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10-27-2012, 05:21 PM | #81 | ||
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I'm not sure if it was you that I replied to already. I'm confused about the procedures here. If I send you a reply how do I know when you reply back to me. Where do I go to look for it? I wanted to talk to you because I've seen that you had TOS for 30 yrs plus and used Dr. Donahue. I have seen Dr. Donahue and have had TOS about 35 yrs. I've been looking around on the site and happy that I have found so much information. Hope to hear from you soon. irisheyesmilin |
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11-03-2012, 08:32 PM | #82 | ||
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I am just concerned because I've been doing the same thing for the past 2 months and have not improved very much and I feel like I'm getting worse some days. I think that sometimes the pain I'm having is still post surgical I thought that pain usually did not last this long, am I wrong about that? I do know that my winged scapula is definitely a big part of the problem. I've been told by a couple of different therapists that it is weakening my shoulder very much and will make my recovery even longer. I am supposed to begin looking for a new job soon but I am also worried that going to work when I am not ready, I might push myself back further and getting understanding from a new employer about my limitations might be even more difficult than it was with my current one. Anyway, still trying to take it day by day, hopefully my symptoms will improve with more time and patience. |
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11-03-2012, 08:38 PM | #83 | ||
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Last edited by parbie; 11-03-2012 at 08:40 PM. Reason: double quoting |
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11-06-2012, 09:20 PM | #84 | ||
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Parbie, hope this new therapist works for you. Wish you good luck in your recovery!
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"Thanks for this!" says: | parbie (11-10-2012) |
11-07-2012, 01:31 AM | #85 | |||
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Hi All
I just wanted to share a Dr with you. I have Right sided True Nuerogenic TOS. I am 6 weeks post op. I did not have a rib resection. I had a Scalenectomy and scraping the brachial and surroundibg area of scar tissue. He also cleared C1 _ C5 so there is no obstruction going through the brachial plexus. I have a 5 inch insicion above my clavical bone. I am very pleased with the scar so far. The surgeon glued it and it really is not very noticable. I was undiagnosed for two n half years saw many many drs before TOS dx and after dx to confirm. My surgeons name is Dr Lee Osterman. He comes highly recomended and has many years experience. He also has a great bed sde manner as well as his team theners well as his team. He also took the time to comfort my family after surgery as the surgeryy took a very long time. He is associated with The Philadelphia Hand Center. They have many office through out the Philadelphia area, delaware County Pa and King of Prussia Pa. I do not regret the surgery at all and I am glad I did it. I jyst thought I would share and bezt of luck to everyone n stay strong.. Peace light n love Candie I apoligize for any typos |
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11-09-2012, 12:41 AM | #86 | |||
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Thanks Candie...good luck with your recovery.
__________________
Marc . ACDF C5-C6-C7 2/28/11 . . . . |
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11-09-2012, 08:06 AM | #87 | |||
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11-10-2012, 07:30 PM | #88 | ||
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11-10-2012, 07:48 PM | #89 | ||
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So I have realized even more that I was seeing a therapist who made me worse rather than better for 4 weeks and it really sucks that I didn't realize it sooner. When I asked him to not touch my pec area or scalenes/brachial plexus area anymore because Dr Annest said he needs to back off due to my high sensitivity, he did not react well and thought everything he was doing was right.
Regardless, I now have a new therapist and she is great so far. She is very willing to follow the 3 protocols I gave her (Denver, Edgelow, and Ando). She is just taking what she believes will help my individual case from each and applying it and although she does not specialize in TOS she seems to know enough and is also manually certified (hard to come by in my area). She has been doing joint and rib mobilization so far and it seems to be helping but I still flare up whenever doing any activity for too long afterwards. The nerve glides I have been doing at home I feel are not helping at all, her recommendation was to continue with them but be very very aware of my neural tension even if it means moving my arm/hand/wrist very slightly. The edgelow breathing is also getting worse rather than better for me and I can't seem to figure out why. I sometimes cannot do more than 5 mins of it. I am continuing with heat and ice, neural desensitization as my brachial plexus that entire area of my neck still seems to be pretty fired up, and of course continuing my meds and using a new lipoderm cream. I am still having lots of pain in my pec minor area and my neck, especially near my occipital nerve area as well but the joint mobilization helps with that. My shoulder blade (winged scapula) as well as my shoulder joint area also are painful. Massage of my shoulder blade and upper back help. But my shoulder I have a feeling is due to my labral tear. My left side is becoming more symptomatic, I thought it was better after surgery, but maybe its because my right side was/is so bad, I didn't notice the left as much. My therapist thinks it is a result of my overuse of that arm as well as her mobilizing my ribs, which hasn't been done since before surgery. Ok more than enough typing but I think I covered everything! |
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"Thanks for this!" says: | Woodstock3 (11-11-2012) |
11-11-2012, 10:10 AM | #90 | ||
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Candie, Thanks for the info about Dr. Osterman. I am happy to hear your recovery is going so well. I also saw a Neurosurgeon at University of PA. He also does the type of surgery you had done. He told me to exhaust all options before having the surgery - which I am doing now. I think if i could find a good PT I could make some progress. Wishing you continued success with your recovery!!
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