Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie.


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Old 07-06-2012, 06:13 PM #1
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Default How were you diagnosed?

I've read most of the TOS postings and know that quite a few people have negative EMGs, etc. How did you get an official diagnosis?

My WC Dr. just called & told me my EMG was negative. I don't see how that is possible since my pinkie & ring finger are numbish & shake constantly. Then again, the technician who did the EMG was very snotty about it being a work injury - apparently she thought TOS was entirely congenital. No idea where I should go from here. The p/t says I have TOS.

He's sending me back to work Monday. My husband thinks I should just quit.
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Old 07-06-2012, 06:16 PM #2
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i don't think we ever actually get diagnosed with TOS.

i first heard about it, actually right when i got it, which was by a physical therapist who said that is what she thought it was. her remedy: improve posture.

i was in the workers comp system and they refused to pay her so i stopped going to her.

i ended up just quitting because it was just a temporary job out of college.

i recommend that NO ONE use the workers comp system. if you have your own insurance, you will be more likely to be heard (not that you will be heard though) about your TOS.

i had one doctor flat out tell me that he is very reluctant to operate on workers comp cases. non workers comp cases (as mine finally was), he was ready to cut me right there!

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Old 07-06-2012, 06:17 PM #3
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by the way, my understanding is that TOS does not show up on EMG. my EMG is perfect. even when i was compeltely debilitated, it was perfect.
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Old 07-06-2012, 08:35 PM #4
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Thank you!

How debilitated were/are you?

I lived in Mpls many years ago- it was a lovely city.
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Old 07-06-2012, 10:31 PM #5
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TOS & WC is a very tricky thing..hard enough to get good & timely treatment with pvt ins... wc is a real pain.. mainly because it is so hard to dx & prove.

If you go forward with a wc injury claim...
Have you sought out a very good WC atty to represent you?

If your symptoms & pain levels are low/moderate or intermittent and you can afford to get by with 1 income for an extended amount of time, by all means quit, just to save your sanity.
Your new job will be focusing on your health & healing.

I did the wc thing, up to a point, but wasn't majorly disabled for the long term, like some that have posted in the past. I was recovering being off work & doing much self care & chiropractic & adv PT, which I found on my own, not thru the wc system.
I was only majorly disabled for a couple months - barely could brush my teeth, & trouble with other bathroom things
Barely could cook or clean...
I did get some decent PT so luckily those worst things resolved, but was still limited as to uses/time.

EMG pretty much just rules out that there is definite nerve damage already happening when it is positive.


What type of job do you do?
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Old 07-07-2012, 01:28 AM #6
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i compeltely rested after quitting my job and went in to a non computer work job. it has bought me time but slowly it is all returning. i limit this and i limit that. i am getting to the point where there is nothing left to cut out of my life and it is all catching up with me. i am trying to solve this once and for all.

considering surgery but want to exhaust all options before doing so. i cannot find a pt that knows about tos (well, they all say they do but they only make me worse).

every doc i have been too as told me there is no such thing as conservative treatment that will actually work. BUT, the websites say there is. in fact, some say most people are cured by conservative treatment.

my next stop is my personal trainer to help me with posture. i have been to every health care type of person imagininable.
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Old 07-07-2012, 01:00 PM #7
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Jo Mar - I work on a computer reading applications & Dr records. It's a lot of screen changing & typing. Sitting in my ergonomic chair, using my ergonomic keyboard, wearing a posture brace & wanting to cry because it hurts & my fingers quit working after a while Granted, it's only 4 hours a day (voluntary reduction in hours on my part) and I work from home. So no driving.

We would be fine on one income. My husband wants me to contact an attorney so I'll do that Monday. It would be so much easier to just quit but it ticks me off that my employer would then be off the hook.

Now my husband has to open my pop bottles.

Last edited by Jomar; 07-08-2012 at 11:52 AM. Reason: per request
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Old 07-07-2012, 01:24 PM #8
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With really good care, lots of self care & lots of luck it just might get better for you too. So don't give up.

WC hoops/rules/red tape will tend to slow down/drag out the healing process, it might be even harder to prove a clear cause since you work at home...


esp if you do go the wc route, sometimes they do searches for names or dates or specific injuries.... usually more so for the more costly claims.

You can check our Work comp forum for stories & tips. It will help you decide if it is worth it or not.
http://neurotalk.psychcentral.com/forum30.html

It may help to make a list of pros & cons doing wc vs pvt ins?
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Old 07-07-2012, 09:01 PM #9
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Yikes! Yes, please remove that info. I've been complaining of hand numbness & pain for years with this company so there is a clear paper trail. It's only been the last couple years that I've worked from home - previous to that I worked in the office.

Actually, now that I think about it, I've gone downhill since rotator cuff/SLAP tear surgery in 2010. Lack of conditioning, maybe? I used to work out with weight machines 2 to 3 times a week before injuring my shoulder.

Thank you for your replies, JoMar. This site has been a godsend.
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Old 07-09-2012, 06:53 AM #10
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Holles,

Are you in a state with good work comp laws? Correction, Are you in a state with work comp laws that just suck instead of really suck?

If you go the work comp route, file a claim and get a doctor to put you out of work. You need to stop this now and you need to start healing. Working more on the computer is not going to be worth it.
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