Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie.


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Old 06-11-2012, 11:25 PM #1
winic1 winic1 is offline
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If it seems they had "lost" your disc temporarily, I would check the report on it yourself. When they "found" it, they might have "found" someone else's.

It happens a lot more than you'd think. I had a big name dr at a big name place mix someone else's disc in with mine, and plan his treatment for me based on a problem I didn't have. I had an orthopedic doctor come back into the room after looking at my report and disc, and tell me my knee was completely shot with arthritis, cartilage gone, nada left, in places, so when I was old enough I would need a replacement, but until then, oh well, so sorry, nothing to be done. But when I got a copy of his report, he said only some mild cartilage damage (confirmed by a better doctor later on). All I can figure is some poor woman in the room next to me got told she was fixable with a little physical therapy, when in fact that could only do her harm and she had replacement surgery in her future. I had a neuro-ophthalmologist once leave me sitting alone in a room for nearly an hour (after 3 hours of testing), a nurse found me and thought the doc had been talking to me already, so sent him in where I got about 3 minutes summary and sent on my way. When I got a copy of his report a week later, there was an extensive paragraph detailing an extensive discussion we evidently had, only he never had it with me (in fact, that paragraph was in a different size and font and print darkness and margins than the rest of the document, and literally looked like it had been cut out and taped in from something else before being run through the copier), guessing he may have had it with another patient (or maybe he was just napping for that hour...)

These are just some highlights on mix-ups I have encountered. They happen way more often than you'd think. So check up on your missing ribs. Someone, either this time or on your previous x-rays, has screwed up.

(Either that, or figure out how you did it, you might just have the cure for rib resections--make them vanish instead!
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McRiblet (06-12-2012)
Old 06-12-2012, 01:35 PM #2
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Quote:
Originally Posted by winic1 View Post
If it seems they had "lost" your disc temporarily, I would check the report on it yourself. When they "found" it, they might have "found" someone else's.

It happens a lot more than you'd think. I had a big name dr at a big name place mix someone else's disc in with mine, and plan his treatment for me based on a problem I didn't have. I had an orthopedic doctor come back into the room after looking at my report and disc, and tell me my knee was completely shot with arthritis, cartilage gone, nada left, in places, so when I was old enough I would need a replacement, but until then, oh well, so sorry, nothing to be done. But when I got a copy of his report, he said only some mild cartilage damage (confirmed by a better doctor later on). All I can figure is some poor woman in the room next to me got told she was fixable with a little physical therapy, when in fact that could only do her harm and she had replacement surgery in her future. I had a neuro-ophthalmologist once leave me sitting alone in a room for nearly an hour (after 3 hours of testing), a nurse found me and thought the doc had been talking to me already, so sent him in where I got about 3 minutes summary and sent on my way. When I got a copy of his report a week later, there was an extensive paragraph detailing an extensive discussion we evidently had, only he never had it with me (in fact, that paragraph was in a different size and font and print darkness and margins than the rest of the document, and literally looked like it had been cut out and taped in from something else before being run through the copier), guessing he may have had it with another patient (or maybe he was just napping for that hour...)

These are just some highlights on mix-ups I have encountered. They happen way more often than you'd think. So check up on your missing ribs. Someone, either this time or on your previous x-rays, has screwed up.

(Either that, or figure out how you did it, you might just have the cure for rib resections--make them vanish instead!

I would love to be able to make the ribs vanish! Poof! No more pain!

I am relieved to know I am not alone in the world of medical mix-ups (if that is what happened to mine), but it is also sad that these kind of things go on. I am going to have to learn to be way more vocal than what I am.
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Old 06-12-2012, 05:24 PM #3
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I hate that you are going through what many of us have had to. Most practitioners are ignorant in regards to TOS. I was lucky I have a good PPO insurance (CIGNA) and their website has a great search tool to show me who was in and out of network.

My neurologist was not experienced with TOS but he and another neurologist researched what to look for on the EMG (C8-T1 anomalies). I was able to gather all of my imaging and EMG results and start seeing vascular surgeons with TOS expertise. I started my search using google and then this list: http://surgery.wustl.edu/TOS_Consortium.aspx

Educate yourself on TOS and select your practitioners wisely. Find people who know more than you do. If you feel you know more...run in the opposite direction in regards to treatment. My neurologist is still my pain management doctor, but does not directly treat my TOS (nor did he attempt to do so).

I am blessed to have had successful bilateral rib resections and scalenotomies...as well as an experienced group of therapists to properly treat me.

Shout outs to www.niren-angle.com and www.andoaston.com
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