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Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie. |
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07-11-2012, 10:35 PM | #1 | ||
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Thank you for responding!
nospam - I'm in Southern CA. I am open to PT - I probably could have avoided the DVT had I done it a while ago! jo*mar - Nothing out of the ordinary with the tests so far - a CT and ultrasound. Both vascular surgeons I've seen have been surprisingly conservative in their approach and neither seem concerned with follow up testing, mainly because my clot cleared up quickly. I even requested an MR-V after doing more research, and one reluctantly agreed to have it done while the other insisted that it wouldn't be conclusive anyway. I've been told by both that the venous compression is not "graded" or scaled - it's either there or it isn't, and as you mentioned, only surgery can reveal the true cause. It's interesting/alarming/confusing to me that we are all getting such different advice for treatment. |
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07-14-2012, 04:32 AM | #2 | ||
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I also had a clot develop due to my TOS. I was actually told that the clot was caused due to compression of my sub clavian vein. I had the surgery June 19th at Barnes Jewish Hospital in St.Louis through The Center For Thoracic Outlet Syndrome. Dr. Robert Thompson. They removed the scalene muscles and first rib. I had a MR venogram that confirmed compression. Im still healing, and doing better every day. I was lucky enough that no vein reconstruction was needed. I was injured a year ago. Was diagnosed TOS almost 6 months later. Tried PT but nothing helped. I had surgery 1yr 4 months after my injury. The key is finding the right Dr's and be persistent. Good luck to you.
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07-14-2012, 08:33 AM | #3 | |||
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What Vascular Surgeons have you consulted? Where in SoCal are you ? LA, Orange County, Inland Empire, San Diego?
__________________
Marc . ACDF C5-C6-C7 2/28/11 . . . . |
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07-15-2012, 12:24 AM | #4 | |||
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Marc!
WOW! |
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07-21-2012, 03:46 PM | #5 | ||
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Marc,
I was diagnosed with VTOS too with compression of the subclavian vein but no clots, and surgery has been recommended. I'm in the northeast but was wondering if you had any insight through your experiences for someone considering the surgery. The "possible risk of blood clots" is a big one to weigh, as I'm sure you know... |
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07-20-2012, 11:47 PM | #6 | ||
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Nina 987- I'm in SD and my therapist has worked with TOS patients without surgery, and like me following surgery. UCSD is a fantastic facility. Send me a note if you want more info. Having VTOS I completely understand your fears. I also had blood clots in my subclavian vein. My case did not allow the option to forgo surgery. Ive been highly impressed with my therapist and surgeon though. I have been blessed with them though this mess.
Last edited by Laur3d; 07-21-2012 at 12:27 AM. Reason: Incomplete info |
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