Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie.


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Old 05-06-2015, 05:15 PM #27
jkl626 jkl626 is offline
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Join Date: Mar 2012
Location: West L.A.
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jkl626 jkl626 is offline
Member
 
Join Date: Mar 2012
Location: West L.A.
Posts: 581
10 yr Member
Default So good to hear from you

Hi Parbie,
its so good to hear from you. i'm happy to hear you are in S. California and that you are able to work even if there is some pain. I am curious if you do go and see Dr. A. I still highly recommend him and his team but after seeing him for a couple of years off and on, i realized I was not really getting much better. Sometimes it flared me up because it is very aggressive. I stopped doing all their exercises for awhile but now am trying to add some back in. I can fill you in more by e-mail or PM...
I have found a new PT closer to me in Santa Monica that has helped me alot (very gentle)and I am also trying Prolozone injections. Once a month-3 times. it is now mostly covered by my insurance. I can feel a difference so fingers crossed.
I have had good luck with injections: Trigger point and now ozone so I would recommend them for tight muscles.
I may still go back down to see Dr. A, at some point to get my ribs adjusted . if I do come down we should try to meet-or if you ever come up to L.A.
I have tried to go back to work a few times and I get really bad flares, but I havent given up yet.
i have been on Lyrica for the past year and it definately helps me more than the Gaba and doesnt make me as spacey. i dont take very much though-also cannibis oil at night!! its legal here! It helps with bad pain and helps me sleep. Tumeric and Fish oil also.
BTW-Ocylyn has a website-"TOS society" that has some other O county practitioners listed. Massage therapists etc. Also Marc has seen some massage therapists and pilates instructers at A&A
Good Luck and Take Care of yourself,
jkl
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