FAQ/Help |
Calendar |
Search |
Today's Posts |
|
Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie. |
Reply |
|
Thread Tools | Display Modes |
06-02-2012, 12:27 PM | #11 | ||
|
|||
Member
|
Quote:
Did he say he wanted to do all three on you or is it that he just does all of those depending on the diagnosis.Thats what Dr. Ahn does after his Angiogram he can tell where the compression is. How do you know you have all three areas of compression? I still dont know where my compression is and my scalene block was positive. Have you spoken with him since your scalene block and your visit with the pt? did you have the MAC test or how can you tell your pec minor is involved? Sorry for so many questions , but it is important to understand everything before you commit to the surgery, also I am curious for myself. Does he do all of these surgerys together? If he does then he is one of the only ones that does this. ps sorry I just scrolled down and saw marc was asking some of the same questions. Last edited by Jomar; 07-03-2012 at 09:09 PM. Reason: req by member |
||
Reply With Quote |
"Thanks for this!" says: | Jomar (06-02-2012) |
06-02-2012, 02:47 PM | #12 | |||
|
||||
Member
|
Doing all 3 complete procedures require both transaxillary and supraclavicular incisions. I think the surgeons who remove the rib supraclavicularly do all 3 at once. I think the transaxillary rib guys prefer just doing partial scalenectomy (I've seen this called scalenotomy) and coming back later supraclavicularly for full scalenectomy only if necessary.
My surgeon said he has never had a need to perform the pec minor procedure.
__________________
Marc . ACDF C5-C6-C7 2/28/11 . . . . |
|||
Reply With Quote |
06-02-2012, 06:45 PM | #13 | |||
|
||||
Junior Member
|
|
|||
Reply With Quote |
"Thanks for this!" says: | nospam (06-03-2012) |
06-04-2012, 04:00 PM | #14 | ||
|
|||
Member
|
Quote:
I was just thinking is it possible for you to ask to talk to some of Dr. Thompson's patients who have had a somewhat similar case as yours and had to have all three procedures done and how are they feeling post surgery, possibly one who has had surgery not so long back and one who may have had one say more than 8-10 months back. I am specially concerned about the pect minor tenotomy. |
||
Reply With Quote |
06-04-2012, 10:43 PM | #15 | |||
|
||||
Junior Member
|
Quote:
The questions are fine they help us all figure out what is going on. I still don't know everything. As far as surgery. He does one side of the neck taking out scalenesnand first rib. Will cut both pecs. Then 6 weeks later do the other side of my neck. Jess |
|||
Reply With Quote |
06-04-2012, 11:24 PM | #16 | |||
|
||||
Co-Administrator
Community Support Team
|
MAC test, a bit of info -
[Diagnostic tests, such as EMG's or NCV's, may show non-specific abnormalities, but usually are normal in people with TOS. However, recently a new nerve test was found which has been abnormal in the large majority of patients with neurogenic TOS and pectoralis minor syndrome. This test can be considered a variation of EMG/NCV measurements. It is a determination of the medial antebrachial cutaneous nerve (abbreviated MAC). It is one of the few objective tests that can support the diagnosis.(Reported recently by Machanic, BI and Sanders, RJ in the Annals of Vascular Surgery,March,2008.)] www.ecentral.com/members/rsanders/ http://www.researchgate.net/publicat...utlet_syndrome
__________________
Search NT - . |
|||
Reply With Quote |
06-05-2012, 06:37 PM | #17 | ||
|
|||
Member
|
Quote:
Sanders would have known this if he looked at my MRA. He did not because he didn't believe in the test. Angle looked at the MRA and said it gave him a good indication of what was going on inside. He feels they are useful. At this point, I'm not interested in any more tests (scalene block, etc.). I know I have TOS and so do the Doctors. The only thing left to do is to have surgery or live with pain management. ** The above is only my opinion based on my journey ** |
||
Reply With Quote |
06-05-2012, 10:39 PM | #18 | |||
|
||||
Member
|
Sounds like you've reached the same conclusion I did. I'm so glad Dr. Angle felt more testing was unnecessary when the other doctors wanted to keep repeating the same old tests or try experimental new ones on me. I had been through enough!
__________________
Marc . ACDF C5-C6-C7 2/28/11 . . . . |
|||
Reply With Quote |
06-06-2012, 10:30 AM | #19 | ||
|
|||
Elder
|
I am glad no more testing for you too. Sometimes doctors do things that don't need to be done. Some of the more painful tests, I turn down at every opportunity. Let them get some of the same tests, and they may find it a tad painful too. humph.... Hope all turns out good for you, and that you get the relief you really need. ginnie
|
||
Reply With Quote |
"Thanks for this!" says: | nospam (06-06-2012) |
06-15-2012, 08:39 AM | #20 | |||
|
||||
Junior Member
|
Dr. Thompson made me go on disability leave. So no more working for me. Im starting pt on Thursday. We will see how that goes. Dr T's pt has very specific instructions that my pt is to follow, so hopefully that will keep from hurting too much. I am going to try the pt, but I don't think it can get me where I need to be. Thoughts?
I have been off work a week now and I feel a lot better; the change is amazing. But I have to get back to work eventually. I'm facing the fact that I may have to give up a job I love. I don't know what I'll do if I can't work for Starbucks. I love my job and the insurance and benefits are unbeatable. One day at a time. My primary care Dr started me on gabapentin. That made me so tired I couldn't function. Does the tiredness get better with time? Or is it time to try so something else? Thanks, Jess |
|||
Reply With Quote |
Reply |
|
|
Similar Threads | ||||
Thread | Forum | |||
Anyone seen Dr. Robert Thompson of WUSTL? | Thoracic Outlet Syndrome | |||
Somer Thompson | The Stumble Inn |