Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie.


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Old 05-22-2012, 04:38 PM #1
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Default A visit to disability doctor showed no pulse

well for the second time I had to visit the pension board doctor. This guy found no pulse on my left side, which was already repair with surgery. He side right side he would lose pulse when he had me turn my head. The last guy lost the right side just by raising the arm. i can tell you that the 2.5 hour drive was not fun at all. My sister drove and we stopped several times just so I could walk around. The trip home was even worse especially since I was with the doctor over an hour and he was moving my arms checking range of motion and strength. What an aggravating day.
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Old 05-22-2012, 04:53 PM #2
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I am so glad your sister was able to drive you. I was hoping you would not have to go it alone. My fingers are crossed that you are granted the benefits that are due to you.
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Old 05-22-2012, 04:53 PM #3
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You'll probably be more sore tomorrow...

There is also a small percentage of normal folks that will lose the pulse in those same positions, so it isn't a slam dunk as far as dxing.
But if you have many TOS like, or similar sx, and other testing rules out any c spine or other issues, then it sure points to TOS.

Oh if it is similar to WComp, and you do feel much worse tonight/tomorrow, go have the increased pain & sx documented by your own medical team.
Often it all comes down to what is on paper...
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Old 05-22-2012, 09:45 PM #4
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As a fellow user who had an irritating day, I'm hoping that tomorrow is brighter for both of us. I'm in a disability battle myself which is so frustrating. Hang in there and take care.
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Old 05-23-2012, 01:18 PM #5
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Jomar, you were right, I woke up pretty sore today. I did see the chiro late this morning and it has helped a bit. My shoulders, upper arms, and chest is the worst, had a lot of spasms last night and this morning, but starting to settle down.
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Old 05-23-2012, 01:24 PM #6
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Looking back -one of my main problems in regards to my wc claim was the delayed pain, I didn't know anything about it at all back then... so i had no idea what to call it, or that I should mention it to my drs...& atty...
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Old 05-23-2012, 02:58 PM #7
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Jomar, i was planning on bringing up the delayed pain to the doctor, but he beat me to it. His comment to me was that he only sees me for a few minutes, but understood that the problems could start after I left his office. We talked about it several times during the 1 hour appt.
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Old 05-24-2012, 02:18 AM #8
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Quote:
Originally Posted by Jo*mar View Post
You'll probably be more sore tomorrow...

There is also a small percentage of normal folks that will lose the pulse in those same positions, so it isn't a slam dunk as far as dxing.
But if you have many TOS like, or similar sx, and other testing rules out any c spine or other issues, then it sure points to TOS.

Oh if it is similar to WComp, and you do feel much worse tonight/tomorrow, go have the increased pain & sx documented by your own medical team.
Often it all comes down to what is on paper
...

That's a GREAT point !

Wish I had known that back in the day.
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Old 05-27-2012, 08:41 PM #9
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Quote:
Originally Posted by Jo*mar View Post
There is also a small percentage of normal folks that will lose the pulse in those same positions, so it isn't a slam dunk as far as dxing.
Given that TOS results from how all your structures come together and that all of those variables can be in degrees (rather than "on" or "off"), I often think that these people have "sub-symptomatic TOS".

It would be interesting to see a study that followed such people as well a control group that didn't lose the pulse during the clinical tests and observe what develops over time.
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Old 05-27-2012, 09:12 PM #10
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Yeah, I figure they just never had anything trigger the TOS or TOS like sx..

In my 20s when helping dh hang sheet rock on the ceiling, I always wondered why I couldn't hold my arms up as long as he could...
I kept having to change arms or use my head/neck to hold it up so he could nail it.. later we learned the pros use a "deadman" 2x4s to prop the stuff up overhead, boy we were dumb doing it the hard way LOL
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