/thor...utlet-syndrome

I'm in Canberra and my surgeon is a Professor of Vascular Surgery at the ANU, so I'm in good hands. You would do yourself justice if you saw the appropriate specialist. Keep in touch!

Last edited by Blurto; 06-01-2012 at 01:52 AM. Reason: ...can't spell to save my life...
Blurto is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
nospam (05-31-2012)
Old 06-01-2012, 03:34 AM #5
jlrob6 jlrob6 is offline
Junior Member
 
Join Date: May 2012
Location: Melbourne, Australia
Posts: 6
10 yr Member
jlrob6 jlrob6 is offline
Junior Member
 
Join Date: May 2012
Location: Melbourne, Australia
Posts: 6
10 yr Member
Default

Thanks Blutro, this is great info
I'm getting a 2nd opinion on Monday & will push to have the surgery, as I really don't want to be on blood thinners for the rest of my life.

I'm hoping my Heamo can recommend a vascular surgeon in Melbourne & get the surgery done later this year, to avoid missing too much uni.

Looking forward to Monday, hopefully get some solid answers!

- Jenn
jlrob6 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Blurto (06-01-2012), nospam (06-01-2012)
Old 06-01-2012, 07:33 AM #6
nospam's Avatar
nospam nospam is offline
Member
 
Join Date: Feb 2012
Location: Orange County, CA
Posts: 835
10 yr Member
nospam nospam is offline
Member
nospam's Avatar
 
Join Date: Feb 2012
Location: Orange County, CA
Posts: 835
10 yr Member
Default

Just make sure the vascular surgeon you select has performed a good number of these surgeries with a high success rate.
__________________
Marc

.


ACDF C5-C6-C7 2/28/11

.


.


.


.
nospam is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
vp shunt and upper bowel obstruction kl2568 Hydrocephalus 11 03-07-2015 11:59 AM
Nonrelaxing Puborectalis & Outlet Obstruction rollergirl553 General Health Conditions & Rare Disorders 0 07-13-2011 08:54 PM
Has Anyone had a DBS Removal MKane Parkinson's Disease 7 01-27-2008 01:54 AM
Republicans Continue Unprecedented Obstruction BobbyB ALS News & Research 1 12-13-2007 02:19 PM
Off topic, Chronic Pseudo Obstruction MelodyL Peripheral Neuropathy 2 07-21-2007 03:27 PM


All times are GMT -5. The time now is 01:49 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.