I am trying to get an appointment with the place next week, decided I would give it a shot and also order Edgelow's Protocol and try that, whichever is sooner. I have been thinking about it and I think 2 weeks is probably enough for me to at least see if I feel any relief in comparison to the PT I was doing before (until this past May). Regardless, if I decide to just go ahead with surgery, at least one or the other or maybe both can help me post surgery.

I am definitely going to try out an initial evaluation at this place and possibly another I found. I do have extra cervical ribs and am now wondering with this rib mobilization, it seems it is usually the first and second ribs, do you happen to know if that works or can be done with cervical ribs? I do think learning pain relieving therapies is probably a good idea for me right now as I am doing nothing but living with it and still working (at a computer typing and sitting 8 hours a day) which makes it tougher.

I will ask my dr. Ando who does the rib mobilization about cervical ribs. I wonder if he will do a phone consultation. I may not see him for another week tho. On Monday I see his asst but she may not know. I will get back to you-

Bumping up

I had P.T. with Dr Edgelow himself for about 8-10 sessions (the max my insurnace would pay for) and got the booklet and CD of breathing music and ball on the stick. (you can make your own ball on a stick by cutting a tennis ball with an exacto knife and putting a wooden dowel stick that is about 1" diameter through it. Not sure what length of dowel however.

When I get into a flareup the first thing I do is lie on the carpet and do the breathing where you kind of rock your pelvis. That was breathing I learned and perfected by my practicing the Edgelow Protocol. I also did it some more with a hand P.T. (lori sweet)

(I no longer have a first rib so the ball on the stick doesn't work anymore).

It didn't really do much for me except give me a set of tools to help center my thoughts and focus on my breathing fduring a flareup.

I still had to eventually get the TOS surgery (because my vascular TOS was so bad and not getting better and because I was still in 10/10 pain)

Hi NerPain,
Sorry to hear you are not doing well. I hope one day you will be able to get some relief. Can you please tell us who you had surgery with and if it was through the armpit or by your collar bone. Also, did you get relief from surgery and then the symptoms came back? Thanks.